Entries by actualizedevs

Webinar Video: “Cancer Moonshot – Symptom Management and Funding”

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This week, NCCS hosted the latest CPAT webinar, Cancer Moonshot: Symptom Management and Funding. The featured presenters were Deborah K. Mayer, PhD, RN, AOCN, FAAN; and MK Holohan, JD. Dr. Mayer is the Director of Cancer Survivorship at the UNC Lineberger Cancer Center and a member of the Cancer Moonshot Blue Ribbon Panel. Ms. Holohan […]

NCCS Marks 30 Years of Cancer Survivorship Advocacy

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On October 13, 2016, the National Coalition for Cancer Survivorship (NCCS) recognized its 30th anniversary of advocating to improve cancer care. Current and past NCCS staff and board members, cancer survivors, caregivers, and representatives from throughout the cancer community attended to commemorate this milestone. Today as the nation’s oldest survivor-led advocacy organization, the event highlighted […]

NCCS’ Paper on Oncologist-Patient Communication Published in Evidence-Based Oncology Journal

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Earlier this year, the National Coalition for Cancer Survivorship (NCCS) conducted focus groups with patients and oncologists to gain insight into this critical relationship, hear what patients and physicians consider good communication, and determine what strategies could improve effective communication. An article describing the learnings from the focus groups was published in the October 2016 […]

NCCS Presents the Inaugural Ellen Stovall Award to Douglas W. Blayney, MD, FACP (Video)

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At the National Coalition for Cancer Survivorship’s (NCCS) 30th Anniversary Reception on October 13, 2016, NCCS presented the inaugural Ellen Stovall Award for Leadership in Patient-Centered Care. The award was created to honor former NCCS CEO Ellen Stovall, who led the organization for more than twenty years and passed away in January 2016 from complications […]

Cancer Moonshot Blue Ribbon Panel Recommends Research to Minimize Debilitating Side Effects of Cancer Treatment

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Today, the Cancer Moonshot Blue Ribbon Panel released ten recommendations to accelerate progress in cancer research. One recommendation is for symptom management research to minimize the debilitating side effects of cancer treatment. The recognition of the toll cancer treatment takes on survivors, during treatment and for the rest of their lives, is significant, and we […]

NCCS Comments on CMS’s Proposed Revisions to the 2017 Physician Fee Schedule

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NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed revisions to the 2017 Physician Fee Schedule. Our comments noted our support for the Oncology Care Model, but acknowledged that only a minority of cancer care providers and cancer patients will be part of this model. Therefore, changes to the […]

NCCS Comments on the FDA’s PDUFA Proposed Commitment Letter

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NCCS submitted comments to the Food and Drug Administration (FDA) on the letter representing the agreement between FDA and regulated industry on goals for the re-authorization of the Prescription Drug User Fee Act (PDUFA VI). NCCS participated in the PDUFA stakeholder meetings held over the last year, and we support the role […]

Highlights from the 2016 CPAT Symposium and Hill Day

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In June, over 50 patient advocates gathered in Washington, D.C. to take part in the NCCS 2016 Cancer Policy & Advocacy Team (CPAT) Symposium and Hill Day. Days One and Two Attendees heard and participated in a number of informational presentations, including “Current Issues in Cancer Care: The Economics of the Cancer Care System,” “Communications […]

Guest Post: For the Love of a Friend

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My dear friend Avery[1], a woman I’ve known since we were 10 years old (in 5th grade together) was diagnosed with inflammatory breast cancer (IBC) in 2006. Having observed my mother’s battle with breast cancer in the 1980s, I considered myself a veteran of the struggle. Times change. Diseases evolve. The intervening years—from the 80s […]