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NCCS - National Coalition for Cancer Survivorship
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48 SEARCH RESULTS FOR: Shared Decision-Making

Reps. DeSaulnier and Poe Introduce Bipartisan “Cancer Care Planning and Communications Act”

March 8, 2018/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Planning, Clinical Guidelines, Health Care Coverage, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

Advocated for by NCCS, the bill would increase comprehensive cancer care planning for millions of Medicare beneficiaries.  Washington, D.C. – Today, Rep. Mark DeSaulnier (D-CA) and Rep. Ted Poe (R-TX), both cancer survivors and co-chairs of the Congressional Cancer Survivors Caucus, introduced H.R. 5160, the Cancer Care Planning and Communications (CCPC) Act. A longtime legislative […]

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What Caught Our Eye: NCI Chief Sharpless Interviewed; Expert Patients; “Why We Didn’t Seek Right to Try”; Progress in Survivorship Care; and More

March 2, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. – Health Insurance – “Bait And Switch: The Sneaky Way Your Employer Just Passed Healthcare Costs Onto You” By Peter Ubel, Forbes.com — With increasing frequency, employers are directing their workers to the kind of high deductible, high out-of-pocket insurance plans that leave workers financially responsible […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-02 17:26:372018-03-02 17:26:37What Caught Our Eye: NCI Chief Sharpless Interviewed; Expert Patients; “Why We Didn’t Seek Right to Try”; Progress in Survivorship Care; and More

What Caught Our Eye: ACA Stabilization Waiting Game; Living with Lung Cancer; Cancer and Aging; Caregiving; The CancerSEEK Test; & More

January 26, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. | “Congress’s next health care waiting game: market stabilization” — By Caitlin Owens, Axios.com — Now that Congress has passed a bill funding the Children’s Health Insurance Program — more than three months after funding expired — the clock is ticking as lawmakers work at putting together […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-01-26 17:25:392020-10-21 11:28:26What Caught Our Eye: ACA Stabilization Waiting Game; Living with Lung Cancer; Cancer and Aging; Caregiving; The CancerSEEK Test; & More

What Caught Our Eye: “Resolutions of a Cancer Doctor;” BRCA Doesn’t Affect Survival; Medicaid Work Requirements; Cancer Death Rate Drops Again; and More

January 12, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. — “Trump’s secret plan to scrap Obamacare” — Early last year as an Obamacare repeal bill was flailing in the House, top Trump administration officials showed select House conservatives a secret road map of how they planned to gut the health law using executive authority. The March 23 document […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-01-12 14:59:102018-01-12 14:59:10What Caught Our Eye: “Resolutions of a Cancer Doctor;” BRCA Doesn’t Affect Survival; Medicaid Work Requirements; Cancer Death Rate Drops Again; and More

Mommy, Where’s Your Hair? (And Other Questions I Faced as a Parent with Cancer)

February 16, 2017/in Cancer Policy Blog Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

It’s one thing to have cancer, and quite another to have children witness it. At age 37, I was diagnosed with Stage IV inflammatory breast cancer; I had a large tumor in my left breast, and the cancer had spread to lymph nodes and a rib. And I had a 14-month-old son and a 4-year-old daughter. Parenting with cancer is sadly not an uncommon phenomenon; […]

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What Caught Our Eye: ACA Debate, Thyroid Cancer Late Effects, Long-Term Follow-Up Care, Cervical Cancer Mortality, and Anxiety in Partners of Breast Cancer Survivors

January 27, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

For millions of cancer survivors and their families, Rep. Tom Price’s refusal to promise that no one will lose coverage because of President Trump’s executive order is unnerving to say the least.

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-01-27 13:26:072017-01-27 13:26:07What Caught Our Eye: ACA Debate, Thyroid Cancer Late Effects, Long-Term Follow-Up Care, Cervical Cancer Mortality, and Anxiety in Partners of Breast Cancer Survivors

What Caught Our Eye: ACA Repeal Debate, the FDA’s Oncology Center of Excellence, and The Caregiver Space

January 20, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

What Caught Our Eye (WCOE), Week of January 16, 2017 What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Affordable Care Act Despite recent claims, individual health insurance markets are becoming more stable, not less, according to the Center for Budget […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-01-20 09:07:312020-10-21 12:10:05What Caught Our Eye: ACA Repeal Debate, the FDA’s Oncology Center of Excellence, and The Caregiver Space

Guest Post: I Must Advocate for Improved Quality of Life for Cancer Survivors

December 2, 2016/in Cancer Policy Blog Care Planning, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

Guest Post by Virgie Townsend Advocate, Caregiver, and NCCS CPAT MemberI am the mother and caregiver for my son who was diagnosed with biphenotypic leukemia in March of 2011. Being there for my son gave me a first hand look at what cancer survivors go through. I think most of us have been touched by cancer […]

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NCCS’ Paper on Oncologist-Patient Communication Published in Evidence-Based Oncology Journal

October 25, 2016/in Cancer News, Cancer Policy Blog, NCCS News Care Planning, Doctor-Patient Communication, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

Earlier this year, the National Coalition for Cancer Survivorship (NCCS) conducted focus groups with patients and oncologists to gain insight into this critical relationship, hear what patients and physicians consider good communication, and determine what strategies could improve effective communication. An article describing the learnings from the focus groups was published in the October 2016 […]

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Guest Post: For the Love of a Friend

August 9, 2016/in Cancer News, Cancer Policy Blog Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

My dear friend Avery[1], a woman I’ve known since we were 10 years old (in 5th grade together) was diagnosed with inflammatory breast cancer (IBC) in 2006. Having observed my mother’s battle with breast cancer in the 1980s, I considered myself a veteran of the struggle. Times change. Diseases evolve. The intervening years—from the 80s […]

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Latest News

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NCCS, Cancer Groups Urge CMS to Withdraw Most Favored Nation (MFN) Medicare Part B Rule That Will Harm Patients and Reduce Access to Care

December 22, 2020
The National Coalition for Cancer Survivorship (NCCS) joined other member organizations…
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NCCS Letter to HHS

NCCS Letter to HHS: Proposed Regulatory Review Rule Would Create Unnecessary Uncertainty for Patients

December 9, 2020
The National Coalition for Cancer Survivorship (NCCS) recently submitted comments…
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NCCS Opposes Most Favored Nation (MFN) Rule: New Medicare Part B Drug Payment Model Will Harm Patients

December 3, 2020
The National Coalition for Cancer Survivorship (NCCS) opposes the Most Favored Nation…
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Take Action

Stovall Award

The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • COVID-19 Resources for Cancer Survivors
    • Order Our Resources
  • News
    • Cancer Convos Podcast
  • Events
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute