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NCCS - National Coalition for Cancer Survivorship
  • About
        • About Us

        • NCCS is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how NCCS’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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    • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
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        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessNCCS advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with NCCS.

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        • NCCS conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
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        • NCCS provides a wide variety of resources for both patients and caregivers.

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Care and Career Support From Health Systems to Employers Webinar

Webinar – Care and Career Support: From Health Systems to Employers

August 3, 2022/in NCCS News Quality Cancer Care, Shared Decision-Making NCCS News

NCCS hosted a webinar about the unique demands of caregiving in cancer and strategies that employers and health systems might engage to support caregivers.

Webinar Speakers

Margaret L. Longacre, PhD, Associate Professor and Chair of Public Health, Arcadia University
Michele Cygan, Director of Compensation and Benefits, Arcadia University
Christina Sisti, DPS, MPH, MS, NCCS CPAT Member, Caregiver, and Cancer Survivor
Mary Sweeney, SHRM-SCP, SPHR, GBA, VP for Human Resources and Employee Experience, Arcadia University
Haley Smoot, Director of Public Policy, NCCS

In this webinar, Dr. Longacre presents data on the experiences and common issues faced by cancer caregivers in the US. Dr. Sisti describes her experience as a caregiver to her late husband and her own cancer diagnosis. Michele Cygan and Mary Sweeney offer possible solutions for supporting caregivers and present them in the form of a pair of checklists (linked below), one each for employers and employees. After the presentation, NCCS Public Policy Director Haley Smoot asked the speakers questions provided by the audience.

Learn About:

  • The demands of oncology caregiving and the ways that support might be possible from health systems, including integration of caregivers into care to recognize needs, and from employers.
  • Supporting caregivers specifically related to employment, including policies and strategies that can support caregivers (e.g., FMLA) in terms of career flexibility and financial needs.
  • How, in light of the recent COVID-19 pandemic and employee demands, employers are now focusing more on employee well-being programs and updating HR policies to meet employee needs.

Watch the full video below or watch on YouTube.

Webinar Slides and Related Resources

  • Webinar Slide Deck (PDF)
  • Assisting Caregivers Today (ACT) Employee Checklist
  • Assisting Caregivers Today (ACT) Employer Checklist

This webinar is a part of NCCS’s Cancer Policy and Advocacy Team (CPAT) program for survivorship advocates passionate about improving cancer care. Learn more at https://canceradvocacy.org/cpat.


About The Webinar Speakers

Michele CyganMichele Cygan has spent over 25 years in Human Resources (HR) in various markets including healthcare, specialty pharmaceutical, clinical research and higher education. Her experience provides an internal and external perspective of HR due to her Corporate and HR Consulting background. She currently is the Director of Compensation & Benefits at Arcadia University, a private university that enrolls approximately 4,000 undergraduate, masters and doctoral students.

Prior to joining Arcadia University, Michele served as Director, Global Benefits, at Worldwide Clinical Trials with employees living in over 40 countries. Some of her previous employers include Penn State Hershey Medical Center, Theorem Clinical Research and BioScrip.

Michele was the co-owner of Strategic HR Solutions and worked as an independent Human Resources consultant for 8 years providing HR outsourcing services. Some of her clients included Good Shepherd/Penn Partners, Fox Rehabilitation, Genesis HealthCare, excelleRx and NovaCare.

Michele graduated from Cabrini College with a B.A. in Organizational Management.

 
Margaret Longacre PhDMargaret Longacre, PhD, MSHE is the Chair of the Public Health Department and Assistant Dean of Research for the College of Health Sciences at Arcadia University. Dr. Longacre’s research interest revolves around informal or family caregiving, including understanding policy and health system impacts and caregiver engagement. She was recently funded by the American Cancer Society for a project assessing the feasibility of patient-caregiver portal system with colleagues at Fox Chase Cancer Center. She has also collaborated with the National Alliance for Caregiving for various projects, including reports “Cancer Caregiving in the U.S.” and “Sandwich Generation Caregivers” (those providing care to an adult and have children in the home).

 
Christina SistiChristina Sisti, DPS, MPH, MS

Christina’s husband was diagnosed with stage three head and neck squamous cell carcinoma (HNSCC). After several months of chemotherapy and radiation, there was no evidence of disease (NED) of his cancer. Unfortunately, four months after Christina’s husband learned he was in remission, she found a lump in her right breast and another in her underarm. On August 17th, 2018, she was told she had stage three invasive ductal carcinoma. Christina’s husband was by her side throughout my treatment-chemotherapy, radiation, and multiple surgeries. Despite everything that occurred, they were finally out of the immediate grip of cancer. In August 2019, Christina’s husband learned his cancer was metastatic. He underwent various chemotherapy, immunotherapy, and clinical trials. He passed away. Their journeys led her to the cancer advocacy, caregiver, and health policy community.

 
Mary SweeneyMary Sweeney, SHRM-SCP, SPHR, GBA

Mary Sweeney is the Vice President of Human Resources (HR) and the Employee Experience at Arcadia University. Prior to that she was the Senior Vice President of HR for the Mid/South region of Trinity Health System serving over 22,000 colleagues.

Mary has been the VP of Human Resources at Arcadia since January of 2020. She started her career in HR in 1984 in the banking industry and has held various positions with increasing responsibility since then in the health care and higher education industries.

Mary holds a bachelor’s degree in human resources development from Temple University, is certified as a Senior Professional in Human Resources (SPHR) and SHRM Senior Certified Professional (SHRM-SCP), has her GBA (Group Benefits Administrator) designation through CEBS, and holds a PA Insurance License. She holds a master’s degree from Villanova University.

Connect with her here on LinkedIn!

Tags: cancer care, Cancer Survivorship, care planning, caregivers, CPAT, quality, webinar
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Take Action

Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Learn More and Join »
Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »

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  • About
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute