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NCCS Presents 4th Annual Ellen L. Stovall Award to Dr. Harmar Brereton and Dana Dornsife for Their Innovation and Dedication to Cancer Survivors

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Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 4th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care to Dr. Harmar Brereton and Dana Dornsife on November 13. Named for former NCCS CEO Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award highlights those who continue Ellen’s work of transforming cancer care to further incorporate […]

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NCCS Announces 2019 Stovall Award Honorees, Dr. Harmar Brereton and Dana Dornsife

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(NCCS) is pleased to announce that the 2019 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Harmar Brereton, MD, founder of the Northeast Regional Cancer Institute, and Dana Dornsife, founder and board chair of the Lazarex Cancer Foundation. Now in its fourth year, the cancer community’s embrace of the award named after longtime NCCS CEO Ellen Stovall continues to be a testament to her lasting […]

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Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

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Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages […]

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Remembering Richard Payne, MD

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With great sadness, we mourn the passing of former NCCS Board Chair Richard Payne, MD, on January 4. Dr. Payne was a member of the NCCS Board of Directors from 2005 to 2012; he served as Board Chair from 2010 to 2011. Thoughtful, deliberative, and soft spoken, Dr. Payne was a valued and collaborative leader of NCCS. A lover of books and golf, he was always attentive and generous to his extended family, both personal and professional. […]

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Remembering Jennifer Friar Groves

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By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]

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Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More

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CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific […]

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NCCS Presents 3rd Annual Ellen L. Stovall Award to Gay Crawford and Dr. Norman Coleman, Their 40+ Year Careers Focused on Improving Patient-Centered Cancer Care

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NCCS hosted the 3rd annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care reception. Named for former NCCS CEO, Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award seeks to highlight those who continue Ellen’s work of transforming cancer care to further incorporate patients’ goals, needs, and values. This year’s honorees are Gay Crawford, founding director of Cancer CAREpoint, and Dr. Norman Coleman, senior investigator at the National Cancer Institute. […]

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NCCS Awarded American Institutes for Research Grant to Develop New Outcome Measure: “Return to Functional Status”

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UPDATE FEBRUARY 2020: Read a summary of this research project at www.canceradvocacy.org/RFS. The National Coalition for Cancer Survivorship (NCCS) was awarded a grant from the American Institutes for Research (AIR), with support from the Robert Wood Johnson Foundation, to develop a new quality measure concept for “return to functional status.” NCCS will use a novel […]

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WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More

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What Caught Our Eye (WCOE) is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. — “Why Some Americans Are Risking It and Skipping Health Insurance” — In tiny Marion, North Carolina, the Buchanans decided that $1,800 a month was too much to pay for health insurance, and are going without it for the first time in their lives. […]

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Patient Assistance Programs: Do They Help or Hurt?

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By Rishi Sachdev and Yousuf Zafar, MD — New cancer drugs have improved prognoses for patients, but that improvement in effectiveness has come at a steep cost. The price tag of new anticancer drugs has been increasing at a significant pace, with the latest—Kymriah by Novartis—priced at $475,000 per treatment. These ever-increasing costs result in higher out-of-pocket costs for patients, which have been shown to worsen outcomes. […]

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