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Posts

How the Patient Perspective Improved My Cancer Research and Changed My Career Path

August 20, 2019/in Cancer News, Cancer Policy Blog, NCCS News NCCS News /by actualize

The first time I heard the words “you have cancer,” I was sitting in the doctor’s office with my best friend Katie. We were both 28 years old. Katie had a lump removed from her breast the Monday before Thanksgiving and I was home in New Jersey a few days before the holiday to hang out with her post surgery. We were supposed to go to DSW that Wednesday morning when she got a call that her doctor wanted to see her that day. I collapsed on the floor […]

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https://canceradvocacy.org/wp-content/uploads/2019/08/Guest-Post-Hillary-Stires.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-08-20 11:15:542020-12-31 12:12:58How the Patient Perspective Improved My Cancer Research and Changed My Career Path

Running: Fuel for My Body and Soul After Cancer

May 30, 2019/in Cancer News, Cancer Policy Blog NCCS News /by actualize

Being diagnosed with cancer stinks. It is a traumatic experience that will ripple through your life for years to come. For me it was no different. I was diagnosed with endometrial cancer at 31 and underwent treatment for a year, which included high doses of steroids. After almost two years of remission my cancer returned and had begun to spread to my uterus. My oncologist advised me that a hysterectomy was needed and within a few weeks […]

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https://canceradvocacy.org/wp-content/uploads/2019/05/Exercise-nutrition-blog-series.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-05-30 15:24:472020-07-06 10:11:54Running: Fuel for My Body and Soul After Cancer

Moving Through and Beyond Stage IV Colorectal Cancer

May 23, 2019/in Cancer News, Cancer Policy Blog NCCS News /by actualize

By Stacy Hurt, MHA, MBA. “But I’m an athlete and a non-smoker. I do everything right!” Those were my first words to the gastroenterologist who told me that the 11cm tumor in my rectum was “most likely cancer.” You would’ve thought I’d learned the whole “life isn’t fair” lesson when my son, now 13 years old, was diagnosed with a rare genetic chromosomal disorder that rendered him without the ability to walk, talk, or care for himself in any way. […]

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https://canceradvocacy.org/wp-content/uploads/Exercise-nutrition-blog-series-845x321-1.jpg 321 845 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-05-23 15:54:402020-11-11 15:02:42Moving Through and Beyond Stage IV Colorectal Cancer

Cancer at 30: Reflections on Post-Traumatic Growth

May 17, 2019/in Cancer News, Cancer Policy Blog NCCS News /by actualize

“Dig deep within yourself, for there is a fountain of goodness ever ready to flow if you will keep digging.” —Marcus Aurelius | In December of 2015, I was in the prime of my life. I was thirty years old, recently married, and had just launched a new business. Like most young people, I didn’t expect to get sick. I exercised regularly, ate reasonably well, and otherwise tried to take care of myself. On December 19th, I went to the doctor. I had a small lump. I assumed […]

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https://canceradvocacy.org/wp-content/uploads/2019/05/Exercise-nutrition-blog-series.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-05-17 11:08:502020-07-06 10:11:55Cancer at 30: Reflections on Post-Traumatic Growth

Finding Healing Hope – By Wendy S. Harpham, MD

May 9, 2019/in Cancer News, Cancer Policy Blog NCCS News /by actualize

Let’s discuss “hope.” After a cancer diagnosis, few topics are mentioned more…and discussed less. That’s a problem because what you hope for may mean the difference between enjoying life or feeling miserable. Maybe even between life and death. So how do you find hope? Not just any hope, but healing hope, namely hope that helps you get good care and live as fully as possible. Hope that helps you live your best life. The good news is there’s […]

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https://canceradvocacy.org/wp-content/uploads/2019/05/Exercise-nutrition-blog-series.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-05-09 12:02:222020-07-06 09:55:38Finding Healing Hope – By Wendy S. Harpham, MD

Diagnosed with Cancer? Consider Living Life Like a Professional Cyclist

May 3, 2019/in Cancer News, Cancer Policy Blog NCCS News /by actualize

Guest Post by Mark Corroto — I recommend those diagnosed with cancer consider living life as if they are a professional cyclist. Ok, not racing 100 miles and climbing 10,000 feet of elevation, but attending to their minds and bodies as if preparing for the Amgen Tour of California. Cyclists look for every edge they can proffer to defeat opponents. For example, World Champion Peter Sagan is said to get 9 hours of sleep a night, and many […]

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https://canceradvocacy.org/wp-content/uploads/2019/05/Exercise-nutrition-blog-series.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-05-03 12:26:152020-10-21 11:56:46Diagnosed with Cancer? Consider Living Life Like a Professional Cyclist

Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

February 21, 2019/in Cancer News, Cancer Policy Blog Access to Care, Care Planning, Clinical Trials, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages […]

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https://canceradvocacy.org/wp-content/uploads/2018/10/NCCS-Blog-CPM-Logo.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-02-21 15:04:352019-02-21 15:04:35Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

A Medical School Perspective: Beyond the Science, We Must Learn to Communicate with Patients

July 16, 2018/in Cancer News, Cancer Policy Blog Doctor-Patient Communication, Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

By Nainika Nanda, MD — Survivorship. What does this mean? Oncology highlights patients currently battling cancer. However, survivorship encompasses a longer timeline. Cancer requires lifelong care, which is achieved through proper doctor-patient communication. In fact, this relationship is a keystone of medicine. Unfortunately, it can lose focus in the sea of information medical students must master. A common analogy for medical education is […]

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https://canceradvocacy.org/wp-content/uploads/2018/07/NCCS-Blog-Guest-Post.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-07-16 16:25:302018-07-16 16:25:30A Medical School Perspective: Beyond the Science, We Must Learn to Communicate with Patients

Patient Assistance Programs: Do They Help or Hurt?

March 26, 2018/in Cancer News, Cancer Policy Blog Access to Care, Drug Pricing, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care NCCS News /by actualize

By Rishi Sachdev and Yousuf Zafar, MD — New cancer drugs have improved prognoses for patients, but that improvement in effectiveness has come at a steep cost. The price tag of new anticancer drugs has been increasing at a significant pace, with the latest—Kymriah by Novartis—priced at $475,000 per treatment. These ever-increasing costs result in higher out-of-pocket costs for patients, which have been shown to worsen outcomes. […]

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https://canceradvocacy.org/wp-content/uploads/Patient-Assistance-Programs.jpg 515 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-26 15:12:582020-12-01 10:55:19Patient Assistance Programs: Do They Help or Hurt?

Seeing the Bigger Picture of Survival Through Patient Advocacy

November 15, 2017/in Cancer Policy Blog Clinical Guidelines, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News /by actualize

As patient advocates (as in most other things in life), it seems the more we learn, the more see what we don’t know. Whether we’re involved in promoting a patient-centered approach to research, direct care, survivorship, policy change or education, there’s a daily twist and update for us to wrap our brains around. And no matter which arena we find ourselves in, we are always looking for the endpoint: How far have we come in cancer care, and how does […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy
Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
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    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute