• Facebook
  • Rss
  • Twitter
  • Youtube
  • Store
  • Donate
NCCS - National Coalition for Cancer Survivorship
  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Survivorship Champions
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • Ellen L. Stovall Award
      • Nominations
      • Honorees
      • Sponsors
      • Committees
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Cancer Policy Roundtable
      • Spring 2021 Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us
  • Search
  • Menu Menu
  • 0Shopping Cart

Year-End MATCH (DEADLINE Dec 31): Donate & Make a Difference | Donate

Posts

“Where you live shouldn’t determine whether you live” – A Letter to Sen. Murkowski from the CEO of Triage Cancer

September 22, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity NCCS News /by actualize

Dear Senator Lisa Murkowski, I am a cancer rights attorney who has spent the better part of two decades educating and helping people diagnosed with cancer navigate the health care system. While there are valid complaints about the increasing cost of the individual plans being sold in some state marketplaces, the ACA was game changing for the cancer community. It prohibited insurance companies from denying coverage or imposing exclusion […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/09/Joanna-Morales-SM-OG.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-09-22 16:11:122017-09-22 16:11:12“Where you live shouldn’t determine whether you live” – A Letter to Sen. Murkowski from the CEO of Triage Cancer

Open Letter to Congress: I Am Alive Because of the ACA (Guest Post)

July 11, 2017/in Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS News /by actualize

By Rob DeLorenzo, Cancer Survivor – I am alive because of The Affordable Care Act (ACA). Having affordable and decent medical insurance allowed me to receive treatment for cancer which saved my life. But now you, our elected representatives in Congress, are voting to repeal the ACA and allow insurers to reinstate the pre-existing conditions exclusion, essentially voting for me and millions of others to lose […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/07/Rob-survivor-stories-1200px.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-07-11 16:48:502017-07-11 16:48:50Open Letter to Congress: I Am Alive Because of the ACA (Guest Post)

Kirby Lewis: My NCCS CPAT Symposium and Hill Day Experience

July 6, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS News /by actualize

Through my association with Living Beyond Breast Cancer, I was invited to attend a workshop Symposium with the National Coalition for Cancer Survivorship. The CPAT Symposium was held just steps away from Capitol Hill at the Washington Court Hotel. It was a great, incredibly informative, and intensive 2-day training session. CPAT members hailed from all over the country, with all types of cancer. In total, approximately 65 people […]

Read more
https://canceradvocacy.org/wp-content/uploads/Kirby-Lewis-Capitol.jpg 515 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-07-06 17:10:212020-12-01 11:09:36Kirby Lewis: My NCCS CPAT Symposium and Hill Day Experience

NCCS CPAT Member Jen Campisano’s Powerful Op-Ed Highlights Senate’s Secretive Health Care Repeal Process

June 26, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS News /by actualize

I have written before about being misdiagnosed with metastatic breast cancer, about the nearly five years I spent wondering whether I’d get to see my little boy grow up. Last year, my diagnosis was changed to early-stage breast cancer and an autoimmune disease that mimics cancer on scans. I appear to be in remission from both. I don’t know why I got a get-out-of-jail-free card. I’m not sure why I survived when so many of my friends will not. […]

Read more
https://canceradvocacy.org/wp-content/uploads/Health-Care-Repeal-Process.jpg 515 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-06-26 15:29:022020-12-01 11:12:18NCCS CPAT Member Jen Campisano’s Powerful Op-Ed Highlights Senate’s Secretive Health Care Repeal Process

Mommy, Where’s Your Hair? (And Other Questions I Faced as a Parent with Cancer)

February 16, 2017/in Cancer Policy Blog Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

It’s one thing to have cancer, and quite another to have children witness it. At age 37, I was diagnosed with Stage IV inflammatory breast cancer; I had a large tumor in my left breast, and the cancer had spread to lymph nodes and a rib. And I had a 14-month-old son and a 4-year-old daughter. Parenting with cancer is sadly not an uncommon phenomenon; […]

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/Laura-Holmes-Haddad-682px.jpg 682 1024 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-02-16 14:22:002020-12-01 11:24:14Mommy, Where’s Your Hair? (And Other Questions I Faced as a Parent with Cancer)

Ask Your Oncologist About Clinical Drug Trials

January 23, 2017/in Cancer Policy Blog Access to Care, Clinical Trials NCCS News /by actualize

If you had asked me in December 2012 if I would ever participate in a clinical drug trial, my answer would have been a resounding, “No.” The very word “trial” scared me off; I didn’t want to be a guinea pig, a test subject. I wanted proven medicine.

Read more
https://canceradvocacy.org/wp-content/uploads/2017/01/Laura-Holmes-Haddad-682px.jpg 682 1024 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-01-23 15:28:382020-12-01 11:25:51Ask Your Oncologist About Clinical Drug Trials

Research Priorities for the Growing Population of Childhood Cancer Survivors

December 13, 2016/in Cancer News, Cancer Policy Blog Quality Cancer Care, Survivorship Care NCCS News /by actualize

In the aftermath of this year’s historic Presidential election, one fact remains unchanged: cancer continues to be a devastating array of diseases that has touched or will touch the lives of virtually every American. As a 25-year survivor of childhood cancer, I want to insure that the health challenges faced by patients like me are emphasized as research priorities for the coming years are established.

Read more
https://canceradvocacy.org/wp-content/uploads/2015/08/Greg-Aune-e1438618859480.jpeg 600 600 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2016-12-13 14:44:132016-12-13 14:44:13Research Priorities for the Growing Population of Childhood Cancer Survivors

Guest Post: Mesothelioma Awareness and the Danger of Asbestos Exposure

November 1, 2016/in Cancer Policy Blog NCCS News /by actualize

Ten years ago, I was just another woman, wife, and mom-to-be. I was anxiously and happily awaiting the birth of my daughter when I began experiencing symptoms that seemed over the top for pregnancy. Just 3 ½ months after she was born, I found out the truth—that cancer had been growing inside my body for decades, and I had no idea.

Read more
https://canceradvocacy.org/wp-content/uploads/2016/11/HeatherVSJ.jpg 2048 1462 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2016-11-01 16:24:232016-11-01 16:24:23Guest Post: Mesothelioma Awareness and the Danger of Asbestos Exposure

Highlights from the 2016 CPAT Symposium and Hill Day

August 11, 2016/in Cancer Policy Blog, NCCS News Care Planning, Quality Cancer Care, Survivorship Care NCCS News /by actualize

In June, over 50 patient advocates gathered in Washington, D.C. to take part in the NCCS 2016 Cancer Policy & Advocacy Team (CPAT) Symposium and Hill Day. Days One and Two Attendees heard and participated in a number of informational presentations, including “Current Issues in Cancer Care: The Economics of the Cancer Care System,” “Communications […]

Read more
https://canceradvocacy.org/wp-content/uploads/2016/07/CPAT-Members-Capitol-PACT-Act.jpg 667 1000 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2016-08-11 17:23:152021-03-08 10:23:13Highlights from the 2016 CPAT Symposium and Hill Day

Guest Post: For the Love of a Friend

August 9, 2016/in Cancer News, Cancer Policy Blog Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

My dear friend Avery[1], a woman I’ve known since we were 10 years old (in 5th grade together) was diagnosed with inflammatory breast cancer (IBC) in 2006. Having observed my mother’s battle with breast cancer in the 1980s, I considered myself a veteran of the struggle. Times change. Diseases evolve. The intervening years—from the 80s […]

Read more
https://canceradvocacy.org/wp-content/uploads/Lisa-D.-T.-Rice-Patient-Navigator-1.jpg 515 1030 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2016-08-09 12:19:442020-12-01 11:44:37Guest Post: For the Love of a Friend
Page 2 of 7‹1234›»

Latest News

NCCS Founders at 1990 Assembly

The Birth of the Cancer Survivorship Movement and How It Transformed Cancer Care for Millions

March 25, 2021
Guest Post by Judith L. Pearson Best-Selling Author of From Shadows to Life: A Biography…
Read more
https://canceradvocacy.org/wp-content/uploads/2018/02/10-Founders-1990-NCCS-Assembly.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-03-25 10:36:202021-03-25 13:46:05The Birth of the Cancer Survivorship Movement and How It Transformed Cancer Care for Millions
HHS Humphrey bldg 1200

Biden Rescinds Trump Admin Proposal to Limit Medicare Part D Coverage of Drugs in “Six Protected Classes”

March 19, 2021
This week, the Biden administration rescinded a Trump administration-proposed plan…
Read more
https://canceradvocacy.org/wp-content/uploads/2017/10/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-03-19 13:36:192021-03-23 14:46:18Biden Rescinds Trump Admin Proposal to Limit Medicare Part D Coverage of Drugs in “Six Protected Classes”
CDC Headquarters

NCCS Recommends That States Allocate COVID-19 Vaccines to Cancer Care Providers

March 1, 2021
The National Coalition for Cancer Survivorship (NCCS) and the Cancer Leadership Council…
Read more
https://canceradvocacy.org/wp-content/uploads/CDC_Headquarters_PHIL_pubdomain_1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-03-01 15:49:432021-03-04 17:45:07NCCS Recommends That States Allocate COVID-19 Vaccines to Cancer Care Providers

Take Action

Stovall Award

The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Survivorship Champions
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • Ellen L. Stovall Award
      • Nominations
      • Honorees
      • Sponsors
      • Committees
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Cancer Policy Roundtable
      • Spring 2021 Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930  |  Silver Spring, MD 20910
877-NCCS-YES  |  info@canceradvocacy.org
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2021 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.

Scroll to top

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute