Tag Archive for: cancer care

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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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Radiation Oncology Care During COVID-19: How Are Cancer Patients Getting Life-Saving Radiation Treatment?

The National Coalition for Cancer Survivorship (NCCS) has been collecting questions from covid-19 patients and survivors on the…
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Health Care Roundup: NCCS COVID-19 Webinars & Podcast; Paid Leave for Vulnerable Patients; Resources for Finding Coverage; “Chemo Brain” Study; More

NCCS has been working diligently to bring you the most up-to-date and critical information for cancer survivors regarding the COVID-19 pandemic. Last week, we hosted a webinar with one of the nation’s leading oncology experts, Dr. Otis Brawley. In this webinar, he outlined how this public health crisis is impacting cancer patients and survivors and what they can do to stay safe. "This is a really difficult time. My recommendation to anyone who has cancer [...]
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COVID-19 and Cancer Panel Discussion: Managing Stress, Anxiety, and Grief During Uncertain Times

NCCS hosted a conversation this week about managing anxiety, stress, and grief with psychologist Dr. Imani Price and a panel of cancer survivors and advocates. Dr. Price shared tips on how to cope with stress during this unique time and included strategies such as connecting with friends and family virtually, taking time to get outside each day, getting sufficient sleep, and eating well. Randall Broad, Erin Cummings, Loretta Herring, and Sharon Rivera-Sanchez, all cancer survivors [...]
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COVID-19 and Cancer: A Conversation with Cancer Control Expert Otis Brawley, MD

NCCS has been collecting questions from patients and survivors on the coronavirus crisis and decided to address these questions…
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Health Care Roundup: Virtual Cancer Policy Roundtable; COVID-19 News; Coronavirus Resources for Survivors; More

NCCS Hosts First-Ever Virtual Cancer Policy Roundtable – Last week, NCCS hosted its spring Cancer Policy Roundtable event, which convened patient advocates, providers, health care experts, and government agencies to discuss pressing issues in cancer care policy. NCCS has been hosting roundtables for 20 years, but given the public health crisis we are currently facing, this was the first virtual roundtable event. We are proud to say that it was a success, [...]
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Health Care Roundup: ACA Anniversary Met with a Challenge; Coronavirus Coverage; and More

The Supreme Court agreed on Monday to hear a third major challenge to the Affordable Care Act (ACA). The court did not say when it would hear the case, but arguments are likely to begin this fall, with a decision in the spring or summer of 2021. Read Vox’s primer to learn about the entire case and what is expected to happen next. The ACA has been the law of the land for ten years now. NCCS celebrated this milestone with other patient advocacy [...]
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Health Care Roundup: “Surprise” Billing and ACA Updates; NCCS on Fear of Cancer Recurrence; Study on Long-Term Young Survivors; End-of-Life Care; More

How Should Patients Be Protected From “Surprise” Medical Bills? The Latest: Democratic and Republican House staffers met with Speaker Pelosi’s office to try to protect patients from getting large “surprise” medical bills. There was no breakthrough, according to The Hill. The Issue: Patients can receive extremely high medical bills during emergency situations when they are taken to an out-of-network hospital, or from out-of-network providers, even [...]
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Health Care Roundup: New Surprise Billing Proposal; When a Young Adult Has Cancer; Breakthrough Immune Cell Discovery; NCCS Project Webinar; More

NCCS joined with other patient groups in an amicus brief (a friend of the court brief) this week to challenge the administration’s October 2019 proclamation that would prevent immigrants from entering the U.S. if they cannot show they will be covered by approved health insurance within 30 days of entering the U.S. The proclamation would allow ACA-exempt, short-term limited duration insurance plans which, as we have reported, do not provide [...]
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Webinar Video – Redefining Functional Status: A Patient-Led Quality Measurement Effort

"What would health care measurement look like if it reflected what patients and caregivers say matters most to them?" Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure. [...]

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Link to: Cancer Policy and Advocacy Team (CPAT)

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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