Tag Archive for: Advocacy
Coronavirus and Cancer Resources for Survivors
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
NCCS Statement on ACA Lawsuit Ruling Issued by Fifth Circuit Court of Appeals
The National Coalition for Cancer Survivorship (NCCS) notes that the Fifth Circuit Court of Appeals issued its opinion in the case of Texas v. United States, a case challenging the Affordable Care Act (ACA). In a 2-1 opinion, the Fifth Circuit upheld the decision of the District Court for the Northern District of Texas that found the ACA individual mandate unconstitutional. However, the appellate court remanded the case to the District Court for additional [...]
Remembering Fitzhugh Mullan, MD
It is with profound sadness that we acknowledge the passing of Fitzhugh Mullan, MD, the co-founder and first president of the National Coalition of Cancer Survivorship, on November 30, 2019. As a young physician in 1975, Fitz was diagnosed with cancer at a time a cancer diagnosis was commonly a death sentence, often kept secret from friends, family, and coworkers. Always an activist for the rights of the disadvantaged, ten years after his own cancer experience, [...]
NCCS Presents 4th Annual Ellen L. Stovall Award to Dr. Harmar Brereton and Dana Dornsife for Their Innovation and Dedication to Cancer Survivors
Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 4th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care to Dr. Harmar Brereton and Dana Dornsife on November 13. Named for former NCCS CEO Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award highlights those who continue Ellen’s work of transforming cancer care to further incorporate [...]
How the Patient Perspective Improved My Cancer Research and Changed My Career Path
The first time I heard the words “you have cancer,” I was sitting in the doctor’s office with my best friend Katie. We were both 28 years old. Katie had a lump removed from her breast the Monday before Thanksgiving and I was home in New Jersey a few days before the holiday to hang out with her post surgery. We were supposed to go to DSW that Wednesday morning when she got a call that her doctor wanted to see her that day. I collapsed on the floor [...]
Health Care Roundup: Cancer Care Planning Bill Introduced; Drug Pricing Measures Advance; Rural Hospitals Struggling in States that Did Not Expand Medicaid; More
On July 23, the Cancer Care Planning and Communications Act (CCPCA), H.R. 3835, was reintroduced in the House of Representatives. The bill is sponsored by Rep. Mark DeSaulnier (D-CA) and Rep. Buddy Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus. The CCPCA is NCCS’ top legislative priority as it would increase access to comprehensive cancer care planning for millions of Medicare beneficiaries. If implemented in Medicare [...]
Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed
Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages [...]
NCCS Webinar Video: “The Outlook for Health Care in the New Congress”
Health care was the number one issue for a majority of voters in the 2018 midterm elections. With the House majority changing hands and a split Congress, in this webinar we discuss election implications on health care and what to expect in the new Congress. We also provide an overview of how you can connect with new and returning Members of Congress to help them better [...]
Remembering Jennifer Friar Groves
By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular [...]
Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More
CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific [...]
Health Care Roundup: DOJ Won’t Defend ACA Provisions in Court, Health Care’s Role in 2018 Midterms, and More
Administration Action Threatens Coverage for People with Pre-existing Conditions — In a court filing yesterday, the Department of Justice (DOJ) stated that it would not defend key provisions of the Affordable Care Act in a lawsuit brought by Texas and several other states. One provision is the individual mandate, which was repealed in the tax bill passed by Congress and signed into law last December. Also at issue in the case is coverage and [...]