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Advocate Spotlight July 2021 | Rachel Ferraris Nearly all cancer survivors can reflect on their cancer journey and recall one specific moment – the low point. To be able to reflect on that moment is, of course, the real gift. It means you are a survivor. Reaching the light of survivorship though is only done […]
As lifelong Chicagoan Kimberly Richardson trained for the 2013 Chicago Marathon, the unusual lethargy she felt drove her into her doctor’s office. Diagnosed with an ovarian cyst she was scheduled for a routine surgery to remove it. She woke from the surgery to a tap on her shoulder, “Kim, it’s cancer. We’ll talk through it […]
Guest Post by Judith L. Pearson Best-Selling Author of From Shadows to Life: A Biography of the Cancer Survivorship Movement “Survivorship has been my passion for three decades, so I might talk your ear off!” When Susie Leigh sent those words in an email to me in the summer of 2017, I had no idea […]
By Kim Bowles Founder Not Putting On a Shirt When I woke up from surgery and realized my surgeon had overridden my wishes, I was angry. I thought that because I had been clear with him, that I was safe. But as I began speaking with other women, I discovered that I was not alone […]
Expand Eligibility for Paid Leave to Include Cancer Survivors: We urge Congress to expand eligibility for the paid family and medical leave to include people with chronic conditions, like cancer, and working members of their households. Because of their history of cancer and cancer treatment, cancer patients are especially vulnerable to COVID-19. Cancer survivors may […]
The National Coalition for Cancer Survivorship (NCCS) is proud to announce 14 patient leaders selected to serve as Ambassadors for the 2020 Elevating Survivorship program. Elevate Ambassadors will receive support, mentorship, networking opportunities, and virtual training from NCCS to develop and execute a plan of action to improve survivorship care in their community — whether […]
This month, the National Coalition for Cancer Survivorship (NCCS) launched a project to identify and share cancer patients’ and survivors’ perspectives on telehealth in cancer care. Regulatory, societal and practice changes associated with the COVID-19 pandemic have led to an increased use of telehealth, including in various aspects of cancer care. In this rapidly changing […]
Dr. L. Imani Price is a licensed psychologist at Women’s InnerFitness and Wellness Center and serves as the Vice Chair of the Board of Directors at Breast Care for Washington, D.C. Dr. Price suggests this expert advice: Many survivors are experiencing stress, anxiety, and PTSD from the new expectations and restrictions resulting from […]
“What would health care measurement look like if it reflected what patients and caregivers say matters most to them?” Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure. […]
Supreme Court Will Not Consider ACA Lawsuit Until After 2020 Election – The Supreme Court announced on January 21 that it would not consider the ACA lawsuit on an expedited basis before the 2020 election. NCCS is disappointed in this decision but remains hopeful the Supreme Court will hear the case later this year. NCCS recently joined with other patient groups in an amicus brief to the Court asking them to fast-track consideration of whether […]
The Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care is a unique opportunity for patients and survivors to recognize pioneers who are transforming the cancer care system.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute