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Posts

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023/in Advocate Spotlight, NCCS News Access to Care, Clinical Trials, Disparities in Outcomes, Exercise and Rehabilitation, Financial Toxicity, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

NCCS Joins Cancer Leadership Council in Urging Congress to Include Priorities in Year-End Package

December 1, 2022/in Cancer News, Cancer Policy Blog, Congress, NCCS News, Policy Comments Access to Care, Clinical Trials, COVID-19, Health Equity, Payment Reform, Quality Cancer Care, Survivorship Care Issue Statements, NCCS News, Policy Comments /by NCCS Staff

NCCS joined with other member organizations of the Cancer Leadership Council (CLC) in a letter urging Congress to include several key provisions in an end-of-year legislative package. In the letter, NCCS and 14 other cancer organizations, representing cancer patients, health care professionals, researchers, and caregivers, stressed that action on these issues would enhance cancer patients’ […]

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https://canceradvocacy.org/wp-content/uploads/US-capitol-winter-snow.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-01 15:20:272022-12-01 16:42:52NCCS Joins Cancer Leadership Council in Urging Congress to Include Priorities in Year-End Package

Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

November 1, 2022/in Advocate Spotlight, NCCS News Care Planning, COVID-19, Palliative Care, Psychosocial Care, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Amanda Helms was enjoying a bubble bath while reading a book when she looked down and noticed a lump on the side of her breast in January of 2020. She had a bad feeling about it instantly, even though she had no family history or risk factors. She went to her family doctor who referred […]

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https://canceradvocacy.org/wp-content/uploads/Amanda-Helms-Advocate-Spotlight-webmc.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-11-01 13:57:522022-11-10 15:01:05Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

NCCS Joins Groups in Urging Reinstatement of Emergency Paid Sick and Family Leave in Supplemental COVID-19 Relief Package

February 4, 2022/in Cancer News, Cancer Policy Blog, NCCS News, Policy Comments, White House Access to Care, Care Planning, COVID-19, Quality Cancer Care, Survivorship Care Issue Statements, NCCS News, Policy Comments /by NCCS Staff

NCCS has advocated for the inclusion of paid family and medical leave in the Build Back Better Act and will continue to elevate this policy as a priority for cancer survivors and their families. Recently, NCCS joined with other patient and caregiver organizations to send a letter urging the Biden Administration to reinstate emergency paid […]

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https://canceradvocacy.org/wp-content/uploads/stock-winter-white-house.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-02-04 11:26:562022-02-10 11:37:26NCCS Joins Groups in Urging Reinstatement of Emergency Paid Sick and Family Leave in Supplemental COVID-19 Relief Package

NCCS Applauds Biden Administration’s Renewed Cancer Moonshot Initiative

February 3, 2022/in Cancer News, NCCS News Access to Care, Disparities in Outcomes, Health Care Coverage, Health Equity, Psychosocial Care, Quality Cancer Care, Survivorship Care Issue Statements, NCCS News /by NCCS Staff

The Biden-Harris Administration announced they are relaunching the Cancer Moonshot initiative. As Vice President, Biden launched Cancer Moonshot in 2016 with the goal of advancing progress against cancer. As announced yesterday, the revived initiative builds upon previous commitments and adds the new goals of reducing cancer deaths by 50% over 25 years and improving the […]

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https://canceradvocacy.org/wp-content/uploads/2016/09/Moonshot-Logo-Wide.png 600 1199 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-02-03 14:04:042022-02-03 14:04:04NCCS Applauds Biden Administration’s Renewed Cancer Moonshot Initiative

NCCS Advocate Spotlight: Rebecca Esparza

January 5, 2022/in NCCS News Access to Care, Doctor-Patient Communication, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Advocate Spotlight January 2022 | Rebecca Esparza In August of 2001, 30-year-old Rebecca Esparza noticed her clothes weren’t fitting the way they should. Although she was an avid fan of step aerobics and running, her stomach seemed to be consistently bloated. By September, Rebecca felt the need to make an appointment with her gynecologist, even […]

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https://canceradvocacy.org/wp-content/uploads/Rebecca-Esparza-advocate-spotlight.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-01-05 13:08:502022-01-05 13:08:50NCCS Advocate Spotlight: Rebecca Esparza

NCCS Advocate Spotlight: Stef Gayhart

November 3, 2021/in NCCS News Access to Care, Financial Toxicity, Health Care Coverage, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Advocate Spotlight November 2021 | Stef Gayhart Stef Gayhart was building a life for herself and her son, when she was blindsided in August 2019 by a rare disease diagnosis: Stage 3 tongue cancer. At the time, Stef was a healthy 37-year-old working as a critical care nurse. She fought for her independence, and then […]

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https://canceradvocacy.org/wp-content/uploads/Stef-Gayhart-advocate-spotlight.jpg 475 907 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-11-03 10:43:192021-11-03 10:43:19NCCS Advocate Spotlight: Stef Gayhart

Why Cancer Patients and Caregivers Need Paid Leave

October 14, 2021/in Cancer News, NCCS News Access to Care, Disparities in Outcomes, Financial Toxicity, Health Equity Issue Statements, NCCS News /by NCCS Staff

It is critical that cancer patients and their caregivers have access to paid time away from work when receiving treatment or caring for their loved one. Patients with serious health care needs and their caregivers suffer in multiple ways from a lack of paid leave. Patients’ treatment may suffer, and they may suffer economically. The […]

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https://canceradvocacy.org/wp-content/uploads/caregiver.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-10-14 15:28:532021-10-14 15:42:21Why Cancer Patients and Caregivers Need Paid Leave

NCCS Pushes for Inclusion of Critical Health Care Provisions in Reconciliation Package

October 13, 2021/in Congress, NCCS News, Policy Comments Access to Care, Affordable Care Act, Disparities in Outcomes, Health Care Coverage, Health Equity NCCS News, Policy Comments /by NCCS Staff

NCCS joined with other advocacy groups in sending letters to congressional leadership supporting the inclusion of several critical provisions in the reconciliation bill that Congress is currently negotiating. Specifically, NCCS expressed support for provisions that would permanently close the Medicaid coverage gap, make the enhanced advance premium tax credits (APTCs) included in the American Rescue […]

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https://canceradvocacy.org/wp-content/uploads/US-Capitol-Bldg.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-10-13 13:52:482021-10-14 14:16:53NCCS Pushes for Inclusion of Critical Health Care Provisions in Reconciliation Package

NCCS Comments on CMS-Proposed Benefit and Payment Parameters for 2022

July 29, 2021/in CMS, HHS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS News, Policy Comments /by NCCS Staff

NCCS submitted comments to the Departments of the Treasury and Health and Human Services and the Centers for Medicare and Medicaid Services (CMS) on the proposed Notice of Benefit and Payment Parameters (NBPP) for 2022, the annual rule governing core provisions of the Affordable Care Act (ACA), including the operation of the marketplaces, standards for […]

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https://canceradvocacy.org/wp-content/uploads/2017/10/HHS-Humphrey-bldg-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2021-07-29 09:50:372021-08-06 10:05:22NCCS Comments on CMS-Proposed Benefit and Payment Parameters for 2022
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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
Read more
https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy
Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
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      • Policy Advisors
    • Employment
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    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute