Coronavirus and Cancer Resources for Survivors
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
NCCS Joins 28 Patient and Consumer Groups Urging the Administration to Implement a Special Enrollment Period for Healthcare.gov
The Trump administration decided against opening a special enrollment period for Healthcare.gov, which would allow uninsured individuals to purchase plans outside of the open enrollment period. NCCS joined with 28 patient and consumer groups to urge the administration to implement a special enrollment period as the nation fights to protect its citizens from the COVID-19 virus. The Affordable Care Act does allow for people who have lost [...]
Health Care Roundup: COVID-19 Edition
New Resource Available: Frequently Asked Questions and Concerns from Cancer Survivors about COVID-19 — NCCS has heard from many survivors who feel uniquely vulnerable due to their history of cancer treatments. And we have heard from people currently in treatment, who are worried about delays in care and navigating [...]
NCCS Addresses COVID-19 & Cancer Survivorship
In these challenging times, we at NCCS continue to work for you, advocating for and supporting cancer survivors, caregivers, advocates, and providers. We have heard from many survivors who feel uniquely vulnerable due to their history of cancer treatments. And we have heard from people currently in treatment, who are worried about delays in care and navigating a stressed health care system. [...]
Health Care Roundup: ACA Anniversary Met with a Challenge; Coronavirus Coverage; and More
The Supreme Court agreed on Monday to hear a third major challenge to the Affordable Care Act (ACA). The court did not say when it would hear the case, but arguments are likely to begin this fall, with a decision in the spring or summer of 2021. Read Vox’s primer to learn about the entire case and what is expected to happen next. The ACA has been the law of the land for ten years now. NCCS celebrated this milestone with other patient advocacy [...]
Health Care Roundup: “Surprise” Billing and ACA Updates; NCCS on Fear of Cancer Recurrence; Study on Long-Term Young Survivors; End-of-Life Care; More
How Should Patients Be Protected From “Surprise” Medical Bills? The Latest: Democratic and Republican House staffers met with Speaker Pelosi’s office to try to protect patients from getting large “surprise” medical bills. There was no breakthrough, according to The Hill. The Issue: Patients can receive extremely high medical bills during emergency situations when they are taken to an out-of-network hospital, or from out-of-network providers, even [...]
Health Care Roundup: New Surprise Billing Proposal; When a Young Adult Has Cancer; Breakthrough Immune Cell Discovery; NCCS Project Webinar; More
NCCS joined with other patient groups in an amicus brief (a friend of the court brief) this week to challenge the administration’s October 2019 proclamation that would prevent immigrants from entering the U.S. if they cannot show they will be covered by approved health insurance within 30 days of entering the U.S. The proclamation would allow ACA-exempt, short-term limited duration insurance plans which, as we have reported, do not provide [...]
Webinar Video – Redefining Functional Status: A Patient-Led Quality Measurement Effort
"What would health care measurement look like if it reflected what patients and caregivers say matters most to them?" Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure. [...]
NCCS Expresses Opposition to CMS Healthy Adult Opportunity Guidance Permitting Medicaid Block Grants
The Centers for Medicare & Medicaid Services (CMS) earlier today announced a guidance to state Medicaid programs that encourages states to create a block grant program for the portion of their Medicaid program expanded under the Affordable Care Act. The National Coalition for Cancer Survivorship (NCCS) opposes the CMS action to permit Medicaid block grants because of their potential negative impact on people with cancer. NCCS issued the statement below [...]
Health Care Roundup: SCOTUS Prolongs ACA Lawsuit Review; Coping with Isolation; Medicaid Block Grants; The Nursing Shortage; More
Supreme Court Will Not Consider ACA Lawsuit Until After 2020 Election – The Supreme Court announced on January 21 that it would not consider the ACA lawsuit on an expedited basis before the 2020 election. NCCS is disappointed in this decision but remains hopeful the Supreme Court will hear the case later this year. NCCS recently joined with other patient groups in an amicus brief to the Court asking them to fast-track consideration of whether [...]