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NCCS - National Coalition for Cancer Survivorship
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Posts

Webinar Video – Redefining Functional Status: A Patient-Led Quality Measurement Effort

February 7, 2020/in Cancer News, Cancer Policy Blog, NCCS News Quality Cancer Care, Quality Measurement NCCS News /by actualize

“What would health care measurement look like if it reflected what patients and caregivers say matters most to them?” Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure. […]

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ACA Update | January 26, 2017: Watch Our ACA Webinar

January 26, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage, Quality Cancer Care, Survivorship Care NCCS News /by actualize

President Donald Trump and the Republican leadership in Congress will soon be making good on their campaign promise to repeal the Affordable Care Act (ACA). While replacement plans have been proposed, there is no consensus on an alternative.

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So Many Reasons to Save the Affordable Care Act

January 5, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Payment Reform, Quality Cancer Care, Survivorship Care NCCS News /by actualize

For six years now, the Affordable Care Act (ACA) continues to successfully improve health care in America. It provided coverage to 20 million people, allowed young adults to stay on their parents’ insurance until 26, emphasized preventative care, and sought to address inequalities in care, especially for women. For cancer patients and survivors, the impact […]

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Guest Post: I Must Advocate for Improved Quality of Life for Cancer Survivors

December 2, 2016/in Cancer Policy Blog Care Planning, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

Guest Post by Virgie Townsend Advocate, Caregiver, and NCCS CPAT MemberI am the mother and caregiver for my son who was diagnosed with biphenotypic leukemia in March of 2011. Being there for my son gave me a first hand look at what cancer survivors go through. I think most of us have been touched by cancer […]

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Webinar Video: “Cancer Moonshot – Symptom Management and Funding”

November 3, 2016/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Clinical Trials, Quality Cancer Care, Survivorship Care NCCS News /by actualize

This week, NCCS hosted the latest CPAT webinar, Cancer Moonshot: Symptom Management and Funding. The featured presenters were Deborah K. Mayer, PhD, RN, AOCN, FAAN; and MK Holohan, JD. Dr. Mayer is the Director of Cancer Survivorship at the UNC Lineberger Cancer Center and a member of the Cancer Moonshot Blue Ribbon Panel. Ms. Holohan […]

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NCCS Presents the Inaugural Ellen Stovall Award to Douglas W. Blayney, MD, FACP (Video)

October 18, 2016/in Cancer News, Cancer Policy Blog, NCCS News Quality Cancer Care, Survivorship Care NCCS News /by actualize

At the National Coalition for Cancer Survivorship’s (NCCS) 30th Anniversary Reception on October 13, 2016, NCCS presented the inaugural Ellen Stovall Award for Leadership in Patient-Centered Care. The award was created to honor former NCCS CEO Ellen Stovall, who led the organization for more than twenty years and passed away in January 2016 from complications […]

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Watch the Complete Video Recording of the Ellen Stovall Tribute Service

March 10, 2016/in Cancer News, Cancer Policy Blog, NCCS News Care Planning, Quality Cancer Care NCCS News /by actualize

On February 24, 2016, a tribute to celebrate the life and legacy of Ellen Stovall was held at the Carnegie Institution for Science in Washington, D.C. Family, friends, and colleagues shared their touching memories about a woman who was dedicated to her family, a three-time cancer survivor, and a tireless advocate on behalf of all […]

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20 Years Later Series Wrap-Up: Julia Rowland Shares a History of the Imperatives and the Current Challenges in Survivorship

December 28, 2015/in Cancer News, Cancer Policy Blog Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The Twelfth Principle states, “Cancer survivors, health care providers and other key constituency groups must work together to increase public awareness; educate consumers, professionals, and […]

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Guest Video: Meghan Gutierrez of LRF Discusses Progress in Lymphoma Treatment and Advocacy

December 27, 2015/in Cancer News, Cancer Policy Blog NCCS News /by actualize

This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The Twelfth Principle states, “Cancer survivors, health care providers and other key constituency groups must work together to increase public awareness; educate consumers, professionals, and […]

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Dr. Julia Rowland Discusses the Importance of Psychosocial Care: Engagement and Dialogue

November 22, 2015/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Quality Measurement, Shared Decision-Making NCCS News /by actualize

This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability(Imperatives). The eleventh principle states that “Psychosocial research is integral to comprehensive cancer care and, as such, psychosocial outcome measures should be included in all future clinical […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State-Based Cancer Advocacy
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    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
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      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
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    • Cancer Policy and Advocacy Team (CPAT) Virtual Symposium 2022
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute