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NCCS - National Coalition for Cancer Survivorship
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Posts

Webinar Video – Redefining Functional Status: A Patient-Led Quality Measurement Effort

February 7, 2020/in Cancer News, Cancer Policy Blog, NCCS News Quality Cancer Care, Quality Measurement NCCS News /by actualize

“What would health care measurement look like if it reflected what patients and caregivers say matters most to them?” Quality measurement in cancer care is primarily focused on ensuring patients get the right tests and treatments, not whether those treatments help cancer survivors live well during and after cancer. NCCS embarked on an initiative to define quality measures by engaging survivors themselves to identify what’s important to measure. […]

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https://canceradvocacy.org/wp-content/uploads/2020/02/RFS-Webinar-feat-img.jpg 629 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2020-02-07 14:11:582020-07-06 09:54:22Webinar Video – Redefining Functional Status: A Patient-Led Quality Measurement Effort

Seeing the Bigger Picture of Survival Through Patient Advocacy

November 15, 2017/in Cancer Policy Blog Clinical Guidelines, Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News /by actualize

As patient advocates (as in most other things in life), it seems the more we learn, the more see what we don’t know. Whether we’re involved in promoting a patient-centered approach to research, direct care, survivorship, policy change or education, there’s a daily twist and update for us to wrap our brains around. And no matter which arena we find ourselves in, we are always looking for the endpoint: How far have we come in cancer care, and how does […]

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https://canceradvocacy.org/wp-content/uploads/2017/11/Betsy-Glosik-blog-fb.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-11-15 15:32:052017-11-15 15:32:05Seeing the Bigger Picture of Survival Through Patient Advocacy

Dr. Julia Rowland Discusses the Importance of Psychosocial Care: Engagement and Dialogue

November 22, 2015/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Quality Measurement, Shared Decision-Making NCCS News /by actualize

This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability(Imperatives). The eleventh principle states that “Psychosocial research is integral to comprehensive cancer care and, as such, psychosocial outcome measures should be included in all future clinical […]

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https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-11-22 15:49:192015-11-22 15:49:19Dr. Julia Rowland Discusses the Importance of Psychosocial Care: Engagement and Dialogue

Video Post: Dr. Claire Snyder Discusses How Patient-Reported Outcomes Can Improve Cancer Care

September 2, 2015/in Cancer News, Cancer Policy Blog Care Planning, Quality Cancer Care, Quality Measurement NCCS News /by actualize

In March 2015, Dr. Claire Snyder participated in a panel discussion at the Cancer Policy Roundtable hosted by the National Coalition for Cancer Survivorship. The panel featured perspectives on how cancer patients and oncology professionals can work together to improve care planning and patient outcomes. Following the panel, Dr. Snyder sat down with us to […]

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https://canceradvocacy.org/wp-content/uploads/2015/09/Snyder.jpg 321 600 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-09-02 10:32:152020-11-24 11:13:32Video Post: Dr. Claire Snyder Discusses How Patient-Reported Outcomes Can Improve Cancer Care

Guest Post by Dr. Claire Snyder: Driving Quality Cancer Care with Patient-Reported Outcomes

March 24, 2015/in Cancer News, Cancer Policy Blog Quality Cancer Care, Quality Measurement, Survivorship Care NCCS News /by actualize

Twenty years ago, the National Coalition for Cancer Survivorship’s Imperatives for Quality Cancer Care advocated that “standards of cancer care should be driven by the quality of care.” By giving voice to the patient perspective, patient-reported outcomes (PROs) play a key role in assessing and improving the quality of care and, therefore, in setting these […]

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https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-03-24 12:40:562020-10-21 12:08:44Guest Post by Dr. Claire Snyder: Driving Quality Cancer Care with Patient-Reported Outcomes

Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy
Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State-Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
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      • Fall 2022 CPR
      • Spring 2022 CPR
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    • Cancer Policy and Advocacy Team (CPAT) Virtual Symposium 2022
    • 2022 State of Survivorship Survey Results
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute