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U.S. House Reps. DeSaulnier and Carter Introduce Bipartisan Cancer Care Planning and Communications Act (CCPCA)

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Today, Representatives Mark DeSaulnier (D-CA) and Earl L. “Buddy” Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus, introduced the Cancer Care Planning and Communications Act (H.R. 4414), which would create a Medicare service for cancer care planning, a key priority of the National Coalition for Cancer Survivorship. The legislation would improve doctor-patient communication by […]

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NCCS CEO Shelley Fuld Nasso Discusses Cancer Survivorship Issues On “Great.com Talks With…” Podcast

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NCCS CEO Shelley Fuld Nasso recently discussed how we can improve cancer survivors’ lives with Emil Ekvardt, founder of Great.com, on an episode of their “Great.com Talks With…” podcast. Cancer survivors often face long term debilitating effects from cancer treatment such as: fatigue, cognitive issues, depression, and anxiety. Patients need as much help and support […]

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NCCS Advocate Spotlight: Rachel Ferraris

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Advocate Spotlight July 2021 | Rachel Ferraris Nearly all cancer survivors can reflect on their cancer journey and recall one specific moment – the low point. To be able to reflect on that moment is, of course, the real gift. It means you are a survivor. Reaching the light of survivorship though is only done […]

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NCCS Elevate Ambassador Kimberly Richardson Drives Award-Winning SASEP Initiative

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As lifelong Chicagoan Kimberly Richardson trained for the 2013 Chicago Marathon, the unusual lethargy she felt drove her into her doctor’s office. Diagnosed with an ovarian cyst she was scheduled for a routine surgery to remove it. She woke from the surgery to a tap on her shoulder, “Kim, it’s cancer. We’ll talk through it […]

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Survivorship Champions: A New NCCS Initiative for Clinicians and Researchers

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How one survivor’s journey led to her realization of what survivorship care is lacking and the importance of advocating for yourself during survivorship. Note: This post originally appeared in the Spring 2021 issue of HEAL, a survivorship magazine from CURE Today. Shelley Fuld Nasso, MPP By NCCS CEO Shelley Fuld Nasso, MPP Sarah Cohn knows […]

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The Birth of the Cancer Survivorship Movement and How It Transformed Cancer Care for Millions

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Guest Post by Judith L. Pearson Best-Selling Author of From Shadows to Life: A Biography of the Cancer Survivorship Movement “Survivorship has been my passion for three decades, so I might talk your ear off!” When Susie Leigh sent those words in an email to me in the summer of 2017, I had no idea […]

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NCCS Recommends That States Allocate COVID-19 Vaccines to Cancer Care Providers

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The National Coalition for Cancer Survivorship (NCCS) and the Cancer Leadership Council (CLC) sent a letter to the CDC’s Advisory Committee on Immunization Practices (ACIP) to recommend actions to accelerate the vaccination of cancer survivors, who are at risk of poor outcomes from COVID-19. Cancer patients have been confronted by confusing allocation rules and hard-to-navigate […]

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National Quality Forum Names NCCS CEO Shelley Fuld Nasso to 2021 Leadership Consortium Roster

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NOTE: This press release was originally published on the National Quality Forum (NQF) website » FOR IMMEDIATE RELEASE FEB 24, 2021 CONTACT: Proof Strategies 202-478-9326, press@qualityforum.org Washington, DC – Today, NQF announced its 2021 Leadership Consortium roster, welcoming leading healthcare experts from 31 diverse Member organizations to shape 2022 priorities for the quality ecosystem. The […]

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NCCS and Other Cancer Groups Urge HHS to Keep Six Protected Classes in Medicare Part D Drug Plans

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The National Coalition for Cancer Survivorship (NCCS) joined with the Cancer Leadership Council (CLC) in urging Health and Human Services Secretary-Designate Xavier Becerra to protect Medicare beneficiaries’ access to Part D drugs in six protected classes, which include certain cancer treatments. In January, the Centers for Medicare and Medicaid Services (CMS) issued a request for […]

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NCCS Urges CDC Committee to Include Cancer Survivors in High-Risk Category for COVID-19 Vaccine Distribution

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In a letter to the CDC’s Advisory Committee on Immunization Practices (ACIP), NCCS urged the committee to review the data related to the risks that COVID-19 poses to cancer survivors as they monitor and update the immunization schedule and evaluate states’ flexible use of the schedule. There are serious risks to cancer survivors from infection […]

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