Tag Archive for: patient first

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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
2021 Stovall Awardees

NCCS Presents 6th Annual Ellen L. Stovall Award to Deborah K. Mayer, PhD, RN, and Kimberly D. Richardson for Their Innovation and Dedication to Cancer Survivors

(Silver Spring, MD) – The National Coalition for Cancer Survivorship (NCCS) presented the 6th annual Ellen L. Stovall Awards for…
2019 Stovall Award Honorees Brereton and Dornsife and presenters

NCCS Presents 4th Annual Ellen L. Stovall Award to Dr. Harmar Brereton and Dana Dornsife for Their Innovation and Dedication to Cancer Survivors

Washington, D.C. – The National Coalition for Cancer Survivorship (NCCS) presented the 4th annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care to Dr. Harmar Brereton and Dana Dornsife on November 13. Named for former NCCS CEO Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award highlights those who continue Ellen’s work of transforming cancer care to further incorporate [...]
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NCCS Announces 2019 Stovall Award Honorees, Dr. Harmar Brereton and Dana Dornsife

(NCCS) is pleased to announce that the 2019 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Harmar Brereton, MD, founder of the Northeast Regional Cancer Institute, and Dana Dornsife, founder and board chair of the Lazarex Cancer Foundation. Now in its fourth year, the cancer community’s embrace of the award named after longtime NCCS CEO Ellen Stovall continues to be a testament to her lasting [...]
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Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages [...]
Remembering Richard Payne

Remembering Richard Payne, MD

With great sadness, we mourn the passing of former NCCS Board Chair Richard Payne, MD, on January 4. Dr. Payne was a member of the NCCS Board of Directors from 2005 to 2012; he served as Board Chair from 2010 to 2011. Thoughtful, deliberative, and soft spoken, Dr. Payne was a valued and collaborative leader of NCCS. A lover of books and golf, he was always attentive and generous to his extended family, both personal and professional. [...]
Jennifer Groves SM

Remembering Jennifer Friar Groves

By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular [...]
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Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More

CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific [...]
2018 Stovall Award presentation

NCCS Presents 3rd Annual Ellen L. Stovall Award to Gay Crawford and Dr. Norman Coleman, Their 40+ Year Careers Focused on Improving Patient-Centered Cancer Care

NCCS hosted the 3rd annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care reception. Named for former NCCS CEO, Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award seeks to highlight those who continue Ellen’s work of transforming cancer care to further incorporate patients’ goals, needs, and values. This year’s honorees are Gay Crawford, founding director of Cancer CAREpoint, and Dr. Norman Coleman, senior investigator at the National Cancer Institute. [...]
NCCS News Cancer Policy Matters

NCCS Awarded American Institutes for Research Grant to Develop New Outcome Measure: “Return to Functional Status”

UPDATE FEBRUARY 2020: Read a summary of this research project at www.canceradvocacy.org/RFS. The National Coalition for Cancer Survivorship…
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WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More

What Caught Our Eye (WCOE) is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. — “Why Some Americans Are Risking It and Skipping Health Insurance” — In tiny Marion, North Carolina, the Buchanans decided that $1,800 a month was too much to pay for health insurance, and are going without it for the first time in their lives. [...]

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Link to: Survivorship Champions

Become a Survivorship Champion

Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Link to: Survivor Stories

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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