Bethany Ross: Advocating for Quality Cancer Care Through Storytelling
Advocate Spotlight July 2022 - Bethany Ross Bethany Ross is a four-year neuroendocrine cancer survivor, or “cancer badass,” as she prefers to be called. She attended NCCS’s in-person Cancer Policy and Advocacy Team (CPAT) Symposium for the first time in June as a CPAT steering committee member. “It was amazing ...
NCCS Reacts to Dobbs v. Jackson Women’s Health Organization Decision and Potential Impact on Access to Quality Cancer Care
Last week, the US Supreme Court issued a ruling that overturned Roe v. Wade, thus eliminating the constitutional right to abortion. In response to the Dobbs v. Jackson Women’s Health Organization decision, various patient advocacy organizations, cancer centers, and professional societies issued statements expressing concerns for the future of cancer ...
Wenora Johnson: The Art of Caregiving: Connection and Kindness
Advocate Spotlight June 2022 - Wenora Johnson “One of the most important lessons I’ve learned as a caregiver is that the smallest act of kindness means so much to a person who’s not able to do for themselves,” says Wenora Johnson, who has cared for her brother throughout his diagnosis ...
Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting
Dr. Crystal Labbato joined NCCS to deliver a presentation about providing an effective model of cancer survivorship care in a community setting. Dr. Labbato is the Survivorship Program Coordinator for Baptist Health Louisville and LaGrange hospitals in Kentucky. Nearly 17 years since the Institute of Medicine released their landmark report, ...
Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers
Dr. Michelle Mollica, Senior Advisor at the National Cancer Institute's (NCI) Office of Cancer Survivorship, joined NCCS to discuss NCI’s recent efforts focused on understanding and addressing the survivorship needs for the growing population of survivors who are living with advanced and metastatic cancers. Bethany Ross, CPAT Steering Committee Member ...
Erin McGee Ferrell: The Art of Cancer Advocacy
Advocate Spotlight May 2022 - Erin McGee Ferrell Erin McGee Ferrell’s cancer was discovered during a traditional ceremony in a small Ecuadorian town along the Amazon River. She’d been traveling as an independent artist for five weeks, researching natural paints and pigments from Amazonian plants and minerals. Although she felt ...
Brad Power: The Power of Innovation in Cancer Advocacy
Advocate Spotlight April 2022 - Brad Power Brad Power was a process innovation researcher and consultant with more than 35 years of experience, as well as an author of more than 75 articles for the Harvard Business Review, when he was diagnosed with lymphoma in 2018. After successfully completing a standard ...
Jean Di Carlo-Wagner: Don’t be Embarrassed to Death
In March of 2003, Jean Di Carlo-Wagner listened to a public service announcement by Katie Couric, in which she discussed the symptoms of colon cancer. It was then that Jean knew she had cancer. After two years of bowel changes, fatigue, reflux, pain in her gut, weight changes, night sweats, ...
U.S. House Reps. DeSaulnier and Carter Introduce Bipartisan Cancer Care Planning and Communications Act (CCPCA)
Today, Representatives Mark DeSaulnier (D-CA) and Earl L. “Buddy” Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus, introduced the Cancer Care Planning and Communications Act (H.R. 4414), which would create a Medicare service for cancer care planning, a key priority of the National Coalition for Cancer Survivorship. The legislation ...
NCCS Advocate Spotlight: Rachel Ferraris
Advocate Spotlight July 2021 | Rachel Ferraris Nearly all cancer survivors can reflect on their cancer journey and recall one specific moment – the low point. To be able to reflect on that moment is, of course, the real gift. It means you are a survivor. Reaching the light of ...
