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Tag Archive for: care planning

Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy

September 13, 2023/in Advocate Spotlight, NCCS News Access to Care, Care Planning, Disparities in Outcomes, Health Equity, Psychosocial Care, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight: Brett Wilson Brett Wilson’s cancer experience started when she was just two years old. Her mother was concerned because she was sleeping a lot, so she took her to the doctor. Diagnosed with Acute Lymphoblastic Leukemia (ALL), her family was told she had little chance of survival. Her father remembered learning she wasn’t […]

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Championing Survivorship: Nurse Practitioner Sanna Ali’s Dedication to a Career in Cancer Survivorship

July 12, 2023/in Advocate Spotlight, Cancer News, NCCS News Care Coordination, Care Planning, Doctor-Patient Communication, Quality Cancer Care, Shared Decision-Making Advocate Spotlight, NCCS News

Sanna Ali is a dedicated Nurse Practitioner currently pursuing her PhD in Nursing at The George Washington University. Sanna started her nursing career as a registered nurse in an inpatient pediatric hematology oncology unit. She shares that working with childhood cancer patients had one of the most profound impacts on her life. “The experience was […]

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https://canceradvocacy.org/wp-content/uploads/Sanna-Ali-Advocate-Spotlight-Web-feat.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-07-12 13:28:512023-07-12 13:30:46Championing Survivorship: Nurse Practitioner Sanna Ali’s Dedication to a Career in Cancer Survivorship

Arsenic and Advocacy: Sarah Cohn’s Experience with Rare Leukemia Spurs Action

June 14, 2023/in Advocate Spotlight, NCCS News Doctor-Patient Communication, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight

Diagnosed with a rare form of leukemia called acute promyelocytic leukemia (APL), Sarah Cohn’s cancer diagnosis at the age of 30 took her by surprise. Sarah had just started a new job when symptoms appeared. “For survivors, it seems like there is always one thing that happens that leads directly to their diagnosis, and then […]

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https://canceradvocacy.org/wp-content/uploads/Sarah-Cohn-Advocate-Spotlight-Blog-Banner.png 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-06-14 13:41:082023-06-14 18:24:18Arsenic and Advocacy: Sarah Cohn’s Experience with Rare Leukemia Spurs Action

Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

May 12, 2023/in NCCS News Care Coordination, Care Planning, Clinical Guidelines, Doctor-Patient Communication, Exercise and Rehabilitation, Integrative Oncology, Palliative Care, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

The National Coalition for Cancer Survivorship (NCCS) hosted a Survivorship Champions webinar about survivorship care implementation, “Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow.” In this webinar, Dr. Stacy Wentworth and Jill Hyson, MSN, NP-C discuss survivorship care as a critical component of a patient’s cancer journey. The presenters […]

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https://canceradvocacy.org/wp-content/uploads/Atrium-Health-Wake-Forest-Baptist-update-POST.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-05-12 12:42:192023-08-21 14:52:16Webinar – Survivorship at Atrium Health Wake Forest Baptist Comprehensive Cancer Center: Creating a Practical Workflow

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Doctor-Patient Communication, Payment Reform, Quality Cancer Care NCCS News

Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today to introduce the Comprehensive Cancer Survivorship Act (CCSA), new comprehensive survivorship legislation that will directly benefit cancer survivors. She was joined by Senators Ben Cardin (D-MD) and Amy Klobuchar (D-MN), who will lead the legislation in […]

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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462023-06-23 10:26:57NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

November 1, 2022/in Advocate Spotlight, NCCS News Care Planning, COVID-19, Palliative Care, Psychosocial Care, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Amanda Helms was enjoying a bubble bath while reading a book when she looked down and noticed a lump on the side of her breast in January of 2020. She had a bad feeling about it instantly, even though she had no family history or risk factors. She went to her family doctor who referred […]

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https://canceradvocacy.org/wp-content/uploads/Amanda-Helms-Advocate-Spotlight-webmc.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-11-01 13:57:522022-11-10 15:01:05Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

Webinar – Exercise Is Medicine in Oncology: Implementation Based on Solid Evidence

October 13, 2022/in NCCS News Exercise and Rehabilitation, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News

NCCS hosted a webinar featuring Kathryn Schmitz, PhD, MPH, a leading researcher in exercise oncology at the University of Pittsburgh Medical Center. Dr. Schmitz’s research focuses on people living with and beyond cancer and investigates the role exercise in improving physiologic and psychosocial outcomes including symptoms, treatment tolerance, and other chronic diseases. Dr. Schmitz is […]

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https://canceradvocacy.org/wp-content/uploads/SChamps-Webinar-2022-10-12-Exercise-is-Medicine-featpost.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-10-13 16:37:192023-08-21 14:53:10Webinar – Exercise Is Medicine in Oncology: Implementation Based on Solid Evidence

Kara Kenan: Helping Others is the Greatest Reward of Advocacy

August 3, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

“Nobody wins afraid of losing” rings true for Kara Kenan, a breast cancer survivor. It’s her favorite line from Chris Stapleton’s song, “Starting Over,” which, for her, is symbolic of overcoming the fear of a cancer diagnosis and coming out on the other side. Kara recognizes that winning looks different for every survivor. While it […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Kara-Kenan.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-08-03 12:20:482022-08-03 12:20:48Kara Kenan: Helping Others is the Greatest Reward of Advocacy

Webinar – Care and Career Support: From Health Systems to Employers

August 3, 2022/in NCCS News Quality Cancer Care, Shared Decision-Making NCCS News

NCCS hosted a webinar about the unique demands of caregiving in cancer and strategies that employers and health systems might engage to support caregivers. Webinar Speakers Margaret L. Longacre, PhD, Associate Professor and Chair of Public Health, Arcadia University Michele Cygan, Director of Compensation and Benefits, Arcadia University Christina Sisti, DPS, MPH, MS, NCCS CPAT […]

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https://canceradvocacy.org/wp-content/uploads/Care-and-Career-Support-webinar-post-1200px.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-08-03 10:24:462022-08-03 10:24:46Webinar – Care and Career Support: From Health Systems to Employers

Bethany Ross: Advocating for Quality Cancer Care Through Storytelling

July 7, 2022/in Advocate Spotlight, NCCS News Care Coordination, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News

Advocate Spotlight July 2022 – Bethany Ross Bethany Ross is a four-year neuroendocrine cancer survivor, or “cancer badass,” as she prefers to be called. She attended NCCS’s in-person Cancer Policy and Advocacy Team (CPAT) Symposium for the first time in June as a CPAT steering committee member. “It was amazing. I’ve been talking to these […]

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Latest News

Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy

September 13, 2023
Advocate Spotlight: Brett Wilson Brett Wilson's cancer experience started when she was just two years old. Her mother was concerned…
Read more
https://canceradvocacy.org/wp-content/uploads/Brett-Wilson-Advocate-Spotlight-Blog-Banner.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-09-13 13:55:422023-09-13 14:29:44Brett Wilson – Navigating Childhood Cancer and Finding Purpose in Advocacy

Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3

September 7, 2023
The National Coalition for Cancer Survivorship (NCCS) conducts an annual State of Survivorship Survey, in partnership with Edge…
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https://canceradvocacy.org/wp-content/uploads/Survey-2023-briefing-mc-1200px-2-1.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-09-07 11:00:202023-09-07 11:00:20Registration Open: 2023 State of Survivorship Survey Results Briefing | October 3
We did it! DIEP Flap Codes Saved

CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery

August 22, 2023
Yesterday, the Centers for Medicare and Medicaid Services (CMS) announced that it will retain procedure codes for breast cancer reconstruction,…
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https://canceradvocacy.org/wp-content/uploads/DIEP-Flap-Reconstruction-CMS-Codes.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-08-22 14:26:202023-08-22 14:26:20CMS Announces It Will Retain Breast Reconstruction Codes, A Reversal That Protects Patient Access to DIEP Flap Surgery

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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Harmar Brereton, MD

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Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

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