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The COVID-19 public health emergency (PHE), which has been in effect since early 2020, will end on May 11, 2023. The federal government may continue to distribute free COVID-19 tests from its supply of purchased COVID-19 treatments, tests, and vaccines through the United States Postal Service, states, and other community partners. While this supply remains, […]
This week, NCCS joined other patient advocacy organizations and medical professional societies in submitting a letter to the CEOs of major insurance companies, expressing concerns with recent insurance coverage policy changes that have limited access to DIEP flap breast reconstruction surgery. Specifically, the letter asks these insurance companies to engage with individuals who have received […]
WASHINGTON, DC, April 3, 2023 – Advocates for individuals in need of breast reconstruction surgery delivered a letter and petition to the Centers for Medicare and Medicaid Services (CMS) today, urging them to reinstate a procedure code that is essential for access to deep inferior epigastric perforator (DIEP) flap breast reconstruction surgery. More than 4,600 […]
The National Coalition for Cancer Survivorship recently joined the Community Breast Reconstruction Alliance (CBRA), a group of patient advocacy organizations and health care providers who are working together to advocate for access to deep inferior epigastric perforator (DIEP) flap breast reconstruction surgery. Patient education regarding breast reconstruction includes a review of options, including breast reconstruction […]
Advocate Spotlight September 2021 | Cora Fahy As a physical therapist assistant specializing in lymphedema and breast cancer rehabilitation, Cora Fahy’s diagnosis of Stage 2A ER/PR+ Her2- IDC Multifocal Multicentric breast cancer in 2015 was something she could handle. She understood the pathology, the treatment, and the prognosis from working with other women going through […]
Advocate Spotlight August 2021 | Dr. Crystal Champion As a physical therapist, certified lymphedema therapist, principal of her own oncology rehabilitation practice – Eminence Physical Therapy, founder of the non-profit Champions Can! Foundation for Cancer Wellness Inc, and author of the book The Elements of Cancer Survivorship: A Guide to Navigating the Journey, it is […]
House Members Solicit Public Input on “Cures 2.0” Bill – Representatives Fred Upton (R-MI) and Diana DeGette (D-CO) released a request for public input on a potential new bill they are calling “Cures 2.0” which would build on the 21st Century Cures Act. The duo says this legislation would focus on improving patients’ access to digital health products and new medical therapies. The bill would speed up insurance coverage by Medicare, Medicaid, […]
Ads Offering Bare-Bones Coverage are Everywhere – This Axios article highlights the growing trend of plans being advertised across the internet as “Trumpcare” plans. The problem? “Trumpcare doesn’t exist, and many of these advertised plans offer bare-bones coverage.” “It’s impossible to expect consumers to discern between the good guys and the con artists,” said Sabrina Corlette, a health insurance researcher at Georgetown University. “And […]
By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]
What Caught Our Eye is our week-in-review blog series — “Understanding Short-Term Limited Duration Health Insurance” — Karen Pollitz, Kaiser Family Foundation — The Health and Human Services Department published new rules Tuesday that expand access to short term health plans that exclude patients with preexisting conditions and don’t cover basic services like prescription drugs.
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute