Quality Cancer Care

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Our mission is to advocate for quality cancer care for all people touched by cancer, but what exactly is “quality cancer care,” and why is it essential for patients and the health care system? The National Academy of Medicine (formerly Institute of Medicine) and others have worked to define quality cancer care. Cancer Nation has represented patient perspectives in these efforts and played a leadership role in building the evidence base for quality cancer care.

Cancer Nation believes that cancer patients should have access to:

Care that adheres to evidence-based guidelines;
Comprehensive cancer care that assures treatment of the symptoms and side effects of cancer and cancer treatment;
Coordinated care with strong communication among all providers and the patient;
A written care plan detailing all elements of cancer care;
Care in a clinical trial, if it represents a potential treatment option;
Shared decision-making, including honest discussion about prognosis, the intent of therapy and the patient’s values and preferences regarding care;
Support for psychosocial needs;
Palliative care throughout the course of treatment, from diagnosis through end of life;
End-of-life care, including but not limited to hospice care;
Post-treatment survivorship care, including a survivorship care plan with a treatment summary and personalized recommendations for monitoring and follow-up care.
Robust health information systems that support and improve all other aspects of quality cancer care.

Ensuring quality cancer care is complex, and there are many areas for improvement and policy action. An important gap is in treatment decision-making and coordination of the multiple facets of cancer care. To address this gap, Cancer Nation advocates to ensure that every cancer patient has access to cancer care planning and coordination. These services provide cancer patients information to make informed decisions about treatments, encourage collaboration among the multi-disciplinary cancer care providers, and facilitate transitions from active treatment to survivorship.

Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed

February 21, 2019

Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining their search based on the results provided. They can then send secure messages [...]

Health Care Roundup: New Health Care Bills; NCCS Co-Founder Susie Leigh on Life After Cancer; Oncology Care Model; Racial Disparities; More

February 15, 2019

Health Care Bills Discussed, ACA Lawsuit News – A group of Democratic lawmakers this week introduced legislation that would allow for a “Medicare Buy-In,” meaning Americans at age 50 could buy into the program for their health care coverage. Spearheaded by Sen. Debbie Stabenow (MI-D) and Rep. Brian Higgins (NY-26), the legislators say the main goal is to promote more affordable coverage. Hearings on the ACA and drug pricing continued this [...]

Health Care Roundup: Drug Pricing; Cancer Deaths Rise Globally; Health Care Champion John Dingell Remembered; Treatment at Home; “Survivor” Debate

February 8, 2019

Drug Pricing at SOTU; House Health Care Hearing — At the State of the Union address, President Trump stated that two of his administration’s health care priorities are to protect individuals with pre-existing conditions and lower drug prices. The address did not specify how to achieve those goals. NCCS commented on several drug pricing proposals released previously by the administration, with a specific focus on what the proposals would mean for patients. [...]

Health Care Roundup: More Drug Pricing News; Clinical Trial Challenges; Trump Promises Action on Surprise Billing; Fake Cancer Cures; More

February 1, 2019

This week, the House and Senate held several hearings related to health care, including a House Ways and Means Committee hearing titled “Protecting Americans with Pre-Existing Conditions.” The hearing illustrated the stark difference between the two parties’ health care goals. There were also dueling drug pricing hearings this week, one from the House Committee on Oversight and Reform titled, “Examining the Actions of Drug Companies [...]

NCCS and Cancer Leadership Council Highlight Potential Harm to Patients of Proposed Medicare Part D Changes

January 30, 2019

The Department of Health and Human Services (HHS) released recently a proposed rule to change Medicare Part D’s protected classes drug coverage. In response, NCCS joined with other patient and provider groups of the Cancer Leadership Council (CLC) to comment on how these proposed changes could impact patients. The proposed rule would give Medicare plans the option to limit coverage of drugs in six categories, including cancer drugs. [...]

Health Care Roundup: Gov’t Shutdown Affects FDA; Health Care Hearings; Insomnia & Cancer; “When Cancer Meets the Internet;” More

January 25, 2019

Gov't Shutdown Affects FDA; Congressional Hearings on Health Care Scheduled – The government shutdown is now the longest in U.S. history. This week, NCCS joined 46 groups in a letter to Congress and President Trump highlighting the impact the shutdown is having on the FDA’s work on behalf of patients. The groups stated that, “…we fear that this continued shutdown not only puts the current health and safety of Americans at risk, but [...]

NCCS Joins Letter Highlighting Impact of Gov’t Shutdown on FDA’s Work on Behalf of Patients

January 22, 2019

The National Coalition for Cancer Survivorship (NCCS) joined with 46 other patient and provider organizations to call attention to the impact the government shutdown is having on the work of the Food and Drug Administration (FDA). “On behalf of patients across this country, we are greatly concerned that the agency is currently not fully funded, and thousands of vital FDA employees are not working or able to operate at full capacity. [...]

NCCS Health Care Roundup: Opposing Medicare Part D Changes; Medicare-for-All Comparisons; Cancer Patients Suicide Risk Study; More

January 18, 2019

Protecting Medicare Part D's Protected Classes and Congressional Updates — This week, NCCS joined the American Cancer Society Cancer Action Network in a campaign against proposed Medicare Part D changes. More than 50 groups joined the campaign in opposition to the administration’s proposal to change Medicare Part D's protected classes drug coverage, which would give Medicare plans the option to limit coverage of drugs in six categories, [...]

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