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Cancer Nation (Formerly NCCS)
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        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

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        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
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        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
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        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
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        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
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        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

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News

When Even the Best Advice Isn’t Good Enough

Guest Post by Dr. Don Dizon: When Even the Best Advice Isn’t Good Enough

February 20, 2015
Every so often I see a patient who views cancer as a constant threat to be handled — it becomes so significant that it is as…
Read more
https://canceradvocacy.org/wp-content/uploads/When-Even-the-Best-Advice-Isnt-Good-Enough.jpg 321 699 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-20 11:19:512020-11-24 11:47:40Guest Post by Dr. Don Dizon: When Even the Best Advice Isn’t Good Enough
NCCS Starburst Thumbnail

WCOE: Elaine Schattner Reflects on David Carr and Survivorship, Oncology Payment Reform, Patient Perspectives

February 20, 2015
https://twitter.com/ElaineSchattner/status/568500710503006209 https://twitter.com/ASCO/status/568239877340463104 https://twitt…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-20 09:53:582015-02-20 09:53:58WCOE: Elaine Schattner Reflects on David Carr and Survivorship, Oncology Payment Reform, Patient Perspectives
20years

Guest Post from The Cancer Support Community: Progress Made in Addressing the Psychosocial Needs of People Diagnosed with Cancer

February 19, 2015
This guest post is part of the 2015 Cancer Policy Matters "The Imperatives for Quality Cancer Care: 20 Years Later" blog series. Although…
Read more
https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-19 13:13:172015-02-19 13:13:17Guest Post from The Cancer Support Community: Progress Made in Addressing the Psychosocial Needs of People Diagnosed with Cancer
20years

Treating the Whole Person: Understanding and Gaining Access to Palliative Care

February 18, 2015
As part of our 20 Years Later blog series, NCCS CEO Shelley Fuld Nasso discusses the difference between palliative and end-of-life…
Read more
https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-18 14:01:412015-02-18 14:01:41Treating the Whole Person: Understanding and Gaining Access to Palliative Care
NCCS Starburst Thumbnail

WCOE: New CMS Oncology Care Model Offers Hope, End of Life Planning, and ACA Questions Answered

February 13, 2015
https://twitter.com/sfuldnasso/status/566244792531972096 https://twitter.com/CancerAdvocacy/status/565963352724484096 https://…
Read more
https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-13 15:10:032015-02-13 15:10:03WCOE: New CMS Oncology Care Model Offers Hope, End of Life Planning, and ACA Questions Answered
NCCS Starburst Thumbnail

The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients

February 12, 2015
The National Coalition for Cancer Survivorship (NCCS) applauds the release by the Centers for Medicare and Medicaid Services (CMS)…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-12 23:18:412015-02-12 23:18:41The New Medicare Oncology Care Model Will Improve Quality of Care for Cancer Patients
agawande

Being Mortal Is Far From Being Morbid: Responding to FRONTLINE’s Profile of Surgeon Atul Gawande and End of Life Care

February 11, 2015
On public television stations nationwide, the award-winning FRONTLINE series aired a program on February 10th based on the work…
Read more
https://canceradvocacy.org/wp-content/uploads/2015/02/agawande.jpg 321 699 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-11 16:58:102020-11-20 12:02:16Being Mortal Is Far From Being Morbid: Responding to FRONTLINE’s Profile of Surgeon Atul Gawande and End of Life Care
20years

Revisiting the Second Principle of the Imperatives for Quality Cancer Care—Treating the Whole Person

February 6, 2015
This month, as part of the 20 Years Later series, we are revisiting the second principle of the Imperatives for Quality Cancer Care:…
Read more
https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-06 12:06:192015-02-06 12:06:19Revisiting the Second Principle of the Imperatives for Quality Cancer Care—Treating the Whole Person
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Latest News

a photo of a medical professional and patient discussing a care plan

New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
Read more
https://canceradvocacy.org/wp-content/uploads/doctor-patient-care-plan.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-10-22 12:38:192026-10-22 13:35:52New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
Read more
https://canceradvocacy.org/wp-content/uploads/Desa-Rhea-Jefferson_-Advocate-Spotlight-Blog-Banner.png 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-09-24 11:10:172026-09-24 11:10:17Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next
Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
Read more
https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute