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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

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        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
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    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
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    • Newsletter: Cancer Nation News
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        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
        • 2025 Survivorship Survey
        • 2024 Survivorship Survey
        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

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  • Events
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News

journeyforwardthumb

Journey Forward and ERS Advance Survivorship Care Planning Through Data Integration

March 17, 2015
Data integration solution addresses one of the barriers associated with creating Care Plans for cancer survivors Journey Forward,…
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https://canceradvocacy.org/wp-content/uploads/2014/05/journeyforwardthumb.jpg 150 150 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-03-17 16:00:352015-03-17 16:00:35Journey Forward and ERS Advance Survivorship Care Planning Through Data Integration
NCCS Starburst Thumbnail

WCOE: An ACA Marketplace FAQ, Fear of Recurrence, Seeking a Beautiful Death and Perspectives on Drug Innovation

March 13, 2015
https://twitter.com/KaiserFamFound/status/576453686026719232 https://twitter.com/CancerAdvocacy/status/576110317803012096 http…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-03-13 17:05:052015-03-13 17:05:05WCOE: An ACA Marketplace FAQ, Fear of Recurrence, Seeking a Beautiful Death and Perspectives on Drug Innovation
NCCS Starburst Thumbnail

WCOE: Shared Decision-Making and Getting Doctors to Listen

March 9, 2015
https://twitter.com/sfuldnasso/status/572816073600462848 https://twitter.com/CancerAdvocacy/status/572504194596401152 https://…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-03-09 10:26:572015-03-09 10:26:57WCOE: Shared Decision-Making and Getting Doctors to Listen
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NCCS CEO Applauds Oncology Care Model in Editorial Appearing in The Cancer Letter

March 3, 2015
The following editorial appeared in The Cancer Letter on February 27, 2015 The recent announcement by the Innovation Center at the…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-03-03 08:44:192015-03-03 08:44:19NCCS CEO Applauds Oncology Care Model in Editorial Appearing in The Cancer Letter
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Decision-Making in Cancer Care: Communication (INFOGRAPHIC)

February 27, 2015
The second principle of the Imperatives for Quality Cancer Care states, “Quality cancer care should be available in a health…
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https://canceradvocacy.org/wp-content/uploads/2015/02/ThumbInfographic2.jpg 699 699 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-27 15:28:522020-11-24 11:42:48Decision-Making in Cancer Care: Communication (INFOGRAPHIC)
NCCS Starburst Thumbnail

WCOE: Pace of FDA Drug Approvals, Redesigning Insurance Exchanges, Shared Decision Making, and Thoughts on Data Collection

February 27, 2015
https://twitter.com/ResearchAmerica/status/570688447880556544 https://twitter.com/sfuldnasso/status/570389151532646401 https:/…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-27 10:56:262015-02-27 10:56:26WCOE: Pace of FDA Drug Approvals, Redesigning Insurance Exchanges, Shared Decision Making, and Thoughts on Data Collection
Phyllis Websquare

Honoring Phyllis Torda, a Fierce Advocate for Patient-Centered Health Care

February 26, 2015
The National Coalition for Cancer Survivorship (NCCS), notes with sadness the passing of Phyllis Torda, a fierce advocate for patient-centered…
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https://canceradvocacy.org/wp-content/uploads/2015/02/Phyllis-Websquare.jpg 321 699 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-26 10:22:572015-02-26 10:22:57Honoring Phyllis Torda, a Fierce Advocate for Patient-Centered Health Care
20years

Guest Post: Palliative Care in Oncology—We’ve Come a Long Way, Baby …But Let’s Not Rest on Our Laurels

February 26, 2015
“The good physician treats the disease; the great physician treats the patient who has the disease.” -William Osler Since the…
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https://canceradvocacy.org/wp-content/uploads/2015/01/20years.gif 500 500 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-02-26 07:22:412015-02-26 07:22:41Guest Post: Palliative Care in Oncology—We’ve Come a Long Way, Baby …But Let’s Not Rest on Our Laurels
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Latest News

a photo of a medical professional and patient discussing a care plan

New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
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https://canceradvocacy.org/wp-content/uploads/doctor-patient-care-plan.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-10-22 12:38:192026-10-22 13:35:52New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
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https://canceradvocacy.org/wp-content/uploads/Desa-Rhea-Jefferson_-Advocate-Spotlight-Blog-Banner.png 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-09-24 11:10:172026-09-24 11:10:17Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next
Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
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https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

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  • About
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute