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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
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    • Newsletter: Cancer Nation News
  • Policy

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        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.

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        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

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News

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NCCS Joins Colleagues in Submitting Comments to National Association of Insurance Commissioners on the Health Benefit Plan Network Access and Adequacy Model Act

January 22, 2015
Last week, NCCS joined colleagues in the Cancer Leadership Council (CLC) in submitting comments to the National Association of Insurance…
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WCOE: New IOM Report, Control Issues, Tempting Treatment Options, and Patients ‘Right to Try’ New Drugs

January 16, 2015
https://twitter.com/theIOM/status/555428756106805249 https://twitter.com/CancerAdvocacy/status/555477303653044224 https://twit…
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WCOE: FDA News, Medical Debt, the ACA, and Honoring Jessie Gruman

January 9, 2015
https://twitter.com/ElaineSchattner/status/553203989940928512 https://twitter.com/KaiserFamFound/status/553214546643808256 htt…
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Jessie Gruman

The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award

January 8, 2015
For more than twenty years, the National Coalition for Cancer Survivorship (NCCS) had the privilege of adapting our friend and…
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https://canceradvocacy.org/wp-content/uploads/2013/10/Jessie-Gruman-scaled.jpg 2560 1707 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2015-01-08 10:44:292020-12-31 09:45:36The National Coalition for Cancer Survivorship Establishes the Jessie Gruman Patient Engagement Award
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The Year in Cancer Policy

January 5, 2015
Thank you for making the first year of our blog a success. To celebrate, we're looking back at the meaningful cancer and health policy…
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WCOE: Warlike Metaphors, a Report out of the San Antonio Breast Cancer Symposium, Discussing Costs, and Other News

December 19, 2014
The stories that caught our eye this week included an article that points out the use of warlike metaphors to describe one’s experience…
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WCOE: Cost of Cancer Care, Adopting a Shorter Course of Treatment for Some Breast Cancer Patients, and Lung Cancer Screening

December 12, 2014
In “The Punishing Cost of Cancer Care,” Dr. Mikkael Sekeres describes the difficult conversations he has with patients regarding…
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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2014-12-12 17:34:042014-12-12 17:34:04WCOE: Cost of Cancer Care, Adopting a Shorter Course of Treatment for Some Breast Cancer Patients, and Lung Cancer Screening
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Guest Post: Are Right to Try Laws a Good Idea?

December 10, 2014
Are right to try laws a good idea?  During 2014, they began appearing throughout the country, first in Colorado, then in Missouri…
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News

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Latest News

Joslyn Trovati Advocate Spotlight Blog Banner

There Is No Right or Wrong Way to Grieve: Joslyn Trovati on Grief, Survivorship, and Whole Person Cancer Care

August 26, 2026
Joslyn Trovati is an oncology therapist and young adult cancer survivor who advocates for grief support and Whole Person Cancer Care. Read her story.
Read more
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Cancer Nation Joins Amicus Brief in Suit Over Vaccine Recommendations

July 24, 2026
Last week, Cancer Nation joined leading patient advocacy and public health organizations in supporting an amicus (or friend-of-the-court)…
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a graphic with a text headline reading "Cancer Nation Announces New Leadership Academy Cohort", underneath are Headshots of all 12 2026 cancer Nation Ambassadors side-by-side

Meet the 2026 Cancer Nation Leadership Academy Ambassadors

July 15, 2026
We are proud to welcome the 2026 Cancer Nation Leadership Academy cohort. Following a competitive application process, 12 survivors,…
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https://canceradvocacy.org/wp-content/uploads/Leadership-Academy-Announcement-1200-600-2.jpg 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-07-15 15:41:172026-07-15 16:53:13Meet the 2026 Cancer Nation Leadership Academy Ambassadors

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute