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The National Coalition for Cancer Survivorship joined with other organizations of the Cancer Leadership Council (CLC) in a letter to House leadership to oppose House consideration of the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204).The legislation passed the House on May 22 and goes to the President […]
Trump Administration Promotes a Drug Pricing Plan – On Friday, May 11, 2018, President Trump announced a drug pricing blueprint to address prescription drug prices. Initial media coverage of the plan suggested that the blueprint failed to honor the President’s campaign commitment to negotiation of drug prices. Overall, the press and policymaker reaction to the plan was muted, with some suggesting that the plan would have limited impact. […]
A new weekly roundup of policy news affecting the cancer community. In order to bring you the latest cancer-related health care policy and news, we are combining our ACA Updates and What Caught Our Eye (WCOE) content into a weekly email and blog post. We aim to make this a concise, one-stop summary of what you need to know as we continue working together to make cancer care better for everyone. […]
Call to Action – Tell the Trump administration that short-term, limited-duration insurance plans will harm people with cancer. Participate in the public comment period on the proposed short-term insurance regulation by filing comments electronically to the Secretary of Health & Human Services. After Congress failed to repeal and replace the Affordable Care Act, the Trump administration launched a number of actions aimed at repealing […]
NCCS joined the Cancer Leadership Council to express serious reservations about the latest version of the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act, released on March 10, 2018. We oppose the latest version of right to try legislation because it makes a hollow promise to patients and removes the […]
Advocated for by NCCS, the bill would increase comprehensive cancer care planning for millions of Medicare beneficiaries. Washington, D.C. – Today, Rep. Mark DeSaulnier (D-CA) and Rep. Ted Poe (R-TX), both cancer survivors and co-chairs of the Congressional Cancer Survivors Caucus, introduced H.R. 5160, the Cancer Care Planning and Communications (CCPC) Act. A longtime legislative […]
The National Coalition for Cancer Survivorship (NCCS) submitted comments on the proposed rule on Association Health Plans (AHPs) and expressed serious reservations that the proposed rule will weaken the individual and small group markets that provide health insurance coverage to many Americans with a history of cancer. For those who now receive their insurance through […]
NCCS joined with colleagues in the Cancer Leadership Council to express serious reservations about proposed “right to try” legislation that will remove the Food and Drug Administration (FDA) from the approval process for patient access to an investigational therapy outside a clinical trial. NCCS does not believe that right to try legislation removing FDA from […]
Catherine Logan Carrillo, co-founder of NCCS and its first Executive Director, died February 19 in Albuquerque, New Mexico. Catherine founded Living Through Cancer, which eventually became People Living Through Cancer (PLTC), one of the first community-based peer support organizations for people dealing with cancer. After reading Dr. Fitzhugh Mullan’s seminal article, “Seasons of Survival: Reflections of a Physician with Cancer,” in […]
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. “Obamacare didn’t get repealed — so why did the uninsured rate still go up?” — The uninsured rate went up in 2017, new Gallup data shows — the first time this has happened since the Affordable Care Act’s coverage expansion took effect. This works out to an estimated 3.2 million fewer Americans […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute