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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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NCCS Statement on District Court Ruling Affordable Care Act Unconstitutional

Silver Spring, M.D. – The National Coalition for Cancer Survivorship (NCCS), a national organization representing survivors of all…
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Remembering Kathryn West

Last weekend, the patient advocacy community lost a fierce advocate, leader, and innovator in raising awareness of the issues cancer survivors experience. Kathryn West, oncology nurse and fierce advocate for cancer patients, died of cancer herself in Los Angeles last Sunday. NCCS first met Kathryn through her role as Advocacy Director for Amgen. Her vision to increase awareness of resources for people affected by cancer led her to champion the [...]
NCCS News Cancer Policy Matters

NCCS Strongly Objects to New CMS Waiver Options That Seek to Further Undermine the ACA

NCCS issued the following statement regarding today’s announcement by the Trump administration outlining options states can pursue to circumvent the Affordable Care Act (ACA). Today’s announcement of these policy options follows previous Centers for Medicare and Medicaid Services (CMS) guidance that outlined broad authority to the states to design their health care systems through a “waiver” of key ACA requirements and provides states [...]
2018 Stovall Award presentation

NCCS Presents 3rd Annual Ellen L. Stovall Award to Gay Crawford and Dr. Norman Coleman, Their 40+ Year Careers Focused on Improving Patient-Centered Cancer Care

NCCS hosted the 3rd annual Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care reception. Named for former NCCS CEO, Ellen Stovall, who died in 2016 due to complications from three cancer treatments, the award seeks to highlight those who continue Ellen’s work of transforming cancer care to further incorporate patients’ goals, needs, and values. This year’s honorees are Gay Crawford, founding director of Cancer CAREpoint, and Dr. Norman Coleman, senior investigator at the National Cancer Institute. [...]
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NCCS Webinar Video: “Understanding Fear of Cancer Recurrence”

Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer…
NCCS News Cancer Policy Matters

Patient and Consumer Groups Urge Federal Court to Issue Preliminary Injunction Against Short-Term Insurance Rule

U.S. District Court Judge Richard J. Leon is expected to hear oral arguments today in Washington, D.C., from groups challenging a rule implementing changes to short-term, limited-duration (STLD) insurance plans. The hearing in the case Association for Community Affiliated Plans v. United States Department of Treasury will allow the plaintiffs to explain the devastating impact patients could face under the rule if bare-bones plans that do not comply [...]
NCCS News Cancer Policy Matters

Coalition, Including NCCS, Urges CMS to Withdraw Guidance Threatening Millions of Americans Who Have Pre-Existing Conditions

More than 25 patient and consumer groups representing millions of people nationwide with pre-existing health conditions issued the following statement in response to administration guidance issued on October 22nd that gives states greater ability to skirt patient protections included in the Affordable Care Act: “The guidance issued by the Administration gives states free reign to undermine critical protections for millions of Americans living with pre-existing conditions [...]
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NCCS Concerned About New CMS Guidance on 1332 Waiver Process

The National Coalition for Cancer Survivorship (NCCS) is extremely concerned by the Centers for Medicare and Medicaid Services’ (CMS) new guidance document that significantly alters the standards that states must meet in order to be granted a waiver from certain Affordable Care Act (ACA) requirements. The Trump administration would permit states to revise the rules of their health insurance markets significantly, including to authorize [...]
NCCS News Cancer Policy Matters

NCCS Joins 11 Organizations in Filing Amicus Curiae Brief Supporting Lawsuit Challenging Short-Term Health Plans

The National Coalition for Cancer Survivorship (NCCS) joined 11 other patient groups in filing an amicus curiae (or “friend of the court”) brief in support of the lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus curiae brief explains to the court the potentially devastating impact of short-term health insurance plans on people with cancer and other Americans with serious and chronic diseases. [...]
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NCCS Joins with Cancer Leadership Council to Outline Concerns Regarding New “Step Therapy” Plan

NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for physician-administered and other Part B drugs. The letter outlines several concerns regarding the application of step therapy [...]

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