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NCCS - National Coalition for Cancer Survivorship
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Posts

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Doctor-Patient Communication, Payment Reform, Quality Cancer Care NCCS News /by Kara Kenan

Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today to introduce the Comprehensive Cancer Survivorship Act (CCSA), new comprehensive survivorship legislation that will directly benefit cancer survivors. She was joined by Senators Ben Cardin (D-MD) and Amy Klobuchar (D-MN), who will lead the legislation in […]

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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022/in Advocate Spotlight, Cancer News, NCCS News Care Coordination, Care Planning, Doctor-Patient Communication, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.

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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

November 1, 2022/in Advocate Spotlight, NCCS News Care Planning, COVID-19, Palliative Care, Psychosocial Care, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

Amanda Helms was enjoying a bubble bath while reading a book when she looked down and noticed a lump on the side of her breast in January of 2020. She had a bad feeling about it instantly, even though she had no family history or risk factors. She went to her family doctor who referred […]

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https://canceradvocacy.org/wp-content/uploads/Amanda-Helms-Advocate-Spotlight-webmc.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-11-01 13:57:522022-11-10 15:01:05Amanda Helms: Care Planning, Mental Health, and Palliative Care are Essential to Quality Cancer Care

Webinar – Exercise Is Medicine in Oncology: Implementation Based on Solid Evidence

October 13, 2022/in NCCS News Exercise and Rehabilitation, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by NCCS Staff

NCCS hosted a webinar featuring Kathryn Schmitz, PhD, MPH, a leading researcher in exercise oncology at the University of Pittsburgh Medical Center. Dr. Schmitz’s research focuses on people living with and beyond cancer and investigates the role exercise in improving physiologic and psychosocial outcomes including symptoms, treatment tolerance, and other chronic diseases. Dr. Schmitz is […]

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https://canceradvocacy.org/wp-content/uploads/SChamps-Webinar-2022-10-12-Exercise-is-Medicine-featpost.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-10-13 16:37:192022-10-20 14:40:20Webinar – Exercise Is Medicine in Oncology: Implementation Based on Solid Evidence

Michael Holtz: Everyone Has a Place in the Advocacy Community

October 12, 2022/in Advocate Spotlight, NCCS News Access to Care, Care Coordination, Clinical Trials, COVID-19, Doctor-Patient Communication, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

“Everyone has a place in the advocacy continuum: Your lived experience is important.” Michael Holtz didn’t know that the “funky” digestive symptoms in December of 2011 would be the first signs of his cancer diagnosis. These rectal spasms would leave Michael rushing to the bathroom, and either nothing would happen or there would be a […]

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https://canceradvocacy.org/wp-content/uploads/Michael-Holtz-Advocate-Spotlight-feat.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-10-12 14:22:182022-10-13 10:14:11Michael Holtz: Everyone Has a Place in the Advocacy Community

Nicole C. Bullock: Faith, Family, and Friends Along the Path of Survivorship

September 6, 2022/in Advocate Spotlight, NCCS News Access to Care, Care Coordination, Clinical Trials, COVID-19, Disparities in Outcomes, Doctor-Patient Communication, Health Equity, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

As Nicole C. Bullock, a non-Hodgkin lymphoma survivor, watched the news of hospital lockdowns during the early stages of the COVID-19 pandemic, she couldn’t help but think of the cancer patients who faced the harsh reality that they would now have to receive treatment for their illness alone, without the support of family and friends. […]

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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Nicole-Bullock-Sept-2022-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-09-06 16:55:422022-09-07 10:07:05Nicole C. Bullock: Faith, Family, and Friends Along the Path of Survivorship

Webinar – Care and Career Support: From Health Systems to Employers

August 3, 2022/in NCCS News Quality Cancer Care, Shared Decision-Making NCCS News /by NCCS Staff

NCCS hosted a webinar about the unique demands of caregiving in cancer and strategies that employers and health systems might engage to support caregivers. Webinar Speakers Margaret L. Longacre, PhD, Associate Professor and Chair of Public Health, Arcadia University Michele Cygan, Director of Compensation and Benefits, Arcadia University Christina Sisti, DPS, MPH, MS, NCCS CPAT […]

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https://canceradvocacy.org/wp-content/uploads/Care-and-Career-Support-webinar-post-1200px.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-08-03 10:24:462022-08-03 10:24:46Webinar – Care and Career Support: From Health Systems to Employers

Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers

May 6, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Care Coordination, Care Planning, Disparities in Outcomes, Doctor-Patient Communication, Health Care Coverage, Health Equity, Psychosocial Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by NCCS Staff

Dr. Michelle Mollica, Senior Advisor at the National Cancer Institute’s (NCI) Office of Cancer Survivorship, joined NCCS to discuss NCI’s recent efforts focused on understanding and addressing the survivorship needs for the growing population of survivors who are living with advanced and metastatic cancers. Bethany Ross, CPAT Steering Committee Member and Advocate, also participated in […]

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https://canceradvocacy.org/wp-content/uploads/Webinar-Michelle-Mollica-Metastatic-Survivorship-Needs.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-05-06 11:32:162022-08-02 04:52:26Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers

COVID-19 and Cancer: Otis Brawley, MD on the Future of the Pandemic

March 17, 2022/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, COVID-19, Palliative Care, Quality Cancer Care, Shared Decision-Making NCCS News /by NCCS Staff

Last week, NCCS hosted a conversation with cancer control expert and epidemiologist Otis Brawley, MD. NCCS CEO Shelley Fuld Nasso moderated the discussion. “We knew exactly who we wanted to be our first guest speaker in this series. Dr. Otis Brawley is a Bloomberg Distinguished Professor at Johns Hopkins University, an oncologist and an epidemiologist. […]

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https://canceradvocacy.org/wp-content/uploads/COVID-19-Dr.-Brawley-2022-03-15-feat.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-03-17 16:37:442022-03-18 12:05:54COVID-19 and Cancer: Otis Brawley, MD on the Future of the Pandemic

Jean Di Carlo-Wagner: Don’t be Embarrassed to Death

March 2, 2022/in NCCS News Access to Care, Care Coordination, Care Planning, Health Care Coverage, Quality Cancer Care, Survivorship Care Advocate Spotlight, NCCS News /by NCCS Staff

In March of 2003, Jean Di Carlo-Wagner listened to a public service announcement by Katie Couric, in which she discussed the symptoms of colon cancer. It was then that Jean knew she had cancer. After two years of bowel changes, fatigue, reflux, pain in her gut, weight changes, night sweats, and bloating, Jean’s doctor ordered […]

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https://canceradvocacy.org/wp-content/uploads/Jean-Di-Carlo-Wagner-feat-img.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-03-02 15:09:582022-03-03 10:59:34Jean Di Carlo-Wagner: Don’t be Embarrassed to Death
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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Sharon-Rivera-Sanchez.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2023-01-12 15:24:442023-01-12 15:24:44Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy
Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
Read more
https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
Read more
https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute