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NCCS - National Coalition for Cancer Survivorship
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Posts

Advocating for Women Who Choose to Go Flat After Mastectomy

September 10, 2020/in Cancer News, Cancer Policy Blog Disparities in Outcomes NCCS News /by actualize

By Kim Bowles Founder Not Putting On a Shirt When I woke up from surgery and realized my surgeon had overridden my wishes, I was angry. I thought that because I had been clear with him, that I was safe. But as I began speaking with other women, I discovered that I was not alone […]

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ACA Update | Submit Your Comments on Expansion of Harmful Short-Term Health Plans Before Monday, April 23 Deadline

April 20, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage NCCS News /by actualize

If you haven’t already submitted comments regarding the short-term limited-duration proposed rule, please take 5 minutes to do so before the deadline on Monday night! NCCS recently hosted a webinar on what these short-term plans mean for cancer survivors. See the webinar blog post for step-by-step instructions on how to submit comments to ensure cancer patients’ voices are heard. Another ACA development occurred this week. […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-04-20 17:16:052018-04-20 17:16:05ACA Update | Submit Your Comments on Expansion of Harmful Short-Term Health Plans Before Monday, April 23 Deadline

ACA Update | How Short-Term Health Plans Would Drive Up ACA Premiums and How Advocates Can Make Their Voice Heard

April 13, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS News /by actualize

In February, the Trump administration released proposed rules that would loosen regulations on short-term limited-duration health insurance coverage. Short-term plans are very concerning as they are not subject to the ACA’s critical patient protections that have helped so many Americans, including millions of cancer patients. These plans can deny coverage due to a preexisting condition or charge people more based on their health status, […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-04-13 17:35:132018-04-13 17:35:13ACA Update | How Short-Term Health Plans Would Drive Up ACA Premiums and How Advocates Can Make Their Voice Heard

How to Voice Opposition to the Proposed Rule for Short-Term Limited Duration Coverage

April 12, 2018/in Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS News /by actualize

Call to Action – Tell the Trump administration that short-term, limited-duration insurance plans will harm people with cancer. Participate in the public comment period on the proposed short-term insurance regulation by filing comments electronically to the Secretary of Health & Human Services. After Congress failed to repeal and replace the Affordable Care Act, the Trump administration launched a number of actions aimed at repealing […]

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What Caught Our Eye: Multiple Proposals Continue to Weaken ACA Patient Protections; Breast Cancer Cost Survey; Editing Genes to Treat Cancer

February 23, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series — “Understanding Short-Term Limited Duration Health Insurance” — Karen Pollitz, Kaiser Family Foundation — The Health and Human Services Department published new rules Tuesday that expand access to short term health plans that exclude patients with preexisting conditions and don’t cover basic services like prescription drugs.

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ACA Update February 16, 2018 | Idaho Insurer Rolls Out Health Plans That Violate ACA Regulations, Including Pre-Existing Condition Protections

February 16, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS News /by actualize

Two weeks ago, NCCS reported in our ACA Update that Idaho regulators said they would allow the sale of insurance plans that don’t adhere to the Affordable Care Act’s (ACA) requirements. This week, the state took it a step further when Blue Cross of Idaho unveiled health plans that break the ACA’s federal health laws in several ways. Blue Cross of Idaho will attempt to sell insurance plans that are priced based on applicants’ health status. […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-02-16 17:31:582018-02-16 17:31:58ACA Update February 16, 2018 | Idaho Insurer Rolls Out Health Plans That Violate ACA Regulations, Including Pre-Existing Condition Protections

ACA Update February 2, 2018 | GOP Unlikely to Try ACA Repeal Again as Trump Admin Focuses Efforts on Weakening ACA Regulations

February 2, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act NCCS News /by actualize

If you ask Dylan Scott, a health care reporter for Vox, about the risk of the Affordable Care Act (ACA) being repealed, he’d say “The ACA is going to survive.” NCCS has heard this sentiment echoed by Members of Congress as well, with Senate Leader Mitch McConnell stating that he wants to move on to other priorities such as infrastructure. Even if Congressional Republicans agreed on a health care bill that could pass the chamber […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-02-02 17:45:342018-02-02 17:45:34ACA Update February 2, 2018 | GOP Unlikely to Try ACA Repeal Again as Trump Admin Focuses Efforts on Weakening ACA Regulations

What Caught Our Eye: Idaho Allows Insurers to Ignore ACA Rules; Op-ed: Right to Try a ‘Disaster in the Making’; Financial Toxicity; and More

February 2, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials, Drug Pricing, Financial Toxicity, Health Equity NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series. “Obamacare will survive as Republicans give up on repeal” | By Dylan Scott, Vox.com — The Affordable Care Act is going to survive. The 2010 health care law has slowly but surely moved out of the line of fire. President Trump barely mentioned it in his State of the Union address Tuesday night. At their annual retreat this week in West Virginia, top Republicans signaled that the repeal dream […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-02-02 17:09:062018-02-02 17:09:06What Caught Our Eye: Idaho Allows Insurers to Ignore ACA Rules; Op-ed: Right to Try a ‘Disaster in the Making’; Financial Toxicity; and More

ACA Update | May 5, 2017: AHCA Passes in House, Now Faces Major Obstacles in Senate

May 5, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS News /by actualize

Yesterday, the House of Representatives passed the American Health Care Act (AHCA), including an amendment authored by Congressman Tom MacArthur (R-NJ) and brokered with members of the Freedom Caucus, which would allow states to opt out of providing essential health benefits and community rating. Essential health benefits (EHBs) are ten services the ACA requires insurers to include in all plans, such as hospitalization […]

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ACA Update | March 31, 2017: The Fight to Protect the ACA Is Far From Over.

March 31, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage NCCS News /by actualize

Last week at a press conference after the American Health Care Act (AHCA) was pulled from the House floor, Paul Ryan said, “The ACA is the law of the land for the foreseeable future.” But this week lawmakers signaled that the fight is far from over. Republican leadership vowed to restart negotiations for repealing the ACA. While Republicans might try to resurrect repeal and replace, they could in the meantime focus on […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute