Posts

Health Care Roundup: Medicare Payments for CAR-T; Cancer Screenings in Older Adults; Cancer and At-Home DNA Tests; End of Life Care; More

/in , , , , , /by

CAR-T therapies, a cutting-edge type of immunotherapy, are seen by many as the next generation for cancer treatments. Of course, they are expensive and complicated to administer. The Centers for Medicare and Medicaid Services (CMS) recently announced long-awaited policies regarding payment for these treatments. CMS stated, “Medicare will pay for CAR-T therapies so long as they’re administered in health care facilities that follow the […]

Read more

Remembering Richard Payne, MD

/in , , , , /by

With great sadness, we mourn the passing of former NCCS Board Chair Richard Payne, MD, on January 4. Dr. Payne was a member of the NCCS Board of Directors from 2005 to 2012; he served as Board Chair from 2010 to 2011. Thoughtful, deliberative, and soft spoken, Dr. Payne was a valued and collaborative leader of NCCS. A lover of books and golf, he was always attentive and generous to his extended family, both personal and professional. […]

Read more

Remembering Jennifer Friar Groves

/in , , , , , , /by

By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]

Read more

Health Care Roundup: ‘Junk Insurance;’ High Costs and Forgone Care; Reinsurance; Patient Safety After Hospital Mergers

/in , , , , , , , /by

Trump Admin Continues Push to Make Short-Term Health Plans More Acceptable — On Wednesday, the Trump administration made it easier for short-term plans to reach more consumers in another move to try to halt further ACA progress. While short-term plans are inexpensive, they do not cover pre-existing conditions and the range for medical services is much more limited. […]

Read more

What Caught Our Eye: ACA Premiums; Excessive Cancer Care; Saving Lives With Policy; Horrifying Hospice Care; Cancer Drug Efficacy; and More

/in , , , , , , /by

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. “When Silver Costs More Than Gold: How Trump’s Actions Have Scrambled Insurance Prices” Via New York Times — The rates for next year’s Obamacare plans are out, and they show how President Trump’s actions have scrambled the insurance marketplace. Usually, plans known as gold have higher monthly […]

Read more

Guest Post: For the Love of a Friend

/in , , , , /by

My dear friend Avery[1], a woman I’ve known since we were 10 years old (in 5th grade together) was diagnosed with inflammatory breast cancer (IBC) in 2006. Having observed my mother’s battle with breast cancer in the 1980s, I considered myself a veteran of the struggle. Times change. Diseases evolve. The intervening years—from the 80s […]

Read more

Being Mortal Is Far From Being Morbid: Responding to FRONTLINE’s Profile of Surgeon Atul Gawande and End of Life Care

/in , , , , , , /by

On public television stations nationwide, the award-winning FRONTLINE series aired a program on February 10th based on the work of noted surgeon and writer, Atul Gawande.  In addition to Gawande’s many clinical and surgical talents, he has the rare gift of writing articles and books for all of us, no matter what our level of […]

Read more

WCOE: Obama takes on Precision Medicine, Palliative Care ≠ Hospice, Quantity and Quality of Life, CLRC News, Medicare Payment Reform, and Breast Cancer Patient Communication

/in , , , , , , , /by

Don't miss President Obama speak on his #PrecisionMedicine Initiative at 11:10am ET → https://t.co/zcSZULoCno — White House OSTP 44 (@WHOSTP44) January 30, 2015 What is President Obama's 'precision medicine' plan, and how might it help you? https://t.co/T8sXHBGWm0 — Shelley Fuld Nasso (@sfuldnasso) January 30, 2015 Beautiful post by @drdonsdizon. Palliative care does not mean hospice […]

Read more

Guest Post: Forgotten Survivors—Supporting the Needs of Patients with Advanced Cancers

/in , , , , , /by

Guest post by Lillie D. Shockney, RN, BS, MAS, Director of Johns Hopkins Breast Center and Cancer Survivorship Programs. On November 19, 2014, NCCS will present the Catherine Logan Award for Service to Survivorship to Lillie at the Focus on the Care evening reception in Washington, DC.  Though more and more cancer patients are being diagnosed […]

Read more

WCOE: Brittany Maynard’s Death with Dignity, Election Results and the ACA, and Susan Gubar’s “Not Talking About Medical Mistakes”

/in , , , , , , /by

Brittany Maynard, a 29-year-old woman with brain cancer who became an advocate for the “death with dignity” movement took her life this week. Marcia Angell wrote about “The Brittany Maynard effect: How she is changing the debate on assisted dying” in The Washington Post, as did Sarah Kliff in “Brittany Maynard and the debate about […]

Read more

Take Action

Make An Impact

We are relentless in improving the quality of care and life after a cancer diagnosis. Your support makes all the difference right now.

Make a Gift »

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

Share Your Story

NCCS represents the millions of Americans who share a common experience – the survivorship experience – living with, through and beyond a cancer diagnosis.

STAY CONNECTED

Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action

  • This field is for validation purposes and should be left unchanged.

National Coalition for Cancer Survivorship
8455 Colesville Road  |  Suite 930  |  Silver Spring, MD 20910
877-NCCS-YES  |  info@canceradvocacy.org
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2021 by the National Coalition for Cancer Survivorship
National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, and related Logos are registered in the United States as trademarks of the National Coalition for Cancer Survivorship.