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NCCS - National Coalition for Cancer Survivorship
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Posts

Health Care Roundup: Medicare Payments for CAR-T; Cancer Screenings in Older Adults; Cancer and At-Home DNA Tests; End of Life Care; More

August 16, 2019/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Palliative Care, Quality Cancer Care NCCS News /by actualize

CAR-T therapies, a cutting-edge type of immunotherapy, are seen by many as the next generation for cancer treatments. Of course, they are expensive and complicated to administer. The Centers for Medicare and Medicaid Services (CMS) recently announced long-awaited policies regarding payment for these treatments. CMS stated, “Medicare will pay for CAR-T therapies so long as they’re administered in health care facilities that follow the […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2019-08-16 16:41:512020-07-06 10:11:52Health Care Roundup: Medicare Payments for CAR-T; Cancer Screenings in Older Adults; Cancer and At-Home DNA Tests; End of Life Care; More

Remembering Richard Payne, MD

January 10, 2019/in Cancer News, Cancer Policy Blog, NCCS News Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

With great sadness, we mourn the passing of former NCCS Board Chair Richard Payne, MD, on January 4. Dr. Payne was a member of the NCCS Board of Directors from 2005 to 2012; he served as Board Chair from 2010 to 2011. Thoughtful, deliberative, and soft spoken, Dr. Payne was a valued and collaborative leader of NCCS. A lover of books and golf, he was always attentive and generous to his extended family, both personal and professional. […]

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Remembering Jennifer Friar Groves

December 20, 2018/in Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]

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Health Care Roundup: ‘Junk Insurance;’ High Costs and Forgone Care; Reinsurance; Patient Safety After Hospital Mergers

August 3, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Palliative Care, Pre-Existing Conditions, Quality Cancer Care NCCS News /by actualize

Trump Admin Continues Push to Make Short-Term Health Plans More Acceptable — On Wednesday, the Trump administration made it easier for short-term plans to reach more consumers in another move to try to halt further ACA progress. While short-term plans are inexpensive, they do not cover pre-existing conditions and the range for medical services is much more limited. […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-08-03 17:02:072018-08-03 17:02:07Health Care Roundup: ‘Junk Insurance;’ High Costs and Forgone Care; Reinsurance; Patient Safety After Hospital Mergers

What Caught Our Eye: ACA Premiums; Excessive Cancer Care; Saving Lives With Policy; Horrifying Hospice Care; Cancer Drug Efficacy; and More

October 27, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. “When Silver Costs More Than Gold: How Trump’s Actions Have Scrambled Insurance Prices” Via New York Times — The rates for next year’s Obamacare plans are out, and they show how President Trump’s actions have scrambled the insurance marketplace. Usually, plans known as gold have higher monthly […]

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Guest Post: For the Love of a Friend

August 9, 2016/in Cancer News, Cancer Policy Blog Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

My dear friend Avery[1], a woman I’ve known since we were 10 years old (in 5th grade together) was diagnosed with inflammatory breast cancer (IBC) in 2006. Having observed my mother’s battle with breast cancer in the 1980s, I considered myself a veteran of the struggle. Times change. Diseases evolve. The intervening years—from the 80s […]

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Being Mortal Is Far From Being Morbid: Responding to FRONTLINE’s Profile of Surgeon Atul Gawande and End of Life Care

February 11, 2015/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Palliative Care, Quality Cancer Care, Shared Decision-Making, Survivorship Care NCCS News /by actualize

On public television stations nationwide, the award-winning FRONTLINE series aired a program on February 10th based on the work of noted surgeon and writer, Atul Gawande.  In addition to Gawande’s many clinical and surgical talents, he has the rare gift of writing articles and books for all of us, no matter what our level of […]

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https://canceradvocacy.org/wp-content/uploads/2015/02/agawande.jpg 321 699 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-02-11 16:58:102020-11-20 12:02:16Being Mortal Is Far From Being Morbid: Responding to FRONTLINE’s Profile of Surgeon Atul Gawande and End of Life Care

WCOE: Obama takes on Precision Medicine, Palliative Care ≠ Hospice, Quantity and Quality of Life, CLRC News, Medicare Payment Reform, and Breast Cancer Patient Communication

January 30, 2015/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Health Care Coverage, Palliative Care, Payment Reform, Quality Cancer Care NCCS News /by actualize

Don't miss President Obama speak on his #PrecisionMedicine Initiative at 11:10am ET → https://t.co/zcSZULoCno — White House OSTP 44 (@WHOSTP44) January 30, 2015 What is President Obama's 'precision medicine' plan, and how might it help you? https://t.co/T8sXHBGWm0 — Shelley Fuld Nasso (@sfuldnasso) January 30, 2015 Beautiful post by @drdonsdizon. Palliative care does not mean hospice […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2015-01-30 17:36:112015-01-30 17:36:11WCOE: Obama takes on Precision Medicine, Palliative Care ≠ Hospice, Quantity and Quality of Life, CLRC News, Medicare Payment Reform, and Breast Cancer Patient Communication

Guest Post: Forgotten Survivors—Supporting the Needs of Patients with Advanced Cancers

November 18, 2014/in Cancer News, Cancer Policy Blog Care Coordination, Care Planning, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

Guest post by Lillie D. Shockney, RN, BS, MAS, Director of Johns Hopkins Breast Center and Cancer Survivorship Programs. On November 19, 2014, NCCS will present the Catherine Logan Award for Service to Survivorship to Lillie at the Focus on the Care evening reception in Washington, DC.  Though more and more cancer patients are being diagnosed […]

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WCOE: Brittany Maynard’s Death with Dignity, Election Results and the ACA, and Susan Gubar’s “Not Talking About Medical Mistakes”

November 7, 2014/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Coordination, Palliative Care, Quality Cancer Care, Survivorship Care NCCS News /by actualize

Brittany Maynard, a 29-year-old woman with brain cancer who became an advocate for the “death with dignity” movement took her life this week. Marcia Angell wrote about “The Brittany Maynard effect: How she is changing the debate on assisted dying” in The Washington Post, as did Sarah Kliff in “Brittany Maynard and the debate about […]

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https://canceradvocacy.org/wp-content/uploads/2012/12/NCCS_Starburst_Thumbnail.jpg 125 125 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2014-11-07 12:15:032020-10-21 14:48:08WCOE: Brittany Maynard’s Death with Dignity, Election Results and the ACA, and Susan Gubar’s “Not Talking About Medical Mistakes”
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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
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    • Cancerversary
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute