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Posts

NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan

September 26, 2018/in Cancer News, Cancer Policy Blog, FDA, NCCS News, Policy Comments Financial Toxicity, Health Equity NCCS News, Policy Comments /by actualize

NCCS joined with other organizations of the Cancer Leadership Council (CLC) in commenting on the FDA Biosimilar Action Plan (BAP). The comment letter commended the FDA for the development of a plan that balances both innovation and competition. The letter stated that these products provide significant benefits to cancer patients, but that they also come at a significant expense to patients and the health care system. […]

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https://canceradvocacy.org/wp-content/uploads/2018/10/NCCS-Policy-Comments-FDA-bldg.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-09-26 13:26:122020-07-06 10:05:29NCCS Joins Cancer Leadership Council Recommendations to FDA Regarding the Biosimilar Action Plan

NCCS Statement on the Passage of the STAR Childhood Cancer Act and the Right to Try Act

May 25, 2018/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Clinical Trials NCCS News /by actualize

Silver Spring, MD – The National Coalition for Cancer Survivorship issued the following statement regarding passage of both the Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act (S. 292) and the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204). Both are now headed to the President’s desk […]

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https://canceradvocacy.org/wp-content/uploads/Fotolia_23428619_S-e1461260836640-1.jpg 833 833 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-05-25 16:22:532020-12-01 10:51:13NCCS Statement on the Passage of the STAR Childhood Cancer Act and the Right to Try Act

Health Care Roundup: 2018 Cancer Status Report; Childhood Cancer STAR Act Passes; “When a Rural Hospital Shuts Down;” and More

May 25, 2018/in Cancer News, Cancer Policy Blog Access to Care, Clinical Trials, Health Care Coverage NCCS News /by actualize

HEALTH CARE HIGHLIGHTS – Annual Cancer Status Report Released – On Tuesday, the Annual Report to the Nation on the Status of Cancer was released. This report is a collaborative effort of NCI, CDC, ACS, and NAACCR. The report includes mortality data through 2015. It shows that, from 1999 to 2015, overall cancer death rates decreased by 1.8 percent per year among men and by 1.4 percent per year among women. […]

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NCCS Joins Cancer Leadership Council to Oppose Right to Try Legislation in the House

May 22, 2018/in Cancer News, Cancer Policy Blog, Congress, FDA, NCCS News, Policy Comments Access to Care, Clinical Guidelines, Clinical Trials, Quality Cancer Care NCCS News, Policy Comments /by actualize

The National Coalition for Cancer Survivorship joined with other organizations of the Cancer Leadership Council (CLC) in a letter to House leadership to oppose House consideration of the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act (S. 204).The legislation passed the House on May 22 and goes to the President […]

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NCCS Joins Cancer Leadership Council to Oppose the Latest Version of Right to Try Act

March 13, 2018/in Cancer News, Cancer Policy Blog, NCCS News, Policy Comments Access to Care, Clinical Trials NCCS News, Policy Comments /by actualize

NCCS joined the Cancer Leadership Council to express serious reservations about the latest version of the Trickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act, released on March 10, 2018. We oppose the latest version of right to try legislation because it makes a hollow promise to patients and removes the […]

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NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation

March 5, 2018/in Cancer Policy Blog, Congress, FDA, NCCS News, Policy Comments Access to Care, Clinical Trials NCCS News, Policy Comments /by actualize

NCCS joined with colleagues in the Cancer Leadership Council to express serious reservations about proposed “right to try” legislation that will remove the Food and Drug Administration (FDA) from the approval process for patient access to an investigational therapy outside a clinical trial. NCCS does not believe that right to try legislation removing FDA from […]

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What Caught Our Eye: NCI Chief Sharpless Interviewed; Expert Patients; “Why We Didn’t Seek Right to Try”; Progress in Survivorship Care; and More

March 2, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Care Planning, Clinical Trials, Quality Cancer Care, Shared Decision-Making NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. – Health Insurance – “Bait And Switch: The Sneaky Way Your Employer Just Passed Healthcare Costs Onto You” By Peter Ubel, Forbes.com — With increasing frequency, employers are directing their workers to the kind of high deductible, high out-of-pocket insurance plans that leave workers financially responsible […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-03-02 17:26:372018-03-02 17:26:37What Caught Our Eye: NCI Chief Sharpless Interviewed; Expert Patients; “Why We Didn’t Seek Right to Try”; Progress in Survivorship Care; and More

What Caught Our Eye: Idaho Allows Insurers to Ignore ACA Rules; Op-ed: Right to Try a ‘Disaster in the Making’; Financial Toxicity; and More

February 2, 2018/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Clinical Trials, Drug Pricing, Financial Toxicity, Health Equity NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series. “Obamacare will survive as Republicans give up on repeal” | By Dylan Scott, Vox.com — The Affordable Care Act is going to survive. The 2010 health care law has slowly but surely moved out of the line of fire. President Trump barely mentioned it in his State of the Union address Tuesday night. At their annual retreat this week in West Virginia, top Republicans signaled that the repeal dream […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2018-02-02 17:09:062018-02-02 17:09:06What Caught Our Eye: Idaho Allows Insurers to Ignore ACA Rules; Op-ed: Right to Try a ‘Disaster in the Making’; Financial Toxicity; and More

NCCS Letter to HHS Highlights “Deep Reservations” Concerning Massachusetts 1115 Waiver

October 23, 2017/in Cancer Policy Blog, HHS, NCCS News, Policy Comments Access to Care, Affordable Care Act, Drug Pricing, Health Care Coverage NCCS News, Policy Comments /by actualize

The National Coalition for Cancer Survivorship (NCCS) sent a letter to Eric Hargan, Acting Secretary of the Department of Health and Human Services (HHS), to express “deep reservations” regarding the proposal by the Commonwealth of Massachusetts to amend its Section 1115 waiver. In the letter, NCCS states: Many cancer patients have been assured access to care through MassHealth, the state’s Medicaid program. We are concerned […]

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WCOE: Graham-Cassidy Repeal Plan Has Deep Cuts; Bipartisan ACA Hearings Set; Sticker Shock Over Leukemia Drug; New Palliative Care Study; & More

August 25, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Disparities in Outcomes, Drug Pricing, Financial Toxicity, Health Care Coverage, Health Equity, Palliative Care, Quality Cancer Care NCCS News /by actualize

What Caught Our Eye (WCOE), August 25, 2017 – What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. – “Cassidy-Graham Would Deeply Cut and Drastically Redistribute Health Coverage Funding Among States,” Via Center on Budget and Policy Priorities (CBPP) — The Cassidy-Graham plan would have much the same damaging consequences as […]

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https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-08-25 13:15:132017-08-25 13:15:13WCOE: Graham-Cassidy Repeal Plan Has Deep Cuts; Bipartisan ACA Hearings Set; Sticker Shock Over Leukemia Drug; New Palliative Care Study; & More
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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
    • Subscribe to NCCS Updates
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  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute