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In the May 22nd Health Affairs online blog, “Living My Life My Own Way,” Amy Berman writes about what she knows firsthand and what she has learned from many years of professional experience. And she writes and speaks about it so well, which is one of her many gifts. She was diagnosed with inflammatory breast cancer in October […]
I attended two different events in Washington, DC this week where the focus was on end-of-life care and the challenges of ensuring that people have quality care and dignity at the end of their life. First was the U.S. Senate Special Committee on Aging roundtable meeting entitled, “Continuing the Conversation: The Role of Health Care Providers […]
Last week, four members of the NCCS team traveled from our home office outside of DC to join our Breakaway from Cancer partners for eight stages of an outdoor festival at the Amgen Tour of California. Our work with Breakaway from Cancer is an opportunity to get the word out about the many resources that […]
In an essay in The New York Times, Dr. Kent Sepkowitz writes about the value of evidence-based medicine and the Cochrane Collaboration’s process of systematic review to assess the body of evidence on challenging medical questions and offer guidance for clinicians. Dr. Sepkowitz points out that skeptics of evidence-based medicine suggest that the practice of […]
In a series of Well Blogs in The New York Times in early 2011, Dr. Peter Bach wrote about the experiences he and his wife Ruth had when she was diagnosed with breast cancer. Through his honest, but sometimes raw observations about how the medical system and individual oncologists can help us manage a […]
Representative Lois Capps (D-CA) recently spoke about the importance of the Planning Actively for Cancer Treatment (PACT) Act and the need for quality cancer care and care coordination for Medicare beneficiaries. Research has confirmed that coordinated cancer care outlined in a written care plan — care that integrates active treatment and symptom management — improves […]
Why should patients care about how physicians are paid? Because the way we as a country, and Medicare as the largest payer, compensate physicians directly affects the care patients receive. Our current system is not sustainable for physicians, patients, or taxpayers. The manner in which Medicare currently reimburses for cancer care is unsatisfactory to all, […]
I recently attended the American College of Surgeons Commission on Cancer (CoC) Spring Meeting. The CoC membership includes Fellows of the American College of Surgeons, as well as representatives from 52 other member organizations. In 2010, NCCS became one of four patient advocacy organizations to serve as members of the CoC. These groups, worked closely […]
Long-Term Unemployment Issues for Some Breast Cancer Survivors A recent study led by Dr. Reshma Jagsi of the University of Michigan Health System suggests the need for further discussion surrounding one potential long-term side effect of cancer treatment—unemployment. Employment loss is a concern for many patients in active treatment, however the study found long-term unemployment […]
“What We Can Learn by Listening to Older Adults” Chris Langston, a program director at the John A. Hartford Foundation, penned a recent Prepared Patient Blog post that resides on the Center for Advancing Health (CFAH) website. It refers to what many of us have learned from our work in patient advocacy which points to the dilemmas for the […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute