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Several articles caught our eye this week about the complexities of our reimbursement system and the lack of incentives in our current system for the kind of care patients value and need – time with their physicians and help in coordinating their care among providers in a fragmented system. Coordinating care for people with cancer and […]
“When a picture of a butterfly appeared… On my mom’s hospital room door, I knew. The next day, My mom, a never-smoker, Passed away from lung cancer. Months later, I became a runner. I ran away from the grief. One day, I ran through a path that released butterflies. From that moment, I started running […]
In “Breast Cancer Chemotherapy Varies Widely: Study Raises Questions About Early Treatment Choices,” Dr. Elaine Schattner, contributor to Forbes, directs readers to a recently released study that compares the risk of hospitalization between patients with early-stage breast cancer who received different chemotherapy regimens. The study also presented that the six most commonly administered chemotherapy regimens […]
Recently we were reminded of the importance of the Planning Actively for Cancer Treatment (PACT) Act, H.R. 2477 as we participated in the Lymphoma Research Foundation’s (LRF) Lymphoma Education and Advocacy Partners (LEAP) webinar focused on survivorship and care coordination. NCCS has identified the PACT Act as one of our primary public policy priorities as […]
In “Living with Cancer: Difficult Choices,” another installment in her series in The New York Times, Susan Gubar writes about the difficulty of deciding between treatment options when there is no obvious answer. Even patients who have a strong understanding of their disease may lack the expertise to evaluate different options, particularly when the options […]
In two America Tonight segments entitled, “Is America treating cancer the wrong way?” Michael Okwu of Al Jazeera America delves into the cost of cancer care and an experiment in delivering care differently to reduce costs and improve quality for patients. Okwu interviews Dr. Arnie Milstein, director of the Stanford Clinical Excellence Research Center (CERC) […]
The National Coalition for Cancer Survivorship (NCCS) commends the Food and Drug Administration (FDA) for taking critical steps to ensure that the promise of personalized cancer medicine is realized and that cancer patients can rest assured that they are receiving treatments consistent with their diagnoses. Today, FDA notified Congress that it will issue a draft […]
As avid followers of Susan Gubar’s series in The New York Times on living with cancer, we read her most recent installment, “Living with Cancer: A Tour of Hospice” with interest. She described her fear of the pain, anxiety, and dementia that can accompany dying and her desire to avoid excessive treatment at the end of life. […]
Living with, through, and beyond a cancer diagnosis– In 1986, the founders of NCCS saw a need for language that truly told the story of life after a cancer diagnosis. At the time, there were a growing number of people living beyond their cancer diagnosis and treatment. Many of them were experiencing an array of […]
Discussions about the costs of cancer treatment and how we pay for cancer care dominated many of the cancer policy stories that caught our eye this week. In a Washington Post article from the Wonkblog, Jason Millman outlines some of the troubling statistics that project a significant increase in the costs of cancer care, as […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute