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Health Care Roundup: Drug Pricing, “Surprise Billing” Bills Advance; “Rebuilding” After Diagnosis; Study on Depression in Lung Cancer Patients; More

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House Members Solicit Public Input on “Cures 2.0” Bill – Representatives Fred Upton (R-MI) and Diana DeGette (D-CO) released a request for public input on a potential new bill they are calling “Cures 2.0” which would build on the 21st Century Cures Act. The duo says this legislation would focus on improving patients’ access to digital health products and new medical therapies. The bill would speed up insurance coverage by Medicare, Medicaid, […]

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Health Care Roundup: Metastatic Breast Cancer Awareness; More on “Junk Insurance;” Reviewing Effects of California’s Surprise Billing Law; More

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Ads Offering Bare-Bones Coverage are Everywhere – This Axios article highlights the growing trend of plans being advertised across the internet as “Trumpcare” plans. The problem? “Trumpcare doesn’t exist, and many of these advertised plans offer bare-bones coverage.” “It’s impossible to expect consumers to discern between the good guys and the con artists,” said Sabrina Corlette, a health insurance researcher at Georgetown University. “And […]

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Remembering Jennifer Friar Groves

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By CEO Shelley Fuld Nasso — I’d like to share the story of my dear friend, Jennifer Friar Groves, who died earlier this month at the age of 32 from metastatic breast cancer. She gave me her permission to share her story, and in fact, she desperately wanted her story to be shared. Jennifer was diagnosed with breast cancer in April 2016 at the age of 29. She lived in Booneville, Mississippi, in northern Mississippi near Tupelo. She was too young for regular […]

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What Caught Our Eye: Multiple Proposals Continue to Weaken ACA Patient Protections; Breast Cancer Cost Survey; Editing Genes to Treat Cancer

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What Caught Our Eye is our week-in-review blog series — “Understanding Short-Term Limited Duration Health Insurance” — Karen Pollitz, Kaiser Family Foundation — The Health and Human Services Department published new rules Tuesday that expand access to short term health plans that exclude patients with preexisting conditions and don’t cover basic services like prescription drugs.

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What Caught Our Eye: GOP Targets Employer Mandate, Hospitals Create Non-Profit Drug Company, Sex After Cancer, “Paperwork Paralysis”

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What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. “Obamacare didn’t get repealed — so why did the uninsured rate still go up?” — The uninsured rate went up in 2017, new Gallup data shows — the first time this has happened since the Affordable Care Act’s coverage expansion took effect. This works out to an estimated 3.2 million fewer Americans […]

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Kirby Lewis: My NCCS CPAT Symposium and Hill Day Experience

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Through my association with Living Beyond Breast Cancer, I was invited to attend a workshop Symposium with the National Coalition for Cancer Survivorship. The CPAT Symposium was held just steps away from Capitol Hill at the Washington Court Hotel. It was a great, incredibly informative, and intensive 2-day training session. CPAT members hailed from all over the country, with all types of cancer. In total, approximately 65 people […]

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What Caught Our Eye: Only 31% View AHCA Favorably, Immunotherapy Hope & Hype, Male Breast Cancer, the Stigma of Lung Cancer

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What Caught Our Eye (WCOE), June 2, 2017: “Kaiser Health Tracking Poll Shows Americans View AHCA Unfavorably” — With Congress currently discussing the American Health Care Act (AHCA), a plan that would repeal and replace the 2010 health care law, this month’s Kaiser Health Tracking Poll finds that more Americans have an unfavorable view of the plan than a favorable one (55 percent vs. 31 percent, respectively). […]

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What Caught Our Eye: ‘Extremely High Premiums’ for the Sick, AHCA News, FDA Aims to Control Rx Pricing, & More

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What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. Via Kaiser Health News — “The Republican overhaul of the federal health law passed by the House this month would result in slightly lower premiums and slightly fewer uninsured […]

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What Caught Our Eye: AHCA Analysis, Medicaid Caps, Obamacare Helped Early Detection, ESPN’s Holly Rowe, Counseling Improves Care Planning

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What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. In the Spotlight – Via Modern Healthcare: “Up to 6.3 million people could end up paying substantially higher premiums if a bill similar to the House’s Obamacare replacement becomes law, according to the Kaiser Family Foundation.” […]

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Mommy, Where’s Your Hair? (And Other Questions I Faced as a Parent with Cancer)

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It’s one thing to have cancer, and quite another to have children witness it. At age 37, I was diagnosed with Stage IV inflammatory breast cancer; I had a large tumor in my left breast, and the cancer had spread to lymph nodes and a rib. And I had a 14-month-old son and a 4-year-old daughter. Parenting with cancer is sadly not an uncommon phenomenon; […]

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