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actualizedevs2017-05-05 16:39:072017-05-05 16:39:07What Caught Our Eye: House Passes ACA Repeal, Faces Senate Hurdles; Risky Prostate Cancer Treatment; Medical Debt; ‘Right to Try’; Rx PricingNCCS is now Cancer Nation. Find out more about our next chapter. Join Us
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actualizedevs2017-05-05 16:39:072017-05-05 16:39:07What Caught Our Eye: House Passes ACA Repeal, Faces Senate Hurdles; Risky Prostate Cancer Treatment; Medical Debt; ‘Right to Try’; Rx Pricing
NCCS Joins Cancer Organizations to Express Opposition to the American Health Care Act
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders…

Poor Amendments Cannot Fix A Bad Bill
By Ben Fishman, NCCS Board Member—Three years ago this week, a specially-trained neurosurgeon opened up my scalp, and for next 12 hours, he delicately resected as much of a golf-ball sized tumor as possible without permanently damaging the area of my brain that controls speech and fine motor skills. The fact that I can type this article on a normal keyboard and read it aloud is a testament to the doctor’s skill. Without him, or the team who supported the procedure [...]

ACA Update | April 28, 2017: AHCA 2.0 Is Released (Worse for Patients than the Original Bill)
As we previously reported, the American Health Care Act (AHCA) – the effort to replace the Affordable Care Act – was not even brought to a vote in the House of Representatives before the spring Congressional recess. Members of Congress confirm that advocates who opposed the AHCA were key to the failure of the original bill. Earlier this week, the full text of an amendment to the AHCA was published and is now being considered [...]

What Caught Our Eye: A Story of Two Survivors’ Enduring Friendship; GOP Still at Odds on Healthcare; Living with an Ostomy; The Perils of Hype in Cancer
What Caught Our Eye is our week-in-review blog series.“This is a story of survivors — of patients who were expected to die more than two decades ago but didn’t.” STAT News’ Bob Tedeschi provides an in-depth look Dr. Brian Druker and three of his patients, including Doralee Mortensen and Judy Orem, who became best friends after meeting in the clinical trials for the cancer drug Gleevec in the late 1990s.

Pre-Existing Conditions and High Risk Pools: A Cancer Survivor’s Experience Purchasing Insurance Before the ACA
My story began ten years ago in April when I was diagnosed with Stage III colon cancer. The treatments were successful in that the cancer cells were eliminated, but my liver was damaged by the toxic effects of the chemotherapy and the radiation. My company was very supportive and I continued to work through my long recovery period. But after several years I found that the travel demands of my job were taking too great [...]

ACA Update | April 21, 2017: House GOP Readies a Revised Health Care Bill
“Healthcare is not dead, we’re still working on it.” – Paul Ryan | During recess this week and last, Members of Congress continued to hear from constituents at town hall events where a major focus has been on health care and backlash against efforts to repeal the Affordable Care Act. Meanwhile, the conservative House Freedom Caucus has been working with moderate Republicans to come up with an amendment to add to the [...]

What Caught Our Eye: A New GOP Health Plan, Looming Uncertainty for Insurers, Sharing Genetic Cancer Risks with Children, and More
Trumpcare is back. And worse than ever. — Via Vox.com — “House Republicans are floating a new amendment to their health care bill — one that would likely cause even more Americans to lose coverage than the last version. Leaders of the staunchly conservative Freedom Caucus and the more moderate Tuesday Group have reportedly hashed out a proposal that would let some states ditch key Obamacare policies, such as the [...]

