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NCCS - National Coalition for Cancer Survivorship
  • About
        • About Us

        • NCCS is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how NCCS’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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        • Make A GiftSupport our mission of quality cancer care for all with a gift to NCCS.
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    • NCCS News
    • Advocate SpotlightEach month, NCCS highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how NCCS and others define quality.
        • Access to CareNCCS believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. NCCS works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessNCCS advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead NCCS’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead NCCS statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with NCCS.

        • Join NCCS

        • Cancer Policy and Advocacy Team (CPAT)CPAT is a program for survivors and caregivers to learn about pressing issues that affect quality cancer care, in order to be engaged as advocates in public policy.
        • Elevating SurvivorshipA patient-led initiative — NCCS mentors advocates (Elevate Ambassadors) to fill vital gaps in survivorship care in their community.
        • Survivorship ChampionsAn NCCS program for clinicians and researchers who are interested in improving care for cancer survivors.
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from NCCS and other leading cancer organizations.
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        • NCCS conducts an annual State of Survivorship Survey, in partnership with Edge Research, to delve into the cancer patient and survivor journey. This study captures a range of perspectives to better understand how NCCS can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
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        • Resources

        • NCCS provides a wide variety of resources for both patients and caregivers.

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        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
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ProtectOurCare 1024px

ACA Update | June 2, 2017: AHCA is Widely Unpopular, Senate Continues Negotiations

June 2, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS News

AHCA

Prior to the Affordable Care Act (ACA), cancer survivors were at the mercy of the health care system, often forced to pay exorbitant premiums or simply denied coverage altogether. Today, America’s 16 million cancer survivors benefit from the ACA’s patient protections that are critical to providing them with quality, affordable, and accessible health care coverage. NCCS is actively engaged in advocating to ensure this unprecedented access for cancer patients and providers continues.
During meetings with Senate offices this week, NCCS learned that negotiations continue and a consensus on the Senate version of the AHCA has yet to be struck among Republicans in the chamber. However, we also learned alarming news that the Senate version is likely to be very close to the version the House passed in early May.

Anything that remotely resembles the AHCA would be catastrophic, and we cannot allow such a bill to move forward in the Senate. While many Republican members from Medicaid Expansion states expressed early on that they rejected the AHCA because of its devastating cuts to the program, cancer survivors must keep the pressure on them to keep that promise. The AHCA would be devastating for cancer patients as it would allow states to opt out of Essential Health Benefits (which include services such as chemotherapy, hospital visits, and prescription drugs) and community rating, essentially gutting protections for pre-existing conditions. Cancer survivors cannot afford to go back to the days before ACA, when access to quality and affordable health care were out of reach for far too many Americans.

Not only did the AHCA receive a poor score from the Congressional Budget Office, it’s also polling very poorly among the public. A Kaiser Family Foundation poll released recently reported that 55% have an unfavorable view of the AHCA. The American public knows this bill is bad, especially for those who are sick or older. But Congress needs to hear this message from their constituents.

Poll: 55% of the public holds an unfavorable view of the House ACA repeal/replace bill; 31% view it favorably https://t.co/mtmLxlQ6t4 #AHCA pic.twitter.com/wDyOp5J3ZA

— KFF (Kaiser Family Foundation) (@KFF) June 1, 2017

Since there have been no public hearings on the AHCA and no patient involvement in crafting the bill, it is important that your voice is heard.

The coming weeks will be a critical time to meet with your Members of Congress, call their offices using our toll-free number (844) 257-6227, attend town halls, and make noise about the fact that the AHCA would be terrible for patients and does not protect individuals with pre-existing conditions.

To learn how you can get more involved in this effort, visit the NCCS Protect Our Care webpage. If you have any questions about advocacy, please contact Lindsay Houff at lhouff@canceradvocacy.org.


Related Post

https://canceradvocacy.org/blog/aca-update-may-26-2017/


Tags: aca update, affordable care act, AHCA, pre-existing conditions
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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

Join CPAT

The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute