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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
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        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
        • The 1986 ClubMake a monthly commitment to support Cancer Nation, empower cancer survivors, and advance public policy.
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        • Ways to GiveLearn about other ways you can contribute to Cancer Nation such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
    • Newsletter: Cancer Nation News
  • Policy

        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved

        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.

        • Connect with Us

        • Subscribe to Cancer Nation Updates
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        • The 1986 Club
  • Survivorship Survey

        • Cancer Nation Survivorship Survey

        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
        • 2025 Survivorship Survey
        • 2024 Survivorship Survey
        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist

        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians

        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources

        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources

        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 40th Anniversary Gala
    • 2026 Cancer Nation Summit
    • 2026 Cancer Nation Virtual Summit
    • Ellen L. Stovall Award
      • 2026 Winners
      • Awardees
      • Nominations
      • Committees
    • Igniting Hope Awards Reception
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
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News

NCCS New Team Members

NCCS Welcomes New Team Members

October 6, 2021
NCCS is pleased to announce four new staff members who recently have joined our organization. They bring essential skills and experiences…
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https://canceradvocacy.org/wp-content/uploads/NCCS-New-Team-Members.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-10-06 13:31:222021-10-06 13:31:22NCCS Welcomes New Team Members

NCCS Advocate Spotlight: Allison Rosen

October 5, 2021
Advocate Spotlight October 2021 | Allison Rosen After years of struggling with Crohn’s disease, Allison Rosen’s life was…
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https://canceradvocacy.org/wp-content/uploads/Allison-Rosen-advocate-spotlight.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-10-05 12:33:152021-10-06 13:19:55NCCS Advocate Spotlight: Allison Rosen
Advocate Spotlight Cora Fahy

NCCS Advocate Spotlight: Cora Fahy

September 1, 2021
Advocate Spotlight September 2021 | Cora Fahy As a physical therapist assistant specializing in lymphedema and breast cancer…
Read more
https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Cora-Fahy.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-09-01 12:30:502021-09-16 10:50:44NCCS Advocate Spotlight: Cora Fahy
2021 Stovall Awardees

NCCS to Recognize Deborah K. Mayer, PhD, RN and Kimberly D. Richardson with 2021 Ellen L. Stovall Award

August 26, 2021
NCCS is pleased to announce the 2021 winners of the Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care are Deborah…
Read more
https://canceradvocacy.org/wp-content/uploads/2021-Stovall-Awardees-FB2.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-08-26 13:09:512021-09-16 15:20:56NCCS to Recognize Deborah K. Mayer, PhD, RN and Kimberly D. Richardson with 2021 Ellen L. Stovall Award
NCCS CancerAdvocacy.org

NCCS Joins Statement of Support for COVID-19 Vaccination of All Health Care Workers

August 18, 2021
NCCS joined other patient, professional, and research organizations of the Cancer Leadership Council (CLC) in issuing a statement in…
Read more
https://canceradvocacy.org/wp-content/uploads/2019/10/Canceradvocacy-org-default-image.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-08-18 12:21:012021-08-18 16:47:39NCCS Joins Statement of Support for COVID-19 Vaccination of All Health Care Workers
Crystal Champion, PT, DPT

NCCS Advocate Spotlight: Dr. Crystal A. Champion

August 4, 2021
Advocate Spotlight August 2021 | Dr. Crystal Champion As a physical therapist, certified lymphedema therapist, principal of…
Read more
https://canceradvocacy.org/wp-content/uploads/Crystal-Champion-PT-DPT-Spotlight-Feat.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-08-04 12:56:572021-08-04 12:56:57NCCS Advocate Spotlight: Dr. Crystal A. Champion
HHS Health Human Services Humphrey Building

NCCS Comments on CMS-Proposed Benefit and Payment Parameters for 2022

July 29, 2021
NCCS submitted comments to the Departments of the Treasury and Health and Human Services and the Centers for Medicare and Medicaid…
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https://canceradvocacy.org/wp-content/uploads/HHS-Health-Human-Services-Humphrey-Building.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-07-29 09:50:372025-04-16 04:17:54NCCS Comments on CMS-Proposed Benefit and Payment Parameters for 2022
NCCS CancerAdvocacy.org

U.S. House Reps. DeSaulnier and Carter Introduce Bipartisan Cancer Care Planning and Communications Act (CCPCA)

July 15, 2021
Today, Representatives Mark DeSaulnier (D-CA) and Earl L. “Buddy” Carter (R-GA), co-chairs of the Congressional Cancer Survivors…
Read more
https://canceradvocacy.org/wp-content/uploads/2019/10/Canceradvocacy-org-default-image.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2021-07-15 14:19:082021-08-16 03:04:50U.S. House Reps. DeSaulnier and Carter Introduce Bipartisan Cancer Care Planning and Communications Act (CCPCA)
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News

  • News
    • Cancer Nation News Blog
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    • Issue Statements
    • Newsletter: Cancer Nation News
    • Cancer Convos Podcast

Latest News

a photo of a medical professional and patient discussing a care plan

New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
Read more
https://canceradvocacy.org/wp-content/uploads/doctor-patient-care-plan.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-10-22 12:38:192026-10-22 13:35:52New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
Read more
https://canceradvocacy.org/wp-content/uploads/Desa-Rhea-Jefferson_-Advocate-Spotlight-Blog-Banner.png 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-09-24 11:10:172026-09-24 11:10:17Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next
Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
Read more
https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

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  • About
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    • What is Advocacy?
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    • Contact Us
    • Make A Gift
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  • Policy
    • Quality Cancer Care
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute