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Cancer Nation (Formerly NCCS)
  • About

        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

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        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
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    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
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        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.

        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

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        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Surveys by Year

        • Clinician Perspective (2026)
        • 2025 Survivorship Survey
        • 2024 Survivorship Survey
        • 2023 Survivorship SurveyThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survivorship SurveyThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survivorship SurveyThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survivorship SurveyIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

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News

Kara Kenan Advocate Spotlight

Kara Kenan: Helping Others is the Greatest Reward of Advocacy

August 3, 2022
“Nobody wins afraid of losing” rings true for Kara Kenan, a breast cancer survivor. It’s her favorite line from Chris Stapleton’s…
Read more
https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Kara-Kenan.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-08-03 12:20:482022-08-03 12:20:48Kara Kenan: Helping Others is the Greatest Reward of Advocacy
Care and Career Support From Health Systems to Employers Webinar

Webinar – Care and Career Support: From Health Systems to Employers

August 3, 2022
NCCS hosted a webinar about the unique demands of caregiving in cancer and strategies that employers and health systems might engage…
Read more
https://canceradvocacy.org/wp-content/uploads/Care-and-Career-Support-webinar-post-1200px.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-08-03 10:24:462025-05-05 12:55:12Webinar – Care and Career Support: From Health Systems to Employers
Bethany Ross

Bethany Ross: Advocating for Quality Cancer Care Through Storytelling

July 7, 2022
Advocate Spotlight July 2022 - Bethany Ross Bethany Ross is a four-year neuroendocrine cancer survivor, or “cancer badass,”…
Read more
https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Bethany-Ross-web.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-07-07 16:53:522024-08-28 12:11:54Bethany Ross: Advocating for Quality Cancer Care Through Storytelling
Supreme Court of the United States

NCCS Reacts to Dobbs v. Jackson Women’s Health Organization Decision and Potential Impact on Access to Quality Cancer Care

July 1, 2022
Last week, the US Supreme Court issued a ruling that overturned Roe v. Wade, thus eliminating the constitutional right to abortion.…
Read more
https://canceradvocacy.org/wp-content/uploads/stock-Supreme-Court-SCOTUS.jpg 628 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-07-01 14:56:322022-07-01 15:07:19NCCS Reacts to Dobbs v. Jackson Women’s Health Organization Decision and Potential Impact on Access to Quality Cancer Care
Advocate Spotlight Wenora Johnson

Wenora Johnson: The Art of Caregiving: Connection and Kindness

June 1, 2022
Advocate Spotlight June 2022 - Wenora Johnson “One of the most important lessons I’ve learned as a caregiver is that the smallest…
Read more
https://canceradvocacy.org/wp-content/uploads/Advocate-Spotlight-Wenora-Johnson-wp-1200.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-06-01 13:00:282022-06-01 13:02:13Wenora Johnson: The Art of Caregiving: Connection and Kindness
Beyond the Checkbox: Cancer Survivorship Care Delivery in the Community - Dr. Crystal Labbato

Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting

May 20, 2022
Dr. Crystal Labbato joined NCCS to deliver a presentation about providing an effective model of cancer survivorship care in a community…
Read more
https://canceradvocacy.org/wp-content/uploads/Beyond-the-Checkbox-Crystal-Labbato.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-05-20 13:39:272025-05-05 13:05:22Webinar – Beyond the Checkbox: Delivering Meaningful Cancer Survivorship Care in a Community Setting
Michelle Mollica PhD Webinar Survivorship Needs for People with Metastatic and Advanced Cancers

Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers

May 6, 2022
Dr. Michelle Mollica, Senior Advisor at the National Cancer Institute's (NCI) Office of Cancer Survivorship, joined NCCS to discuss…
Read more
https://canceradvocacy.org/wp-content/uploads/Webinar-Michelle-Mollica-Metastatic-Survivorship-Needs.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-05-06 11:32:162025-05-05 13:05:29Webinar: Survivorship Needs for People Living with Advanced and Metastatic Cancers

Erin McGee Ferrell: The Art of Cancer Advocacy

May 5, 2022
Advocate Spotlight May 2022 - Erin McGee Ferrell Erin McGee Ferrell’s cancer was discovered during a traditional ceremony in a…
Read more
https://canceradvocacy.org/wp-content/uploads/Erin-McGee-Ferrell-Advocate-Spotlight-1200px.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2022-05-05 12:00:402022-05-05 12:03:28Erin McGee Ferrell: The Art of Cancer Advocacy
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News

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Latest News

a photo of a medical professional and patient discussing a care plan

New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

October 22, 2026
We have said it for years: when treatment ends, survivors need a plan. A written record of the care we received. A roadmap for what…
Read more
https://canceradvocacy.org/wp-content/uploads/doctor-patient-care-plan.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-10-22 12:38:192026-10-22 13:35:52New Research Links Survivorship Care Plans to Longer Lives. So Why Do So Few Survivors Get One?

Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next

September 24, 2026
Desa-Rhea Jefferson survived liver cancer at 3 and thyroid cancer as an adult. She says ringing the bell is a starting point, not a finish line. Read more.
Read more
https://canceradvocacy.org/wp-content/uploads/Desa-Rhea-Jefferson_-Advocate-Spotlight-Blog-Banner.png 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-09-24 11:10:172026-09-24 11:10:17Ringing the Bell Is Not the Finish Line: Desa-Rhea Jefferson on What Cancer Survivors Need Next
Image with Orchid background. Text reads: Cancer Nation Stovall Awards | 2026 Honorees | Patient Advocate Award - Erin Geddis Cummings, MSW, LCSW | Health Care Professional Award - Bradley J. Zebrack, PHD, MSW, MPH

Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

September 17, 2026
Cancer Nation is proud to announce the recipients of the 2026 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care: …
Read more
https://canceradvocacy.org/wp-content/uploads/Stovall-Award-Honorees-2026-web-featured.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png NCCS Staff2026-09-17 13:55:462026-09-22 13:46:42Cancer Nation to Recognize Erin Cummings and Bradley J. Zebrack with 2026 Ellen L. Stovall Award

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  • About
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute