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  • About
        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
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        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
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    • Cancer Nation News
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
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        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
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        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources
        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
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        • Order Our Resources
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NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

A graphic showing the Medicaid.gov website

Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery of reasonable and necessary care at an affordable cost. Such a system is critical to ensuring that people with cancer have access to high quality, affordable care from ...
Read More
Seniors discussing medical bill

NCCS Joins 35+ National Organizations in Opposing Harmful Medicaid Cuts

The National Coalition for Cancer Survivorship (NCCS) proudly joined more than 35 national patient advocacy organizations in signing a joint letter urging Congress to reject devastating cuts to Medicaid proposed in the FY25 budget reconciliation package. The letter, coordinated by the Partnership to Protect Coverage (PPC), highlights how these cuts ...
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flyer for nccs webinar with blue graphics and white text, reading NCCS webinar series, Understanding Medicaid: What Advocates Need to Know, with headshots of speakers Heather Saunders and Robin Yabroff. A yellow button reads Watch Now

Webinar – Understanding Medicaid: What Advocates Need to Know

The National Coalition for Cancer Survivorship (NCCS) presents “Understanding Medicaid: What Advocates Need to Know.” Designed for cancer survivors, caregivers, and health care professionals, this session sheds light on Medicaid's critical role in providing health coverage to 74 million Americans, including cancer survivors and their families. During this educational webinar, ...
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Supreme Court of the United States

NCCS Urges the Supreme Court of the United States to Protect the Rights of Individuals with Medicaid Coverage

Today, the National Coalition for Cancer Survivorship (NCCS), along with partner organizations, filed an amicus curiae brief with the Supreme Court of the United States (SCOTUS) in the case of Medina v. Planned Parenthood. The brief highlights the critical importance of Medicaid in disease prevention and treatment, as well as ...
Read More
Commuters are already moving about before dawn on the streets of Washington DC United States Capital City

National Patient Organizations United in Opposition to House Budget Resolution that Threatens Medicaid Coverage for Millions

The House of Representatives this week will consider a budget resolution instructing the House Energy and Commerce Committee to reduce spending by $880 billion, with most cuts anticipated to target Medicaid. These reductions would have a devastating impact on the nearly 80 million Americans who depend on Medicaid and the ...
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Medicaid Protect Letter Congress Blog

NCCS Urges President Biden and Congress to Support and Protect Medicaid

This week, NCCS joined with more than 30 patient advocacy organizations as part of the Partnership to Protect Coverage to urge President Biden and Congress to support and protect the Medicaid program during any upcoming fiscal discussions. The letter calls on the White House and Congress to reject changes to ...
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NCCS Pushes for Inclusion of Critical Health Care Provisions in Reconciliation Package

NCCS Pushes for Inclusion of Critical Health Care Provisions in Reconciliation Package

NCCS joined with other advocacy groups in sending letters to congressional leadership supporting the inclusion of several critical provisions in the reconciliation bill that Congress is currently negotiating. Specifically, NCCS expressed support for provisions that would permanently close the Medicaid coverage gap, make the enhanced advance premium tax credits (APTCs) ...
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HHS Health Human Services Humphrey Building

NCCS Comments on CMS-Proposed Benefit and Payment Parameters for 2022

NCCS submitted comments to the Departments of the Treasury and Health and Human Services and the Centers for Medicare and Medicaid Services (CMS) on the proposed Notice of Benefit and Payment Parameters (NBPP) for 2022, the annual rule governing core provisions of the Affordable Care Act (ACA), including the operation ...
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US Capitol Building

NCCS Joins Coalition Urging Congress to Improve Health Care Coverage Affordability and Access

NCCS joined the Partnership to Protect Coverage coalition in a letter urging Congress to pass legislation to address affordable health insurance premiums, out-of-pocket costs, expand Medicaid, and limit junk insurance plans. The letter was sent to Congressional leaders in both the House and Senate, and the White House and concludes ...
Read More
NCCS CancerAdvocacy.org

NCCS Joins Patient, Disability, and Health Care Organizations to Urge U.S. Supreme Court to Protect Medicaid and Rule Against Work Requirements

Loss of Patient Protections Would Raise Barriers to Health Insurance — Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for the Fifth Circuit in the case Texas v. United States, citing the devastating impact patients ...
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Latest News

A graphic showing the Medicaid.gov website

Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
https://canceradvocacy.org/wp-content/uploads/Stock-Medicaid-website-Adobe-927192378.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-06-04 12:56:142026-06-05 13:42:09Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors
Image with graphics and text that reads Cancer Nation Understanding Blood-Based Testing in Cancer Care | Watch Now | With Support From: Guardant Health Logo

Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
Read more
https://canceradvocacy.org/wp-content/uploads/Blood-Based-Testing-Webinar-post.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-29 11:28:002026-05-29 11:28:00Webinar – Understanding Blood-Based Testing in Cancer Care
a picture of susie leigh similing wearing a purple top. Words over the photo read In loving memory, Susie Leigh, Cancer Nation Co-founder, 1947-2026

Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
https://canceradvocacy.org/wp-content/uploads/Susie-Leigh-In-Memory-blog.jpg 900 1600 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-28 15:14:382026-06-04 14:32:40Remembering Susie Leigh: A Founder, a Force, and a Friend

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    • Order Our Resources
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  • Events
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute