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Cancer Nation (Formerly NCCS)
  • About
        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About Cancer Nation

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
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        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
        • The 1986 ClubMake a monthly commitment to support Cancer Nation, empower cancer survivors, and advance public policy.
        • Fundraise for Cancer Nation
        • Ways to GiveLearn about other ways you can contribute to Cancer Nation such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • Cancer Nation News Blog
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
    • Newsletter: Cancer Nation News
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.
        • Connect with Us

        • Subscribe to Cancer Nation Updates
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        • Survivor Stories
        • Cancerversary
        • Support Cancer Nation

        • Make A Gift
        • Fundraise for Cancer Nation
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        • The 1986 Club
  • Survivorship Survey
        • Cancer Nation Survivorship Survey

        • Cancer Nation conducts an annual Cancer Nation Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources
        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • 2026 Cancer Nation Virtual Summit
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Igniting Hope Awards Reception
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • 0

NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

378 RESULTS FOR: Cancer Nation News

Coronavirus feat

Coronavirus and Cancer Resources for Survivors

March 20, 2020
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
https://canceradvocacy.org/wp-content/uploads/2020/03/Coronavirus-feat.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2020-03-20 12:24:482020-07-06 09:54:22Coronavirus and Cancer Resources for Survivors
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ACA Update | June 9, 2017: Senate Finding Ways to Repeal ACA

June 9, 2017
There have been several key developments in the past week, starting with Republican leadership sharing a bill of the Senate’s version of the AHCA at a caucus luncheon on Tuesday. The public has yet to see the language being considered, as there have been no public hearings or input from experts in the health care or patient advocacy space. NCCS understands the bill will likely be quite similar to the House version. [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-06-09 17:24:202017-06-09 17:24:20ACA Update | June 9, 2017: Senate Finding Ways to Repeal ACA
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ACA Update | June 2, 2017: AHCA is Widely Unpopular, Senate Continues Negotiations

June 2, 2017
During meetings with Senate offices this week, NCCS learned that negotiations continue and a consensus on the Senate version of the AHCA has yet to be struck among Republicans in the chamber. However, we also learned alarming news that the Senate version is likely to be very close to the version the House passed in early May. Anything that remotely resembles the AHCA would be catastrophic, and we cannot allow such a [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-06-02 17:57:392017-06-02 17:57:39ACA Update | June 2, 2017: AHCA is Widely Unpopular, Senate Continues Negotiations
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ACA Update | May 26, 2017: CBO Confirms 23 Million More Uninsured Under AHCA, Trump Undecided on 2018 Subsidies

May 26, 2017
This week, the nonpartisan Congressional Budget Office (CBO) released their analysis on the impacts of the American Health Care Act (AHCA). As expected, the results were devastating. The AHCA would leave 23 million more Americans uninsured by 2026 than under the current law, the Affordable Care Act (ACA). The coverage [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-05-26 13:46:352017-05-26 13:46:35ACA Update | May 26, 2017: CBO Confirms 23 Million More Uninsured Under AHCA, Trump Undecided on 2018 Subsidies
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NCCS Statement on CBO Report of Revised American Health Care Act

May 24, 2017
NCCS today issued the following statement following the release of the Congressional Budget Office (CBO) report on the updated American Health Care Act. “Today’s CBO report shows what we already knew—that the American Health Care Act (AHCA) would be devastating for cancer patients, survivors, and their families,” said NCCS CEO Shelley Fuld Nasso. “The revised AHCA that was passed by the House [...]
https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-05-24 17:40:262017-05-24 17:40:26NCCS Statement on CBO Report of Revised American Health Care Act
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NCCS Sends Letter to Sen. Hatch on Health Care Reform Priorities

May 24, 2017
(NCCS) sent a letter to Sen. Orrin Hatch (R-UT), Chairman of the Senate Finance Committee, in response to his office’s request for input from stakeholders regarding health care reform. “As the Senate continues to discuss health care reform, and in light of the destructive American Health Care Act passed by the House, we must continue conveying the priorities of cancer patients and survivors,” said NCCS CEO Shelley Fuld Nasso. [...]
https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-05-24 12:58:592017-05-24 12:58:59NCCS Sends Letter to Sen. Hatch on Health Care Reform Priorities
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Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them

May 17, 2017
Last month, I had the honor of speaking at CancerCon, an incredible gathering of 650 adolescent and young adult (AYA) cancer survivors, their caregivers, and health care providers and advocates from across the country. Along with Kelsey Nepote, NCCS Advocacy Manager, and Kate Houghton, CEO of Critical Mass, we presented “From Patient to Advocate – Using Your Voice to Make Change.” We talked about the journey from [...]
https://canceradvocacy.org/wp-content/uploads/2017/05/Shelley-1200px-for-sm.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-05-17 17:09:392017-05-17 17:09:39Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them
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ACA Update | May 5, 2017: AHCA Passes in House, Now Faces Major Obstacles in Senate

May 5, 2017
Yesterday, the House of Representatives passed the American Health Care Act (AHCA), including an amendment authored by Congressman Tom MacArthur (R-NJ) and brokered with members of the Freedom Caucus, which would allow states to opt out of providing essential health benefits and community rating. Essential health benefits (EHBs) are ten services the ACA requires insurers to include in all plans, such as hospitalization [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-05-05 17:12:152017-05-05 17:12:15ACA Update | May 5, 2017: AHCA Passes in House, Now Faces Major Obstacles in Senate
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NCCS Joins Cancer Organizations to Express Opposition to the American Health Care Act

May 4, 2017
NCCS joined with patient advocacy organizations in the Cancer Leadership Council (CLC) in submitting a letter to Congressional leaders…
https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-05-04 11:02:022017-05-04 11:02:02NCCS Joins Cancer Organizations to Express Opposition to the American Health Care Act
Ben Fishman

Poor Amendments Cannot Fix A Bad Bill

May 3, 2017
By Ben Fishman, NCCS Board Member—Three years ago this week, a specially-trained neurosurgeon opened up my scalp, and for next 12 hours, he delicately resected as much of a golf-ball sized tumor as possible without permanently damaging the area of my brain that controls speech and fine motor skills. The fact that I can type this article on a normal keyboard and read it aloud is a testament to the doctor’s skill. Without him, or the team who supported the procedure [...]
https://canceradvocacy.org/wp-content/uploads/Ben-Fishman.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png actualizedevs2017-05-03 17:31:352020-11-23 11:38:23Poor Amendments Cannot Fix A Bad Bill
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ACA Update | April 28, 2017: AHCA 2.0 Is Released (Worse for Patients than the Original Bill)

April 28, 2017
As we previously reported, the American Health Care Act (AHCA) – the effort to replace the Affordable Care Act – was not even brought to a vote in the House of Representatives before the spring Congressional recess. Members of Congress confirm that advocates who opposed the AHCA were key to the failure of the original bill. Earlier this week, the full text of an amendment to the AHCA was published and is now being considered [...]
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Latest News

Michael Milken to Receive Cancer Nation’s Inaugural March Forward Award

September 2, 2026
Philanthropist and cancer survivor Michael Milken will receive the inaugural March Forward Award at Cancer Nation's 40th Anniversary…
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There Is No Right or Wrong Way to Grieve: Joslyn Trovati on Grief, Survivorship, and Whole Person Cancer Care

August 26, 2026
Joslyn Trovati is an oncology therapist and young adult cancer survivor who advocates for grief support and Whole Person Cancer Care. Read her story.
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Cancer Nation Joins Amicus Brief in Suit Over Vaccine Recommendations

July 24, 2026
Last week, Cancer Nation joined leading patient advocacy and public health organizations in supporting an amicus (or friend-of-the-court)…
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https://canceradvocacy.org/wp-content/uploads/Research-Group-Stock-Photo.jpg 600 1200 Elleni https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_40Yrs_Stacked_TwoColor-scaled.png Elleni2026-07-24 14:30:482026-07-24 14:33:17Cancer Nation Joins Amicus Brief in Suit Over Vaccine Recommendations

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute