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        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

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        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

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        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
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        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
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        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

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        • 2025 Survey Report
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        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
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        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

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        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
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        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
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        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

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581 RESULTS FOR: Cancer Policy Blog

Coronavirus feat

Coronavirus and Cancer Resources for Survivors

March 20, 2020
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
https://canceradvocacy.org/wp-content/uploads/2020/03/Coronavirus-feat.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2020-03-20 12:24:482020-07-06 09:54:22Coronavirus and Cancer Resources for Survivors
NCCS Starburst 250px

WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More

March 30, 2018
What Caught Our Eye (WCOE) is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. — “Why Some Americans Are Risking It and Skipping Health Insurance” — In tiny Marion, North Carolina, the Buchanans decided that $1,800 a month was too much to pay for health insurance, and are going without it for the first time in their lives. [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-03-30 17:29:362018-03-30 17:29:36WCOE: Health Care Access and Affordability; FDA’s Plans to Better Incorporate Patient Voice in Drug Development; Patient Portal Pitfalls; and More
Patient Assistance Programs

Patient Assistance Programs: Do They Help or Hurt?

March 26, 2018
By Rishi Sachdev and Yousuf Zafar, MD — New cancer drugs have improved prognoses for patients, but that improvement in effectiveness has come at a steep cost. The price tag of new anticancer drugs has been increasing at a significant pace, with the latest—Kymriah by Novartis—priced at $475,000 per treatment. These ever-increasing costs result in higher out-of-pocket costs for patients, which have been shown to worsen outcomes. [...]
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ACA Update March 23, 2018 | Congress Passes Spending Bill, Leaves Out ACA Market Stabilization

March 23, 2018
The spending bill, known as the omnibus, passed – but the push for ACA stabilization was not included. Beginning last summer, Senators Alexander and Murray were working on a bipartisan package that would aim to stabilize the ACA through cost-sharing reduction payments, outreach funding and reinsurance funding. In early December, Senator Collins pledged her vote on the Republican tax bill in exchange for ACA stabilization funding. [...]
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WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More

March 23, 2018
What Caught Our Eye (WCOE), is our week-in-review blog series. “Health insurers say the GOP-led Congress’ inaction on ACA stabilization legislation is sure to hurt consumers” Bruce Japsen, Forbes.com — After months of negotiating around an ACA stabilization package that was set to be included in this week’s spending bill, no agreement was made and the stabilization provisions were left out of the spending package all together. [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-03-23 15:52:342018-03-23 15:52:34WCOE: No Action on ACA Stabilization Bill; ‘Black Cancer Matters’; Risks of At-Home Genetic Testing; Hospital Payment Reform; and More
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NCCS Joins Cancer Leadership Council to Oppose the Latest Version of Right to Try Act

March 13, 2018
NCCS joined the Cancer Leadership Council to express serious reservations about the latest version of the Trickett Wendler, Frank…
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WCOE: HHS Hints at Lax ACA Regulation; Burden of High Drug Costs; FDA’s Gottlieb Blasts ‘Rigged Payment Scheme’; Home BRCA Testing; More

March 9, 2018
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. – “Trump Administration Blocks Idaho’s Plan to Circumvent Health Law” – While rejecting Idaho’s plan in its current form, Ms. Verma encouraged the state to keep trying, and she suggested that, “with certain modifications,” its proposal might be accepted. [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/NCCS-Starburst-250px.png 250 250 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-03-09 17:40:262018-03-09 17:40:26WCOE: HHS Hints at Lax ACA Regulation; Burden of High Drug Costs; FDA’s Gottlieb Blasts ‘Rigged Payment Scheme’; Home BRCA Testing; More
ProtectOurCare 1024px

ACA Update March 9, 2018 | HHS Says ‘Not Quite’ to Idaho’s Illegal Health Plans, Supports Expansion of Skinny Short-Term Coverage

March 9, 2018
As we reported recently, Idaho regulators announced they would allow the sale of insurance plans that don’t adhere to the Affordable Care Act’s (ACA) requirements and patient protections. Blue Cross of Idaho was planning to sell insurance plans that are priced based on applicants’ health status. But in a decision announced in a letter to Idaho’s governor yesterday, the Centers for Medicare and Medicaid (CMS) said that the administration [...]
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-03-09 16:13:182018-03-09 16:13:18ACA Update March 9, 2018 | HHS Says ‘Not Quite’ to Idaho’s Illegal Health Plans, Supports Expansion of Skinny Short-Term Coverage
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Reps. DeSaulnier and Poe Introduce Bipartisan “Cancer Care Planning and Communications Act”

March 8, 2018
Advocated for by NCCS, the bill would increase comprehensive cancer care planning for millions of Medicare beneficiaries.  Washington,…
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NCCS Policy Comments DOL Labor

NCCS Letter to DOL: Proposed Association Health Plans Rule “Will Increase Costs for Cancer Survivors and Others with Significant Health Needs”

March 8, 2018
The National Coalition for Cancer Survivorship (NCCS) submitted comments on the proposed rule on Association Health Plans (AHPs)…
https://canceradvocacy.org/wp-content/uploads/2018/03/NCCS-Policy-Comments-DOL-Labor.jpg 600 1200 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-03-08 13:05:512018-03-08 13:05:51NCCS Letter to DOL: Proposed Association Health Plans Rule “Will Increase Costs for Cancer Survivors and Others with Significant Health Needs”
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NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation

March 5, 2018
NCCS joined with colleagues in the Cancer Leadership Council to express serious reservations about proposed “right to try” legislation…
https://canceradvocacy.org/wp-content/uploads/2014/07/Fotolia_23428619_S-e1461260836640.jpg 515 1030 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2018-03-05 11:40:182018-03-05 11:40:18NCCS Joins Letter Expressing “Serious Reservations” About “Right to Try” Legislation
Page 16 of 59«‹1415161718›»

Latest News

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Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
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Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
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a picture of susie leigh similing wearing a purple top. Words over the photo read In loving memory, Susie Leigh, Cancer Nation Co-founder, 1947-2026

Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute