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Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer may return. New research is helping shed more light on what exactly “fear of cancer recurrence” means as a measurable patient outcome, psychological and emotional factors that may increase or decrease it, and […]
A Week of Proposals and New Regulations – This week, there were several regulations and proposals announced by the Trump Administration that would impact health care in the U.S. The announcement that made the biggest splash was revealed yesterday and would require drugs administered by physicians and paid for by Medicare, known as Part B drugs, to be priced based on the prices paid in other advanced industrial nations. The proposal […]
U.S. District Court Judge Richard J. Leon is expected to hear oral arguments today in Washington, D.C., from groups challenging a rule implementing changes to short-term, limited-duration (STLD) insurance plans. The hearing in the case Association for Community Affiliated Plans v. United States Department of Treasury will allow the plaintiffs to explain the devastating impact patients could face under the rule if bare-bones plans that do not comply […]
More than 25 patient and consumer groups representing millions of people nationwide with pre-existing health conditions issued the following statement in response to administration guidance issued on October 22nd that gives states greater ability to skirt patient protections included in the Affordable Care Act: “The guidance issued by the Administration gives states free reign to undermine critical protections for millions of Americans living with pre-existing conditions […]
The National Coalition for Cancer Survivorship (NCCS) is extremely concerned by the Centers for Medicare and Medicaid Services’ (CMS) new guidance document that significantly alters the standards that states must meet in order to be granted a waiver from certain Affordable Care Act (ACA) requirements. The Trump administration would permit states to revise the rules of their health insurance markets significantly, including to authorize […]
A focus of the National Coalition for Cancer Survivorship (NCCS) since it was founded over thirty years ago continues to be empowering patients to make informed decisions, and this includes transparency about the cost of health care. The Centers for Medicare & Medicaid Services (CMS) recently proposed that list prices be included in direct-to-consumer (DTC) television advertisements of drugs that are reimbursed by Medicare and Medicaid. […]
HHS Proposes Rule Requiring Drug Pricing in TV Ads – On Monday, Department of Health and Human Services (HHS) Secretary Alex Azar announced that HHS introduced a proposed rule to require direct-to-consumer television advertisements for prescription drugs include pricing information. According to the proposed rule, drugs paid for by Medicare or Medicaid must include the list price of the drug if it costs more than $35 for a month’s supply […]
NCCS & Patient Orgs Push Back on Short-term Plans — Recently, the Centers for Medicare and Medicaid Services (CMS) announced it would allow insurers to offer expanded short-term, limited duration plans, known as “junk insurance.” This action led NCCS to join several other national organizations in filing an amicus curiae brief in support of a lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus brief […]
The National Coalition for Cancer Survivorship (NCCS) joined 11 other patient groups in filing an amicus curiae (or “friend of the court”) brief in support of the lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus curiae brief explains to the court the potentially devastating impact of short-term health insurance plans on people with cancer and other Americans with serious and chronic diseases. […]
HEALTH CARE HIGHLIGHT – NCCS Submits Concerns to HHS Regarding New “Step Therapy” Plan – NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute