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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
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NCCS Webinar Video: “Understanding Fear of Cancer Recurrence”

Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer…
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Health Care Roundup: New Medicare Drug Pricing Proposal; New ACA Waiver Guidance; High Price of Precision Medicine; Midterms; More

A Week of Proposals and New Regulations – This week, there were several regulations and proposals announced by the Trump Administration that would impact health care in the U.S. The announcement that made the biggest splash was revealed yesterday and would require drugs administered by physicians and paid for by Medicare, known as Part B drugs, to be priced based on the prices paid in other advanced industrial nations. The proposal [...]
NCCS News Cancer Policy Matters

Patient and Consumer Groups Urge Federal Court to Issue Preliminary Injunction Against Short-Term Insurance Rule

U.S. District Court Judge Richard J. Leon is expected to hear oral arguments today in Washington, D.C., from groups challenging a rule implementing changes to short-term, limited-duration (STLD) insurance plans. The hearing in the case Association for Community Affiliated Plans v. United States Department of Treasury will allow the plaintiffs to explain the devastating impact patients could face under the rule if bare-bones plans that do not comply [...]
NCCS News Cancer Policy Matters

Coalition, Including NCCS, Urges CMS to Withdraw Guidance Threatening Millions of Americans Who Have Pre-Existing Conditions

More than 25 patient and consumer groups representing millions of people nationwide with pre-existing health conditions issued the following statement in response to administration guidance issued on October 22nd that gives states greater ability to skirt patient protections included in the Affordable Care Act: “The guidance issued by the Administration gives states free reign to undermine critical protections for millions of Americans living with pre-existing conditions [...]
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NCCS Concerned About New CMS Guidance on 1332 Waiver Process

The National Coalition for Cancer Survivorship (NCCS) is extremely concerned by the Centers for Medicare and Medicaid Services’ (CMS) new guidance document that significantly alters the standards that states must meet in order to be granted a waiver from certain Affordable Care Act (ACA) requirements. The Trump administration would permit states to revise the rules of their health insurance markets significantly, including to authorize [...]
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NCCS Expresses Reservations Regarding Effectiveness and Impact of New CMS Drug Pricing Proposal

A focus of the National Coalition for Cancer Survivorship (NCCS) since it was founded over thirty years ago continues to be empowering patients to make informed decisions, and this includes transparency about the cost of health care. The Centers for Medicare & Medicaid Services (CMS) recently proposed that list prices be included in direct-to-consumer (DTC) television advertisements of drugs that are reimbursed by Medicare and Medicaid. [...]
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Health Care Roundup: Drug Pricing in TV Ads; Even with Insurance, Serious Illness Can Mean Financial Distress; Fertility in Young Survivors; More

HHS Proposes Rule Requiring Drug Pricing in TV Ads – On Monday, Department of Health and Human Services (HHS) Secretary Alex Azar announced that HHS introduced a proposed rule to require direct-to-consumer television advertisements for prescription drugs include pricing information. According to the proposed rule, drugs paid for by Medicare or Medicaid must include the list price of the drug if it costs more than $35 for a month’s supply [...]
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Health Care Roundup: Patient Orgs Push Back on ‘Junk Insurance’; Rx ‘Gag Clause’ Bans; What Survivors Wish Others Understand; ACA Premiums; More

NCCS & Patient Orgs Push Back on Short-term Plans — Recently, the Centers for Medicare and Medicaid Services (CMS) announced it would allow insurers to offer expanded short-term, limited duration plans, known as “junk insurance.” This action led NCCS to join several other national organizations in filing an amicus curiae brief in support of a lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus brief [...]
NCCS News Cancer Policy Matters

NCCS Joins 11 Organizations in Filing Amicus Curiae Brief Supporting Lawsuit Challenging Short-Term Health Plans

The National Coalition for Cancer Survivorship (NCCS) joined 11 other patient groups in filing an amicus curiae (or “friend of the court”) brief in support of the lawsuit that challenges the regulation authorizing short-term health insurance plans. The amicus curiae brief explains to the court the potentially devastating impact of short-term health insurance plans on people with cancer and other Americans with serious and chronic diseases. [...]
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Health Care Roundup: Medicare ‘Step Therapy’ Concerns; Alternative Cancer Treatment Risks; Immunotherapy Scientists Win Nobel Prize; More

HEALTH CARE HIGHLIGHT – NCCS Submits Concerns to HHS Regarding New “Step Therapy” Plan – NCCS joined with other cancer organizations of the Cancer Leadership Council (CLC) in a letter to the Department of Health and Human Services (HHS) and the Centers for Medicare and Medicaid Services (CMS) regarding the new plan announced on August 7 that gives Medicare Advantage plans the option of applying step therapy for [...]

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Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.

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Link to: Cancer Policy and Advocacy Team (CPAT)

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The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.

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