• Link to Facebook
  • Link to X
  • Link to Youtube
  • Link to Instagram
  • Link to LinkedIn
  • Link to Rss this site
  • Store
  • Donate
  • About
        • About Us

        • Cancer Nation is the oldest cancer survivor-led non-profit organization in America. We advocate for quality cancer care for all touched by cancer.

        • About NCCS

        • Our Mission
        • What is Advocacy?Learn about the different types of cancer advocacy, from personal advocacy to public interest advocacy.
        • Our HistoryRead how Cancer Nation’s leaders coined the term “cancer survivor,” and established the nation’s first survivor-led non-profit organization.
        • Our Team
        • Financial Information
        • Employment
        • Contact Us
        • Support Our Mission

        • Make A GiftSupport our mission of quality cancer care for all with a gift to Cancer Nation.
        • The 1986 ClubMake a monthly commitment to support Cancer Nation, empower cancer survivors, and advance public policy.
        • Ways to GiveLearn about other ways you can contribute to Cancer Nation such as planned giving, employer matches, shopping online, and more.
        • Partnerships
  • News
    • Cancer Nation News
    • Advocate SpotlightEach month, Cancer Nation highlights a cancer survivorship advocate, sharing their story and the work they do in their communities.
    • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
    • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
  • Policy
        • Policy

        • Public policy is government action, in the form of legislation, regulation, funding, and other actions. Public policy affects people with cancer and the cancer care system in many ways.

        • Our Policy Priorities

        • Quality Cancer CareQuality cancer care is essential for patients. Learn how Cancer Nation and others define quality.
        • Access to CareCancer Nation believes cancer care and clinical trials should be affordable and accessible to everyone.
        • Health EquityThe cancer experience is not the same for everyone. Cancer Nation works on policy efforts to reduce disparities in outcomes.
        • Current Issues

        • Protecting Access to Medicaid for Cancer Survivors
        • Comprehensive Cancer Survivorship Act (CCSA)The CCSA is a large comprehensive bill introduced in Congress that aims to improve quality of care in all stages of a diagnosis.
        • Cancer Care Planning and Communications Act (CCPCA)CCPCA is a bill that would provide a billable Medicare service code for cancer care planning.
        • DIEP Flap AccessCancer Nation advocates for protection of access to DIEP Flap Breast Reconstruction Surgery for all breast cancer survivors.
        • Policy CommentsRead Cancer Nation’s comments to Congress, HHS, and other federal policymakers in Washington, DC on proposed rules and legislation.
        • Issue StatementsRead Cancer Nation statements on pressing issues and developments in Washington affecting cancer survivors and their families.
        • Quality Measurement Research
  • Get Involved
        • Get Involved

        • Whether you’re new to cancer advocacy or already have experience as an advocate, there are numerous ways you can get involved with Cancer Nation.

        • Join Cancer Nation

        • Cancer Nation AdvocatesA program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together.
        • Cancer Nation Leadership AcademyEmerging leaders improving cancer care in their communities.
        • Cancer Nation Corporate Council
        • Advocacy OpportunitiesThis page provides a list of upcoming events, webinars, conferences, and advocacy campaigns from Cancer Nation and other leading cancer organizations.
        • Connect with Us

        • Subscribe to Cancer Nation Updates
        • Follow Cancer Nation on Social Media
        • Survivor Stories
        • Cancerversary
        • Support Cancer Nation

        • Make A Gift
        • Ways to Give
        • The 1986 Club
  • Survivorship Survey
        • State of Survivorship Survey

        • Cancer Nation conducts an annual State of Survivorship Survey, in partnership with Edge Research, to explore the cancer patient and survivor journey. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

        • Reports by Year

        • 2025 Survey Report
        • 2024 Survey Report
        • 2023 Survey ReportThe 2023 Survey explored the caregiver experience for the first time, and features new data on the effect of cancer treatment on employment.
        • 2022 Survey ReportThe 2022 Survey found significant disparities in cancer care that impact people of color, young adults, women, and those with metastatic cancer, at higher rates.
        • 2021 Survey ReportThe 2021 Survey demonstrated that when patients receive quality care, have excellent support, and have financial resources, they are more likely to have positive outcomes.
        • 2020 Survey ReportIn the 2020 Survey, survivors reported that their care team is not helpful at addressing some common side effects of their cancer such as fatigue, anxiety, and depression.
  • Survivorship Checklist
        • Cancer Survivorship Checklist

        • The Cancer Survivorship Checklist is designed to be a simple, straightforward tool patients and caregivers can use as a guide for information critical to their care wherever they are on the cancer care continuum.

        • Start Your Cancer Survivorship Checklist
        • Survivorship Checklist Guide for Clinicians
        • Resources for Cancer Survivors

        • Survivorship ResourcesA collection of resources that provide information about navigating the cancer journey.
        • Cancer RehabilitationA supportive health care service that helps improve a person’s functioning during and after cancer treatment.
        • Integrative OncologyA field that combines traditional cancer treatments with therapies that support a person’s natural healing ability.
        • Palliative CareSpecialized medical care for people living with a serious illness that provides relief from the symptoms and stress to improve their quality of life.
        • Cognitive HealingA resource to support cognitive functioning after cancer treatment. Includes cognitive training strategies and tools for both adults and children.
  • Resources
        • Resources

        • Cancer Nation provides a wide variety of resources for patients, caregivers, and health care professionals.

        • Resources for Survivors and Caregivers

        • Health Insurance & Open Enrollment
        • Cancer Survival ToolboxA free, award-winning audio program created by leading cancer organizations to help people better meet & understand the challenges of their illness.
        • Ina® The Intelligent Nutrition Assistant
        • Telehealth
        • Care Planning for Cancer Survivors
        • Remaining Hopeful
        • Self Advocacy
        • Talking With Your Doctor
        • Taking Charge of Your Care
        • Order Our Resources
        • Resources for Health Care Professionals

        • Tools For Care Providers
        • Telehealth Project
        • Survivorship Champions Webinars
        • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • 0

NCCS is now Cancer Nation. Find out more about our next chapter.    Join Us

ProtectOurCare 1024px

ACA Update | April 10, 2017: New GOP Proposal Would Undermine Pre-Existing Condition Protections

April 10, 2017/in Cancer Nation News, Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Pre-Existing Conditions Cancer Nation News

AHCA

Prior to the Affordable Care Act (ACA), cancer survivors were at the mercy of the health care system, often forced to pay exorbitant premiums or simply denied coverage altogether. Today, America’s 16 million cancer survivors benefit from the ACA’s patient protections that are critical to providing them with quality, affordable, and accessible health care coverage. NCCS is actively engaged in advocating to ensure this unprecedented access for cancer patients and providers continues.

As talks of repeal and replace quickly resurfaced after the downfall of the American Health Care Act (AHCA), the House Republicans’ newest proposals are even more devastating for cancer patients than the AHCA would’ve been.

New repeal and replace proposals back already, would threaten coverage for pre-existing conditions. #Protectourcare https://t.co/3lLp5J1ekz

— NCCS (@CancerAdvocacy) April 4, 2017

The newest Republican health care proposals would eliminate even more patient protections, including the essential health benefits that require insurers to cover services such as chemotherapy, hospital visits, prescription drugs, and doctor visits. One of the most concerning proposals is to eliminate community rating within the ACA, which bars insurers from charging people with pre-existing conditions more than healthy individuals for the same insurance policy. Community rating is one of the fundamental provisions of the ACA that protects cancer survivors’ ability to purchase affordable insurance.

Protection for people with pre-existing conditions is seen as a requirement even by many who want to repeal the ACA. Recognizing this fact, Republicans on Thursday released text of an amendment that would set aside money for an “invisible” high risk pool to help lower premiums for sicker people, providing $15 billion for states to reimburse health insurers for covering those patients. The $15 billion would be spread across all states and over almost a decade, making it an insufficient sum. The Kaiser Family Foundation stated that, “It’s nowhere near enough money to cover a meaningful share of the claims for high-cost patients.”

But as we reported last week, it’s not just Congress who can impact the ACA – the administration has leverage to either strengthen or weaken the ACA marketplace through a number of ways. The administration could withhold cost-sharing subsidies which would wreak havoc on the marketplace and cause even more uncertainty for insurers. Outreach and enrollment assistance were critical to the success of previous enrollment periods. An administration that is not behind the ACA could scale back or eliminate support of enrollment assistance. In fact, in January, the Trump administration announced plans to eliminate advertising near the end of the enrollment period.

Opportunities for Advocates

Over the next two weeks, Congress will be on recess. This will present constituents and advocates with multiple opportunities to remind your elected officials that the majority of people across America oppose repealing the ACA. Members of Congress must hear this simple message: Do not take away our care. Stop trying to repeal the Affordable Care Act.

A major factor in the failure of the AHCA was the groundswell of support for the ACA and advocates making noise at town halls, rallies, and calling their members. Please continue your efforts to share your stories about how the ACA has helped you and how Republican proposals are not acceptable for cancer patients. Let’s put the pressure on Members of Congress again and protect our care.

NCCS is here to help.

  • Read our contact Congress tip sheet » [PDF]
  • Watch our most recent webinar on the ACA (embedded below), which includes a message from a Congressional staffer on how to contact your members.
  • Contact Lindsay Houff, Public Policy Manager at lhouff@canceradvocacy.org with any questions you may have, or for help with setting up a meeting with your Members of Congress.

NCCS Webinar: ACA Update (April 6, 2017)

Learn more about the ACA, including tips for contacting your lawmakers »


Tags: aca update, affordable care act, AHCA, Cancer Survivorship, pre-existing conditions, repeal and replace
Share this entry
  • Share on Facebook
  • Share on X
  • Share on WhatsApp
  • Share on LinkedIn
https://canceradvocacy.org/wp-content/uploads/2017/01/ProtectOurCare-1024px.jpg 512 1024 actualizedevs https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg actualizedevs2017-04-10 13:28:242017-04-10 13:28:24ACA Update | April 10, 2017: New GOP Proposal Would Undermine Pre-Existing Condition Protections

Latest News

A graphic showing the Medicaid.gov website

Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors

June 4, 2026
Cancer Nation strongly supports a health care system free of waste, fraud, and abuse. Health care resources must be directed to delivery…
Read more
https://canceradvocacy.org/wp-content/uploads/Stock-Medicaid-website-Adobe-927192378.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-06-04 12:56:142026-06-05 13:42:09Cancer Nation Statement: Medicaid Work Requirements Will Unfairly Burden Cancer Survivors
Image with graphics and text that reads Cancer Nation Understanding Blood-Based Testing in Cancer Care | Watch Now | With Support From: Guardant Health Logo

Webinar – Understanding Blood-Based Testing in Cancer Care

May 29, 2026
Cancer Nation's Webinar Series presents a clear, practical conversation about advances in blood-based testing and how they're shaping…
Read more
https://canceradvocacy.org/wp-content/uploads/Blood-Based-Testing-Webinar-post.jpg 675 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-29 11:28:002026-05-29 11:28:00Webinar – Understanding Blood-Based Testing in Cancer Care
a picture of susie leigh similing wearing a purple top. Words over the photo read In loving memory, Susie Leigh, Cancer Nation Co-founder, 1947-2026

Remembering Susie Leigh: A Founder, a Force, and a Friend

May 28, 2026
Susan (Susie) Leigh, BSN, RN-Retired — one of the founding members of Cancer Nation, a five-time cancer survivor, and one of the…
Read more
https://canceradvocacy.org/wp-content/uploads/Susie-Leigh-In-Memory-blog.jpg 900 1600 NCCS Staff https://canceradvocacy.org/wp-content/uploads/CancerNation_Logo_Stacked_TwoColor.svg NCCS Staff2026-05-28 15:14:382026-06-04 14:32:40Remembering Susie Leigh: A Founder, a Force, and a Friend

Take Action

Link to: Survivorship Champions

Get Involved in Research

Cancer Nation conducts an annual Survivorship Survey to explore how patients and survivors are living with, through, and beyond cancer. This study captures a range of perspectives to better understand how Cancer Nation can support its mission to advocate for quality cancer care for all.

Learn More and Request Data Here »
Link to: Cancer Nation Advocates

Join Cancer Nation Advocates

Cancer Nation Advocates is a a program that brings together individuals who care about cancer care to learn how policy shapes our health care system—and how we can improve it together

Learn More and Join »
Link to: Survivor Stories

Share Your Story

Cancer Nation represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.

Share Your Story »
  • About
    • Our Mission
    • What is Advocacy?
    • Our History
    • Our Team
    • Financial Information
    • Employment
    • Contact Us
    • Make A Gift
    • The 1986 Club
    • Ways to Give
    • Partnerships
  • News
    • Cancer Nation News
    • Advocate Spotlight
    • Policy Comments
    • Issue Statements
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Protecting Access to Medicaid for Cancer Survivors
    • Comprehensive Cancer Survivorship Act (CCSA)
    • Cancer Care Planning and Communications Act (CCPCA)
    • DIEP Flap Access
    • Policy Comments
    • Issue Statements
    • Quality Measurement Research
  • Get Involved
    • Cancer Nation Advocates
    • Cancer Nation Leadership Academy
    • Cancer Nation Corporate Council
    • Advocacy Opportunities
    • Subscribe to Cancer Nation Updates
    • Follow Cancer Nation on Social Media
    • Survivor Stories
    • Cancerversary
    • Make A Gift
    • The 1986 Club
    • Ways to Give
  • Survivorship Survey
    • 2025 Survey Report
    • 2024 Survey Report
    • 2023 Survey Report
    • 2022 Survey Report
    • 2021 Survey Report
    • 2020 Survey Report
  • Survivorship Checklist
    • Start Your Cancer Survivorship Checklist
    • Survivorship Resources
    • Cancer Rehabilitation
    • Integrative Oncology
    • Palliative Care
    • Cognitive Healing
    • Survivorship Checklist Guide for Clinicians
  • Resources
    • Cancer Survival Toolbox
    • Telehealth
    • Health Insurance & Open Enrollment
    • Care Planning for Cancer Survivors
    • Ina® The Intelligent Nutrition Assistant
    • Remaining Hopeful
    • Self Advocacy
    • Talking With Your Doctor
    • Taking Charge of Your Care
    • Order Our Resources
    • Tools For Care Providers
    • Telehealth Project
    • Survivorship Champions Webinars
    • Survivorship Checklist Guide for Clinicians
  • Events
    • 2026 Cancer Nation Summit
    • Igniting Hope Awards Reception
    • Ellen L. Stovall Award
      • 2025 Winners
      • Awardees
      • Nominations
      • Committees
    • Cancer Nation Webinars
    • Cancer Nation Policy Roundtable
      • Fall 2025
      • Spring 2025
      • Fall 2024
      • Spring 2024
      • Fall 2023
      • Spring 2023
  • Search
  • Cart

Charity Navigator Four-Star Rating

Cancer Nation Logo

Cancer Nation
8455 Colesville Road  |  Suite 1025 | Silver Spring, MD 20910
info@canceradvocacy.org | (877) NCCS-YES
Privacy Policy  |  Terms and Conditions

Copyright © 1995-2026 by Cancer Nation. National Coalition for Cancer Survivorship, NCCS, Cancer Survival Toolbox, Cancerversary, and related Logos are registered in the United States as trademarks of Cancer Nation (formerly the National Coalition for Cancer Survivorship).

Link to: What Caught Our Eye: Next Steps for the ACA; Gottlieb’s Confirmation; ASCO Statement on Right-to-Try; Gene Mutations in Childhood Survivors Link to: What Caught Our Eye: Next Steps for the ACA; Gottlieb’s Confirmation; ASCO Statement on Right-to-Try; Gene Mutations in Childhood Survivors What Caught Our Eye: Next Steps for the ACA; Gottlieb’s Confirmation;...NCCS Starburst 250px Link to: What Caught Our Eye: Costs of Care in a For-Profit System; New ACA Reporting; Precision Medicine; PSA Testing; End of Life Care Link to: What Caught Our Eye: Costs of Care in a For-Profit System; New ACA Reporting; Precision Medicine; PSA Testing; End of Life Care NCCS Starburst 250pxWhat Caught Our Eye: Costs of Care in a For-Profit System; New ACA Reporting;...
Scroll to top Scroll to top Scroll to top

This website uses cookies to improve user experience. By continuing to use this site, you agree to our Privacy Policy. Learn More.

Get Updates From Cancer Nation

Be the first to hear about cancer policy and survivorship issues! Subscribe and receive the twice-monthly Cancer Nation News, invites to webinars and events, and more.

  • This field is for validation purposes and should be left unchanged.

Connect With Us

Twitter     Facebook     Instagram     LinkedIn     YouTube

Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute