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What Caught Our Eye: A Story of Two Survivors’ Enduring Friendship; GOP Still at Odds on Healthcare; Living with an Ostomy; The Perils of Hype in Cancer

April 28, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act NCCS News /by actualize
What Caught Our Eye (WCOE), April 28, 2017
What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention.

In the Spotlight

“The survivors: How an experimental treatment saved patients and changed medicine”

Via Stat News — “This is a story of survivors — of patients who were expected to die more than two decades ago but didn’t.” STAT News’ Bob Tedeschi provides an in-depth look Dr. Brian Druker and three of his patients, including Doralee Mortensen and Judy Orem, who became best friends after meeting in the clinical trials for the cancer drug Gleevec in the late 1990s.

Powerful piece @Bobtedeschi! The survivors How an experimental treatment saved patients & changed medicine https://t.co/8SVG5HZGFM @statnews

— Kathy Giusti (@KathyGiusti) April 25, 2017


Affordable Care Act

“Moderate Republicans Balk at New Healthcare Bill”

Via MSNBC — Pennsylvania Rep. Charlie Dent says he doesn’t think his wing of the GOP will be swayed by proposed changes to the legislation.

Moderate Republicans balk at new healthcare bill: https://t.co/wfMLgimPoD pic.twitter.com/F2jh98WwFD

— MSNBC (@MSNBC) April 27, 2017



“What Changed in the Health Repeal Plan to Win Over the Freedom Caucus”

https://twitter.com/sangerkatz/status/857615585533755393

Via New York Times — “A month after pulling their health care overhaul bill from the floor, House Republicans are growing increasingly confident that they may have found a way to pass it.”


Cancer Policy

“Widespread Hype Gives False Hope To Many Cancer Patients”

How hype over new cancer drugs harms patients, caregivers. "I thought they were going to save him," @CNN https://t.co/nhashTv6Sj pic.twitter.com/rICRkyp2pL

— Liz Szabo (@LizSzabo) April 26, 2017

Via Kaiser Health News — “‘There is a disconnect between what researchers think is statistically significant and what is really significant for patients. Patients hear ‘progress,’ and they think that means they’re going to be cured,’ said Timothy Turnham, former executive director at the Melanoma Research Foundation.”


Coping with Cancer

“Dealing with an Ostomy”

Dealing With an Ostomy https://t.co/odKso1fUyW

— NYTimes Well (@nytimeswell) April 27, 2017

Via New York Times Well Blog — In a new post in her “Living With Cancer” series, our friend Susan Gubar sheds light on the difficulties of living with an ostomy.

“Six days after an unremarkable lumpectomy, I had rushed to the local hospital, not so much because of pain but out of concern. I had been eating and drinking as usual, but what was going in was not coming out.

I cursed my faulty plumbing — an operation for ovarian cancer had produced infections and then, in 2009, an ileostomy. I’m one of about half a million Americans whose body wastes are collected in disposable external pouches. And now the pouch was clean and empty, which was a problem.”


More From “What Caught Our Eye” »

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Tags: affordable care act, AHCA, precision medicine, Susan Gubar, What Caught Our Eye
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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • COVID-19 Resources for Cancer Survivors
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
    • Publications
      • Talking With Your Doctor
      • Self Advocacy
      • Employment Rights
      • Remaining Hopeful
    • Cancer Convos Podcast
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
    • Order Our Resources
  • News
  • Events
    • From Shadows to Life: A Biography of the Cancer Survivorship Movement
    • Ellen L. Stovall Award
      • 2020 Stovall Awards
      • Honorees
      • Sponsors
      • Committees
      • Reception
      • Nominations
    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute