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Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them

May 17, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Equity, Pre-Existing Conditions NCCS News /by actualize
Shelley Fuld Nasso

By Shelley Fuld Nasso

NCCS Chief Executive Officer

Last month, I had the honor of speaking at CancerCon, an incredible gathering of 650 adolescent and young adult (AYA) cancer survivors, their caregivers, and health care providers and advocates from across the country.

Along with Kelsey Nepote, NCCS Advocacy Manager, and Kate Houghton, CEO of Critical Mass, we presented “From Patient to Advocate – Using Your Voice to Make Change.” We talked about the journey from self-advocate to public policy advocate, and discussed the importance of survivors sharing their stories with policymakers to inform policy decisions.

We talked about specific public policy issues that affect AYA cancer survivors, first and foremost, the Affordable Care Act and its patient protections and subsidies to help cancer survivors purchase quality, affordable health insurance. The discussion was especially timely as Congress was again considering the American Health Care Act (AHCA). The fears and concerns expressed by the AYA survivors we met were palpable. They shared with us their worries about their ability to purchase insurance if protections for people with pre-existing conditions are eliminated.

Unfortunately, their fears are warranted.

The new version of the AHCA, with an amendment to appeal to those Members of Congress who believe the original legislation did not go far enough, is even worse than the original. It allows states to opt-out of the important patient protections currently contained in the Affordable Care Act.  That means for the millions of Americans in those states, it would gut protections against pre-existing conditions, remove the requirement that health plans cover essential health benefits, and allow insurers to charge people more based on their age and health status.  While numerous elected officials have said that protections for pre-existing conditions would be maintained, this bill clearly violates that promise.

The Center on Budget and Policy Priorities explained how the legislation would gut pre-existing conditions:

Waiving community rating means insurers could once again discriminate against people based on their medical history. Insurers could increase premiums by unlimited amounts for people with a history of cancer, hypertension, asthma, depression, or other conditions. If insurers charged people the full expected cost of their conditions, that would mean premiums exceeding $100,000 per year for people with metastatic cancer […]

The AHCA is a threat to the health and well-being for millions of cancer patients and survivors. With it passing the House of Representatives, it is critical that the entire cancer community reach out to Members of the Senate to let them know that we deserve better and that we will not be fooled by empty promises of “protections.”

It was an honor to speak to an active, engaged group of survivors and their loved ones. They are the very people who need to speak up, share their story, and let their Members of Congress know why long-term access to quality, affordable health insurance is so important to cancer survivors.

Looking forward to talking about moving from patient to advocate with @kelseynepote and @katehoughtonAYA this afternoon. #CancerCon pic.twitter.com/8tK7CbO6Dp

— Shelley Fuld Nasso (@sfuldnasso) April 29, 2017

Showing off the power pose for self advocacy with @kelseynepote of @CancerAdvocacy. #cancercon pic.twitter.com/P5mdd4yZWX

— Chris McCarthy (@McCarthyChris) April 29, 2017

This is epic! @CancerAdvocacy @heycriticalmass @sfuldnasso @kelseynepote @katehoughtonAYA #CancerCon #StupidCancer pic.twitter.com/eZh1udr4Sr

— Matthew Zachary (@MatthewZachary) April 29, 2017

Follow Shelley on Twitter: @sfuldnasso

Learn more about the ACA, the protections it provides, and advocacy tips »


Tags: Advocacy, affordable care act, AHCA, childhood cancer, financial issues, financial toxicity, pre-existing conditions, repeal and replace
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https://canceradvocacy.org/wp-content/uploads/2017/05/Shelley-1200px-for-sm.jpg 600 1200 actualize https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png actualize2017-05-17 17:09:392017-05-17 17:09:39Young Adult Cancer Survivors Worry What the AHCA Would Mean for Them
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  • About
    • Our Mission
    • Our History
    • Our Leadership
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Elevating Survivorship
    • Survivor Stories
    • Cancerversary
    • State Based Cancer Advocacy
  • Resources
    • Survivorship Checklist
    • Cancer Survival Toolbox
    • Telehealth
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      • Talking With Your Doctor
      • Self Advocacy
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      • Remaining Hopeful
    • Taking Charge of Your Care
    • Care Planning for Cancer Survivors
    • Tools For Care Providers
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    • Order Our Resources
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      • Honorees
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      • Committees
      • Reception
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    • Cancer Policy Roundtable
      • Fall 2020 Cancer Policy Roundtable
      • Spring 2020 Cancer Policy Roundtable
    • Cancer Policy and Advocacy Team (CPAT) Symposium 2020
    • Webinars
  • Contact Us

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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute