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Posts

Senate Votes Down Repeal Plan

July 28, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS News /by actualize

After a dramatic week in Washington, the Senate voted last night to reject the “skinny repeal” bill that would have destabilized insurance markets and resulted in 15 million fewer people insured as early as next year. The vote was the third repeal bill the Senate rejected this week. It is not clear what’s next, but for today, we can breathe a sigh of relief that millions of Americans will not lose coverage. In talking to cancer survivors, in person […]

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NCCS Statement on Senate’s Latest Health Care Reform Developments

July 19, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS News /by actualize

The National Coalition for Cancer Survivorship (NCCS) applauds the failure to pass the harmful Better Care Reconciliation Act (BCRA) in the Senate. BCRA would have been disastrous for millions of older, sick, and low-income Americans. We thank the Senators and governors who made the health care needs of their constituents their top priority. We especially appreciate Senators Susan Collins, Shelley Moore Capito, and Lisa Murkowski […]

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NCCS and 33 Cancer-Related Patient Advocacy and Professional Organizations Jointly Oppose Senate’s Revised BCRA

July 13, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS News /by actualize

Silver Spring, MD – NCCS joined 33 cancer-related patient advocacy and professional organizations in opposition to the Senate’s revised Better Care Reconciliation Act (BCRA). “The Senate’s BCRA, just as the House’s AHCA, is a direct threat to America’s 16 million cancer patients and survivors who rely on timely and uninterrupted access to comprehensive and affordable health care,” said NCCS CEO Shelley Fuld Nasso. […]

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Kirby Lewis: My NCCS CPAT Symposium and Hill Day Experience

July 6, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS News /by actualize

Through my association with Living Beyond Breast Cancer, I was invited to attend a workshop Symposium with the National Coalition for Cancer Survivorship. The CPAT Symposium was held just steps away from Capitol Hill at the Washington Court Hotel. It was a great, incredibly informative, and intensive 2-day training session. CPAT members hailed from all over the country, with all types of cancer. In total, approximately 65 people […]

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NCCS Statement on CBO Report of Senate’s “Better Care Reconciliation Act”

June 26, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS News /by actualize

Washington, D.C – The National Coalition for Cancer Survivorship (NCCS) issued the following statement in response to the Congressional Budget Office (CBO) analysis of the Senate’s “Better Care Reconciliation Act” (BCRA). The CBO reported that the BCRA would lead to 22 million more uninsured compared to current law. NCCS advocates from across the country will […]

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NCCS CPAT Member Jen Campisano’s Powerful Op-Ed Highlights Senate’s Secretive Health Care Repeal Process

June 26, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Pre-Existing Conditions NCCS News /by actualize

I have written before about being misdiagnosed with metastatic breast cancer, about the nearly five years I spent wondering whether I’d get to see my little boy grow up. Last year, my diagnosis was changed to early-stage breast cancer and an autoimmune disease that mimics cancer on scans. I appear to be in remission from both. I don’t know why I got a get-out-of-jail-free card. I’m not sure why I survived when so many of my friends will not. […]

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ACA Update | June 16, 2017: As Negative Analyses Pile Up, Senate GOP Continues Secret Health Care Negotiations

June 16, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS News /by actualize

As we reported last week, moderate Republicans in the Senate seem to be caving on their earlier promises to reject any bill that slashes Medicaid funding. Senators Collins and Capito have reportedly stated they would consider a “phasing out” of the Medicaid expansion program. However, lengthening the timeframe for ending the program does nothing to help the millions of people who depend on Medicaid for health insurance, […]

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What Caught Our Eye: AHCA Would Cause 50% Rise of Uninsured Children, Crowdfunding Health Care Tragedies, Rare Cancers, and More

June 16, 2017/in Cancer News, Cancer Policy Blog Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity, Pre-Existing Conditions NCCS News /by actualize

What Caught Our Eye is our week-in-review blog series, where we recap the cancer policy articles, studies, and stories that caught our attention. In the Spotlight: “New Analysis Finds Uninsured Rate for Kids Would Increase by 50% Under AHCA” – If the Affordable Health Care Act (AHCA) becomes law, the uninsured rate for children would increase by a whopping 50% by 2026 according to a new analysis by the Center on Budget […]

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NCCS Joins 120 Patient, Provider, and Consumer Organizations to Oppose Medicaid Cuts and Funding Caps

June 15, 2017/in Cancer News, Cancer Policy Blog, NCCS News, Policy Comments Access to Care, Affordable Care Act, Financial Toxicity, Health Care Coverage, Health Equity NCCS News, Policy Comments /by actualize

The National Coalition for Cancer Survivorship (NCCS) joined with 120 leading patient, provider and consumer organizations to express grave concerns about potential Senate actions on Medicaid. Together, the groups implored Senate leadership to protect the Medicaid program and oppose efforts to roll back Medicaid expansion or change Medicaid’s funding in a way that would harm patients and consumers. In a letter to both […]

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ACA Update | June 9, 2017: Senate Finding Ways to Repeal ACA

June 9, 2017/in Cancer News, Cancer Policy Blog, NCCS News Access to Care, Affordable Care Act, Health Care Coverage, Pre-Existing Conditions NCCS News /by actualize

There have been several key developments in the past week, starting with Republican leadership sharing a bill of the Senate’s version of the AHCA at a caucus luncheon on Tuesday. The public has yet to see the language being considered, as there have been no public hearings or input from experts in the health care or patient advocacy space. NCCS understands the bill will likely be quite similar to the House version. […]

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Latest News

NCCS Advocate Spotlight: Sharon Rivera Sanchez - Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

Sharon Rivera-Sanchez: Triple Negative Breast Cancer Survivor Finds Passion in Fitness and Advocacy

January 12, 2023
As a Triple Negative Breast Cancer survivor, Sharon turned her personal experience into a passion for advocacy and giving back to the community. When she received her diagnosis in May 2015, she remembers being in a state of shock and grief. She said, “You have to allow yourself time to breathe and grieve.”
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Rep. Debbie Wasserman Schultz introduces Comprehensive Cancer Survivorship Act at December 14, 2022 press conference.

NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act

December 14, 2022
Representative Debbie Wasserman Schultz (FL-23), a champion for cancer survivors and a survivor herself, held a press conference today…
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https://canceradvocacy.org/wp-content/uploads/CCSA-Blog-Featured-Image-1200-×-600-px-1.png 600 1200 Kara Kenan https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png Kara Kenan2022-12-14 16:03:462022-12-14 16:03:46NCCS Celebrates Launch of Comprehensive Cancer Survivorship Act
Alique Topalian, PhD, MPH Advocate Spotlight

Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

December 7, 2022
Alique was first diagnosed with Acute Myeloid Leukemia (AML) at the age of four. Her mother, Michele, knew something was wrong because “the light in her eyes was gone”. After being told by doctors that there was nothing wrong, her family was relentless until new blood work uncovered blast cells.
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https://canceradvocacy.org/wp-content/uploads/Alique-Topalian-Advocate-Spotlight.jpg 600 1200 NCCS Staff https://canceradvocacy.org/wp-content/uploads/2020/06/NCCA-Logo.png NCCS Staff2022-12-07 11:46:562022-12-07 11:48:28Alique Topalian: Childhood Cancer and the Frightening Realities of the Survivorship Journey

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  • About
    • Our Mission
    • Our History
    • The 1986 Club
    • Our Team
      • Policy Advisors
    • Employment
    • Partnerships
    • Financial Information
  • Policy
    • Quality Cancer Care
    • Access to Care
    • Health Equity
    • Redefining Functional Status (RFS)
    • 2022 State of Cancer Survivorship Survey
    • 2021 State of Cancer Survivorship Survey
    • 2020 State of Cancer Survivorship Survey
    • Cancer Care Planning and Communications Act (CCPCA)
  • Get Involved
    • What is Advocacy?
    • Cancer Policy and Advocacy Team (CPAT)
    • Survivorship Champions
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Harmar Brereton, MD

Founder
Northeast Regional Cancer Institute

 

“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”

—Karen M. Saunders
President, Northeast Regional Cancer Institute