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NCCS Elevate Ambassador Kimberly Richardson Launches Educational Program to Pair Scientists with Cancer Survivors

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Who better to help scientists research cancer than those who live with it?NCCS Elevate Ambassador Kimberly Richardson is partnering with University of Illinois College of Medicine students to launch an educational program for scientists and cancer survivors. “Survivors Advising Scientists Educational Program” is a model developed by Richardson while she participated in the National Coalition […]

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Health Care Roundup: Drug Pricing Bill Advances; ACA Open Enrollment & Premium Data; Cancer Overdiagnosis; “Medicaid Haves and Have-Nots”; More

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House Drug Pricing Bill Advances Out of Committee – The biggest health care news this week was the approval by the House Ways and Means Committee of H.R. 3, the Lower Drug Costs Now Act — Speaker Pelosi’s drug pricing bill. The bill advanced along party lines, with opponents citing a recent report from the Congressional Budget Office (CBO) that said the plan would harm drug innovation and reduce the number of new drugs coming to the […]

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Health Care Roundup: Cokie Roberts; Survivorship in the News; Junk Insurance Doesn’t Cover the Bills; Seeking Help and Encouragement; More

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Tennessee became the first state in the country to release a plan proposing to block grant its Medicaid program. Currently, the federal government pays each state “a certain percentage of the cost of care for anyone eligible for health coverage.” If changed to a block grant program, the federal government would “instead pay a state a lump sum each year while freeing it from many of Medicaid’s rules, including who must be allowed into […]

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NCCS Survivorship Survey: Cancer Survivors Share Their Top Concerns

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As part of its Elevating Survivorship initiative, NCCS fielded an online survey to understand cancer survivorship experiences and needs across a range of cancer patients. NCCS and our partner patient advocacy organizations promoted the survey to our constituents, and 1,380 cancer survivors responded. Some of the key findings include […]

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How the Patient Perspective Improved My Cancer Research and Changed My Career Path

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The first time I heard the words “you have cancer,” I was sitting in the doctor’s office with my best friend Katie. We were both 28 years old. Katie had a lump removed from her breast the Monday before Thanksgiving and I was home in New Jersey a few days before the holiday to hang out with her post surgery. We were supposed to go to DSW that Wednesday morning when she got a call that her doctor wanted to see her that day. I collapsed on the floor […]

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Health Care Roundup: ACA Erased Key Racial Cancer Disparity; ‘Survivor’ Debate; Isolation in Survivorship; Remembering Two Cancer Pioneers; More

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Today marks one year since the Trump administration announced it would not defend the ACA and that the entire law should be struck down, including protections for pre-existing conditions. In just one month, oral arguments are scheduled in the Fifth Circuit Court of Appeals. New research released last week at the annual American Society of Clinical Oncology (ASCO) meeting shows that the ACA’s Medicaid expansion reduced racial disparities […]

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Health Care Roundup: CMS Issues New Waiver Options to States to Undermine ACA; Open Enrollment Numbers Still Lag; Role of AI in Health Care; More

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CMS Issues New Waiver Options to Undermine the Affordable Care Act — This week, the Centers for Medicare and Medicaid Services (CMS) released four new waiver concepts that would allow states to pursue alternatives to the ACA. This announcement follows recent CMS guidance that outlined broad authority to the states to design their health care systems through a waiver of key ACA requirements and provides states with more specific […]

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NCCS Congratulates Nobel Prize in Medicine Winners for Cancer Immunotherapy Research

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Silver Spring, MD – The National Coalition for Cancer Survivorship (NCCS) issued the following statement after the announcement of this year’s winners for the Nobel Prize in Medicine, James P. Allison and Tasuku Honjo, whose research into the human immune system led to immunotherapy cancer drugs. “The National Coalition for Cancer Survivorship (NCCS) congratulates Dr. James Allison and Dr. Tasuku Honjo for their breakthrough research […]

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What Caught Our Eye: ACA Uncertainty, Coping Post-Treatment, Biden’s New Research Charity, Survivorship Care Plans

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A new study by the Associated Press-NORC Center for Public Affairs Research found that only 16% of Americans feel the ACA should be repealed immediately. | Last weekend, Republican members of Congress gathered in Philadelphia, PA for a party retreat to address some of the most pressing topics. However, one topic remains without consensus is how they will approach the repeal and replacement of the Affordable Care Act.

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Research Priorities for the Growing Population of Childhood Cancer Survivors

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In the aftermath of this year’s historic Presidential election, one fact remains unchanged: cancer continues to be a devastating array of diseases that has touched or will touch the lives of virtually every American. As a 25-year survivor of childhood cancer, I want to insure that the health challenges faced by patients like me are emphasized as research priorities for the coming years are established.

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