Introducing PatientTrueTalk.com – A Way for Advocates to Directly Help the Newly Diagnosed
Patient True Talk is the only patient-to-patient registry where patients and/or their caregivers can create profiles with as much information as they feel comfortable sharing, and find matching profiles based on algorithms created by some of the country’s top clinical oncologists. Patients/caregivers can also search along their diagnosis/treatment parameters, refining ...
NCCS Webinar Video: “Understanding Fear of Cancer Recurrence”
Those with a cancer experience are all too familiar with the anxiety that many experience wondering and waiting if and how cancer may return. New research is helping shed more light on what exactly “fear of cancer recurrence” means as a measurable patient outcome, psychological and emotional factors that may ...
What Caught Our Eye: ACA Uncertainty, Coping Post-Treatment, Biden’s New Research Charity, Survivorship Care Plans
A new study by the Associated Press-NORC Center for Public Affairs Research found that only 16% of Americans feel the ACA should be repealed immediately. | Last weekend, Republican members of Congress gathered in Philadelphia, PA for a party retreat to address some of the most pressing topics. However, one ...
Guest Blog: Example of a Case Impacted by the Help-Hurt Tool
Ms. M is an 81-year-old woman with Stage IV Pancreatic Cancer. She had remained in great health until her recent diagnosis, after which her energy had plummeted and she was spending over half the day in bed. Overwhelmed with the sight of their loved one losing her strength with each ...
Guest Blog: Improving How Doctors and Patients Have Difficult Conversations
Having cancer is terrifying. Period. Often, well-intended doctors find themselves unable to mitigate this panic. As humans we are challenged with this disease as old as our chromosomes, struck at the core of our identity, of our body, of our sense of self. We are removed from work, from a ...
WCOE: Effects of Financial Toxicity, Patient Database Helps Researchers Nationally, New CLRC Handbook for Survivors, Metastatic Cancer and Employment
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. #FinancialToxicity and high #costs of care create an undue physical & emotional burden on #cancer #survivors: https://t.co/5TecXglJjC— NCCS - National Coalition for Cancer Survivorship (@CancerAdvocacy) February 17, 2016 Ohio State-led ...
Twenty Years Later Blog Series: Introducing the Tenth Principle of the Imperatives for Quality Cancer Care
This month, as part of our 20 Years Later blog series, we are revisiting the tenth principle of the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The tenth principle states that “The provision of psychosocial services must be safeguarded and promoted. Persons diagnosed ...
Video Post: Dr. Bob Carlson and Joan McClure Discuss the National Comprehensive Cancer Network Guidelines
The National Comprehensive Cancer Network (NCCN) is a non-profit organization, created by an alliance of 26 leading cancer centers in the United States. At the National Coalition for Cancer Survivorship's 2015 Spring Cancer Policy Roundtable, Dr. Bob Carlson and Joan McClure of NCCN sat down with us to talk about ...
Guest Post by Dr. Patricia Ganz: What Cancer Patients and Their Families Can Do to Coordinate Post-Treatment Care
This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives), this month we will look at the ninth principle of Imperatives: “The responsibility for appropriate long-term medical care ...
WCOE: Hunting for Health Care Procedures, Surging Costs of Cancer Care, Getting to Doctors Appointments, Logistic Toxicity, and A Beautiful Piece by Oliver Sacks
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Sites that are like #Priceline for #healthcare give consumers more power, but brings more responsibility to consumer: https://t.co/JkgQ8yLeYR— Peter Ubel (@peterubel) August 12, 2015 Lots written lately about the soaring ...
