Tag Archive for: patient first

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Coronavirus and Cancer Resources for Survivors

Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment [...]
Patient Assistance Programs

Patient Assistance Programs: Do They Help or Hurt?

By Rishi Sachdev and Yousuf Zafar, MD — New cancer drugs have improved prognoses for patients, but that improvement in effectiveness has come at a steep cost. The price tag of new anticancer drugs has been increasing at a significant pace, with the latest—Kymriah by Novartis—priced at $475,000 per treatment. These ever-increasing costs result in higher out-of-pocket costs for patients, which have been shown to worsen outcomes. [...]
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Seeing the Bigger Picture of Survival Through Patient Advocacy

As patient advocates (as in most other things in life), it seems the more we learn, the more see what we don’t know. Whether we’re involved in promoting a patient-centered approach to research, direct care, survivorship, policy change or education, there’s a daily twist and update for us to wrap our brains around. And no matter which arena we find ourselves in, we are always looking for the endpoint: How far have we come in cancer care, and how does [...]
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The Dempsey Center – An Oasis for Anyone Facing Cancer in Maine

On behalf of the National Coalition for Cancer Survivorship (NCCS), I had the wonderful opportunity to visit Lewiston, Maine, in October for the annual Dempsey Challenge. Hundreds of cyclists rode between 10 and 100 miles to raise funds for the Dempsey Center. After attending the cancer survivors’ walk with hundreds of local survivors, patients and advocates, I had the chance to visit the Dempsey Center to see first-hand the incredible programs and services [...]
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ACA Update | March 24, 2017: Speaker Ryan Withdraws the AHCA

Today, Speaker of the House Paul Ryan withdrew the American Health Care Act (AHCA) when it became clear that he did not have the votes to pass it. In his press conference, he said that the Affordable Care Act (ACA) is the “law of the land for the foreseeable future.” The National Coalition for Cancer Survivorship (NCCS) strongly opposed the AHCA, which would have harmed millions of Americans, including cancer patients and [...]
NCCS Communications Director

The AHCA’s 52 Million Uninsured Is Not “Freedom”

Throughout the repeal and replace debate, NCCS has been meeting with Congressional offices to share our concerns from the cancer patient perspective. During one of those visits, we simply asked, “At the end of the day, what do you hope [the AHCA] accomplishes since there will be millions left uninsured?” Without hesitation, the staffer replied, “People will have the choice to go without insurance if they want to. It’s about freedom.” [...]
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87 Organizations Call on Congress to Protect Medicaid

Bethesda, MD – 87 organizations issued a letter today calling on Congress to take a hard look at the likely significant and life-threatening…
Scott Gottlieb

NCCS Statement on Nomination of Dr. Scott Gottlieb for FDA Commissioner

NCCS applauds the nomination of Dr. Scott Gottlieb for commissioner of the FDA. Dr. Gottlieb’s experience as a physician, a policymaker, and a patient uniquely qualifies him to lead the FDA at this important time. The agency confronts a rich pipeline of new products for cancer and other illnesses, and these products raise complicated scientific and clinical issues. FDA must also implement the provisions of the 21st Century Cures [...]
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ACA Update | February 3, 2017: Inadequate Replacement Plans

There remains no consensus among Republicans around a replacement plan for the ACA. In fact, more replacement proposals were presented, and after NCCS analyzed these proposals, we found that they do not come close to the level of protections the ACA provides currently and are therefore not adequate for cancer survivors.
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ACA Update | January 26, 2017: Watch Our ACA Webinar

President Donald Trump and the Republican leadership in Congress will soon be making good on their campaign promise to repeal the Affordable Care Act (ACA). While replacement plans have been proposed, there is no consensus on an alternative.
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So Many Reasons to Save the Affordable Care Act

For six years now, the Affordable Care Act (ACA) continues to successfully improve health care in America. It provided coverage to…

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