Guest Blog: Example of a Case Impacted by the Help-Hurt Tool
Ms. M is an 81-year-old woman with Stage IV Pancreatic Cancer. She had remained in great health until her recent diagnosis, after which her energy had plummeted and she was spending over half the day in bed. Overwhelmed with the sight of their loved one losing her strength with each ...
Guest Blog: Improving How Doctors and Patients Have Difficult Conversations
Having cancer is terrifying. Period. Often, well-intended doctors find themselves unable to mitigate this panic. As humans we are challenged with this disease as old as our chromosomes, struck at the core of our identity, of our body, of our sense of self. We are removed from work, from a ...
NCCS Comments on Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) Proposed Rule
NCCS submitted comments to the Centers for Medicare and Medicaid Services (CMS) on the proposed rule on the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA). Our comments focus on the role of consumers in identification, development, and endorsement of quality measures. As health care delivery and payment transition ...
News You Didn’t Hear From ASCO’s Annual Meeting
We are nearing the end of the 2016 ASCO Annual Meeting in Chicago and looking forward to Vice President Joe Biden's address on the National Cancer Moonshot Initiative this afternoon. The ASCO Annual Meeting provides updates on treatment advances and is followed by patients, physicians, biotech companies, and investors. Immuno-oncology ...
CMS’ Hospital Compare Star Ratings a Valuable Tool for Cancer Survivors to Make Informed Decisions About Their Care
The Centers for Medicare and Medicaid Services (CMS) announced that they are postponing the release of their Hospital Compare Star Ratings. This is an unfortunate delay, as these ratings will serve as a valuable tool for cancer survivors and their families to have the information necessary to make informed decisions ...
Guest Post: For the Love of My Mother
In 1983, my mother was diagnosed with breast cancer. I was in college at the time and flew home to be by her side when she awoke from a radical mastectomy. My mother was fearless in the face of a disease that few spoke about outside of very private spaces ...
WCOE: Genetic Testing for Cancer Survivors, Survivorship as a ‘Chronic Condition,’ Post-Treatment Neuropathy, Moonshot Funding
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. Insurer's approval of genetic testing for some cancers raises questions https://t.co/zxk1j3y7EG via @usatoday— NCCS - National Coalition for Cancer Survivorship (@CancerAdvocacy) February 3, 2016 Important question: Is Cancer Survivorship a ...
WCOE: ASCO Cancer Survivorship Symposium, Honoring Ellen Stovall at #SurvOnc16
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. ASCO Announces Creation of Ellen L. Stovall Award @canceradvocacy https://t.co/fRA0EncZHj #SurvOnc16— NCCS - National Coalition for Cancer Survivorship (@CancerAdvocacy) January 15, 2016 Mary McCabe, RN, MA ends presentation with future ...
WCOE: Current Status of State Medicaid Expansion, Diversity of Clinical Trials, ACA Enrollment Deadline Extended
What Caught Our Eye (WCOE) Each week, we recap the cancer policy articles, studies, and stories that caught our attention. UPDATED #MedicaidExpansion map: Includes status changes for #Virginia & #Utah https://t.co/03PuV7IlHO pic.twitter.com/bAtfVjd1vs— KFF (Kaiser Family Foundation) (@KFF) December 17, 2015 Via @NPR: Clinical Trials Still Don't Reflect The Diversity Of ...
Guest Post by Elizabeth J. Clark: Self-Advocacy is Critical to Quality Cancer Care
This post is part of our 20 Years Later blog series which examines progress in advancing the principles in the 1995 NCCS publication Imperatives for Quality Cancer Care: Access, Advocacy, Action, and Accountability (Imperatives). The tenth principle states that “The provision of psychosocial services must be safeguarded and promoted. Persons diagnosed with cancer ...
