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I recently attended the American College of Surgeons Commission on Cancer (CoC) Spring Meeting. The CoC membership includes Fellows of the American College of Surgeons, as well as representatives from 52 other member organizations. In 2010, NCCS became one of four patient advocacy organizations to serve as members of the CoC. These groups, worked closely […]
Long-Term Unemployment Issues for Some Breast Cancer Survivors A recent study led by Dr. Reshma Jagsi of the University of Michigan Health System suggests the need for further discussion surrounding one potential long-term side effect of cancer treatment—unemployment. Employment loss is a concern for many patients in active treatment, however the study found long-term unemployment […]
“What We Can Learn by Listening to Older Adults” Chris Langston, a program director at the John A. Hartford Foundation, penned a recent Prepared Patient Blog post that resides on the Center for Advancing Health (CFAH) website. It refers to what many of us have learned from our work in patient advocacy which points to the dilemmas for the […]
The National Coalition for Cancer Survivorship (NCCS) applauds the recent decision by Health and Human Services Secretary Kathleen Sebelius to initiate the Medicare Care Choices Model, a project to evaluate the impact of permitting Medicare patients to receive ongoing curative care while also receiving hospice care. “NCCS has focused its policy efforts on ensuring cancer […]
In a recent article posted online via CURE Magazine, Shelley Fuld Nasso describes experiences that underscore the need for improved communication between patients and providers, as well as the evidence-base that informs NCCS’ push for cancer care planning. The Institute of Medicine recently proposed a framework for quality cancer care that centers on engaged patients […]
A summary and overview of the recent “Putting the Cancer Patient First” meeting was posted via Oncology Times online. The meeting was co-hosted by NCCS and the American Enterprise Institute (AEI) on February 28, 2014 and convened leaders in health care policy to discuss issues that impact cancer patients and survivors. Read the summary >> The full meeting can also be […]
The National Coalition for Cancer Survivorship and the American Enterprise Institute (AEI) will co-host a symposium, “Putting the Cancer Patient First: Payment Reform in an Age of Personalized Cancer Care.” Friday, February 28, from 8:30 a.m. to 12:30 p.m. at the American Enterprise Institute Conference Center in Washington, DC. For those unable to attend, the event will be streamed […]
An article published in the current issue of the Journal of the American Medical Association (JAMA) cites several challenges to the incorporation of patient preferences in decision-making and guideline-directed care. In The Optimal Practice of Evidence-Based Medicine: Incorporating Patient Preferences in Practice Guidelines, the Mayo Clinic-affiliated authors also discuss the complexity of patient preferences, and offer […]
NCCS submitted comments to the Food and Drug Administration (FDA) as a follow-up to the Lung Cancer Patient-Focused Drug Development public meeting on June 28, 2013. The patient-focused drug development program is an initiative mandated by the Food and Drug Administration Safety and Innovation Act (FDASIA) and is intended to provide the agency the advice of patients […]
Shelley Fuld Nasso, NCCS Senior Director of Policy, was a panelist at the June 28, 2013, Food and Drug Administration (FDA) meeting on patient-focused lung cancer drug development. Ms. Fuld Nasso offered advice to FDA about strategies for incorporating patient needs and preferences in lung cancer drug development. She concentrated her remarks on the need […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute