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NCCS joined with other cancer patient and provider groups in a comment letter to the Centers for Medicare and Medicaid Services (CMS) regarding the proposed rule related to the hospital outpatient prospective payment system. Among the issues outlined in the letter is a concern about an additional reduction in payment for drugs in the 340B […]
NCCS Hosts First-Ever Virtual Cancer Policy Roundtable – Last week, NCCS hosted its spring Cancer Policy Roundtable event, which convened patient advocates, providers, health care experts, and government agencies to discuss pressing issues in cancer care policy. NCCS has been hosting roundtables for 20 years, but given the public health crisis we are currently facing, this was the first virtual roundtable event. We are proud to say that it was a success, […]
Cancer survivors have expressed concerns and questions about COVID-19, the coronavirus, and how they may be at higher risk due to their cancer history. Here are some resources about COVID-19 generally, and its impact for cancer survivors specifically. NCCS is seeking answers from public health experts on the coronavirus and its impact on cancer patients and survivors. Please leave a comment […]
The National Coalition for Cancer Survivorship (NCCS) submitted comments in response to an Informal Request for Information on the proposed Oncology Care First Model. This model was released by the Centers for Medicare and Medicaid Services (CMS). The comments focus on concerns regarding adequate resources in the model to support high quality cancer care. The letter also identifies shortcomings in the model that could influence […]
The National Coalition for Cancer Survivorship (NCCS) joined with AARP and 47 other organizations in letters to the House and Senate asking Members to co-sponsor the Medical Expense Savings Act, which is bipartisan legislation that would make permanent the 7.5 percent threshold for the medical expense deduction. This deduction provides an important tax relief for many patients which helps offset the high costs of cancer care. […]
House Drug Pricing Bill Advances Out of Committee – The biggest health care news this week was the approval by the House Ways and Means Committee of H.R. 3, the Lower Drug Costs Now Act — Speaker Pelosi’s drug pricing bill. The bill advanced along party lines, with opponents citing a recent report from the Congressional Budget Office (CBO) that said the plan would harm drug innovation and reduce the number of new drugs coming to the […]
As part of its Elevating Survivorship initiative, NCCS fielded an online survey to understand cancer survivorship experiences and needs across a range of cancer patients. NCCS and our partner patient advocacy organizations promoted the survey to our constituents, and 1,380 cancer survivors responded. Some of the key findings include […]
CAR-T therapies, a cutting-edge type of immunotherapy, are seen by many as the next generation for cancer treatments. Of course, they are expensive and complicated to administer. The Centers for Medicare and Medicaid Services (CMS) recently announced long-awaited policies regarding payment for these treatments. CMS stated, “Medicare will pay for CAR-T therapies so long as they’re administered in health care facilities that follow the […]
On July 23, the Cancer Care Planning and Communications Act (CCPCA), H.R. 3835, was reintroduced in the House of Representatives. The bill is sponsored by Rep. Mark DeSaulnier (D-CA) and Rep. Buddy Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus. The CCPCA is NCCS’ top legislative priority as it would increase access to comprehensive cancer care planning for millions of Medicare beneficiaries. If implemented in Medicare […]
Washington, D.C. – Today, Rep. Mark DeSaulnier (D-CA) and Rep. Buddy Carter (R-GA), co-chairs of the Congressional Cancer Survivors Caucus, introduced H.R. 3835, the Cancer Care Planning and Communications Act (CCPCA). A legislative priority of the National Coalition for Cancer Survivorship (NCCS), the bill would create a Medicare service to reimburse providers for time and resources used to create cancer care plans for Medicare beneficiaries. […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute