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Dr. Keith T. Flaherty gave the keynote talk at our 2015 Spring Cancer Policy Roundtable where he addressed the issues of the genetics of cancer and personalization in cancer treatment. Dr. Flaherty later joined us to further discuss these topics and the need for understanding the biologic basis of an individual patient’s cancer. While we […]
The National Comprehensive Cancer Network (NCCN) is a non-profit organization, created by an alliance of 26 leading cancer centers in the United States. At the National Coalition for Cancer Survivorship’s 2015 Spring Cancer Policy Roundtable, Dr. Bob Carlson and Joan McClure of NCCN sat down with us to talk about their organization’s Clinical Practice Guidelines. […]
Recently I had the privilege of attending “A Journey of Courage and Hope: The Johns Hopkins Metastatic Breast Cancer Retreat for Couples.” Facilitated by a renowned leader in patient-centered breast cancer care, Lillie Shockney, this unique retreat for patients and their spouses explores the resources to cope physically, financially, and emotionally with the chronic nature […]
Twenty years later, the 9th Principle of the NCCS Imperatives for Quality Cancer Care could not be more relevant. Increasingly, patients are required to take more responsibility for their health, using knowledge and self-monitoring tools that have become an essential part of medical care, such as monitoring of blood pressure, physical activity, and weight-—to name […]
Over the past twenty years, the number of cancer survivors has grown substantially. Survivors are also living longer, getting older, and have numerous medical conditions that require attention. While survivors typically receive general medical care in primary care settings, the role of primary care providers (PCPs) in the long-term follow up of survivorship needs is […]
In 2008, Marlene King was diagnosed with ductal carcinoma. After treatment, the cancer seemed to be in remission, however in December 2011 the cancer returned in the same breast. She opted for a double mastectomy with expanders and implants. In late July 2012, she learned that her cancer had metastasized to her sternum, as well […]
In March 2015, Dr. Claire Snyder participated in a panel discussion at the Cancer Policy Roundtable hosted by the National Coalition for Cancer Survivorship. The panel featured perspectives on how cancer patients and oncology professionals can work together to improve care planning and patient outcomes. Following the panel, Dr. Snyder sat down with us to […]
Progress in survival for childhood malignancies is tempered by the sequelae of the cancer and its treatment. Compelling evidence supports that childhood cancer survivors are a highly vulnerable group with a substantial risk of adverse health-related and quality-of-life outcomes resulting from their curative cancer therapy, broadly called “late effects”. Observational studies of survivor health outcomes […]
I once had a patient named Janet. Janet was a curly redhead emergency department nurse. She was vibrant, sweet, and vivacious, had melanoma, and was passionate about her data (her “story” as she liked to call it) being used in ways that would impact the future of cancer care. But this isn’t as easy as […]
We are living in an exciting and dynamic time for cancer care, witnessing not only tremendous innovations in treatment that have led to a growth in survival rates, but also advances in screening and opportunities for earlier detection. In combination with an aging population, this translates into and unprecedented growth in the numbers of individuals […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute