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In a recent article posted online via CURE Magazine, Shelley Fuld Nasso describes experiences that underscore the need for improved communication between patients and providers, as well as the evidence-base that informs NCCS’ push for cancer care planning. The Institute of Medicine recently proposed a framework for quality cancer care that centers on engaged patients […]
A summary and overview of the recent “Putting the Cancer Patient First” meeting was posted via Oncology Times online. The meeting was co-hosted by NCCS and the American Enterprise Institute (AEI) on February 28, 2014 and convened leaders in health care policy to discuss issues that impact cancer patients and survivors. Read the summary >> The full meeting can also be […]
NCCS joined with 20 patient advocacy groups and professional societies to urge the Centers for Medicare and Medicaid Services (CMS) to correct a long-standing inequity in Medicare coverage by requiring Medicare Advantage plans to provide coverage for clinical trials. Currently, individuals with Medicare Advantage plans must revert to standard fee-for-service Medicare if they wish to […]
NCCS joined its colleagues in the Cancer Leadership Council in urging the Centers for Medicare & Medicaid Services (CMS) to reconsider the new policy on classes of clinical concern that has been proposed for Medicare Part D beginning in contract year 2015. CMS has proposed removing three classes of drugs from “protected classes” status. In […]
In recent months, there has been significant discussion among cancer patients, their physicians and other health care providers, and cancer organizations about the adequacy of the provider networks in their insurance plans. Cancer patients want assurances that they will receive quality care and can seek second opinions from those with expertise in their particular cancer. […]
This week the National Coalition for Cancer Survivorship (NCCS) joined colleagues in the Cancer Leadership Council (CLC)–a coalition that represents cancer patients, health care professionals, and researchers–in submitting comments on several standards for certification of qualified health plans as outlined in the 2015 Letter to Issuers in the Federally-facilitated Marketplace. The letter commends several recent […]
Several articles published on Tuesday, February 11, reported on a study in the British Medical Journal which finds death rates from breast cancer from all causes were the same in women who got mammograms and those who did not. The articles points out that the screening also had consequential effects when mammograms detected cancers that were too small […]
On February 8, a New York Times opinion piece published online describes a common situation where the disparities in communication and comprehension of clinical information from doctor to patient may have adverse consequences for patients. The author, Theresa Brown is an an oncology nurse, and she points out that not only can the miscommunication between a health […]
In his ASCO Connection commentary, “ The Awakening of the e-Patient: Are We Prepared to Engage?” Dr. Don Dizon confirms from the provider perspective what we at NCCS know to be true: patients want to be engaged in decision-making about their care, especially for a serious diagnosis like cancer. Dr. Dizon writes of the emergence […]
Today’s World Cancer Day calls attention to the fact that there are nearly 14 million people living in the United States today who have had a diagnosis of cancer. For the past 27 years, the National Coalition for Cancer Survivorship (NCCS) has advocated for issues related to the access, quality, and coverage of cancer related […]
Survivorship Champions is a program for all clinicians and researchers, both oncology and primary care, who are interested in improving survivorship care and primary care’s role in caring for cancer survivors.
The NCCS Cancer Policy & Advocacy Team (CPAT) is a program for survivors and caregivers to learn about pressing policy issues that affect quality cancer care in order to be engaged as advocates in public policy around the needs of cancer survivors.
NCCS represents the millions of Americans who share a common experience – living with, through and beyond a cancer diagnosis. By sharing your story of how you have been touched by cancer, you are supporting the national cancer survivorship movement.
Together we can improve cancer care for survivors! Sign up to be the first to know about cancer policy issues and ways to take action
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Founder
Northeast Regional Cancer Institute
“Perhaps one of the most impactful collaborations in Dr. Brereton’s extraordinary career remains his early work and long friendship with Ellen Stovall. Through him, and in turn through the thousands of lives he has touched, Ellen’s work continues, and her mission lives on.”
—Karen M. Saunders
President, Northeast Regional Cancer Institute